Top Tweets for #ring20
We honoured Ella, Sebastian and Rachel - young lives lost to r(20) @BrightonRace; race 3 was dedicated in their memory with a special trophy – a moment to celebrate their courage and legacy. 📷
#Ring20 #RareEpilepsy #SUDEPActionDay
SUDEP Action: Making every epilepsy death count
Ring 20 syndrome: A call to action
https://t.co/C20j4noCsN Open access
#epilepsy #ILAE #genetics #karyotype #mosaic #Ring20 @IlaeWeb @epilepsiajourn @WileyNeuro
Now onto a star #epilepsy leader in Belgium 🇧🇪! @timbuckinx is the Founder & CEO of @wrepihunter and the dad of a son with a rare genetic 🧬 epilepsy: #Ring20! Join us in learning for #InternationalEpilepsyDay!
https://t.co/O4BFmgxVVY #MedTech #neurology
2月28日は世界難治性希少疾患の日、奇しくも環状20番染色体症候群をもつ娘の誕生日でもあります。今日で19歳。病気のせいで将来を諦めることのない社会にしたいです。
#Ring20
#環状20番染色体症候群
#ウルトラオーファンドラッグ
https://t.co/PjC2i22Zxk
Please nominate us for the 12 days of giving draws. With your help, we can win £1,000. The first draw will be on December 1st so don't wait and NOMINATE US! 12daysofgiving #ring20 #movimentforgood #support #R20 #health https://t.co/ycheaP6ZXa
The #ring20 family is ready! Join us live https://t.co/GmkuuAkd7m
#research #epilepsy #charity
#r20famyconference
📢 We just published a new e-learning case on #Ring20 syndrome !
Try this interactive case : https://t.co/MbBR3c88a9 and improve your knowledge on this very rare epilepsy
Developed with the ILAE, these e-learning cases aim to improve diagnosis and treatment of #rareepilepsies.
@Ring20UK provide support for individuals, families and healthcare professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome or r(20) – a rare #Epilepsy syndrome.
#R20 #Ring20 #Epilepsy #RareRevBirthday #CharityPartners
r(20) syndrome is a rare chromosome disorder that affects only a very few people worldwide - Ring20 support over 120 families around the globe. Maybe it is not as rare as we think! More info: https://t.co/yM9iJvHPyU
@unique_charity
#rarechromoday #ring20 #epilepsy #raredisease
Something I knocked up in #FH5
Show your support for @Ring20UK by searching Ring 20 in the Vinyls on Forza Horizon 5
#Xbox #Ring20 #Ring20Gamethon
Donate to support here ahead if our 24hr gaming marathon on 2nd July:
https://t.co/1Ek4Ove2qD
Great to have #Ring20 patients in #Cambridge on Friday & #Leeds today, registering to join the BioResource, working alongside @Ring20UK. Lots of important work to be done on this rare form of #epilepsy. Watch this space!
#ring20uk #EpilepsyAwareness #rarediseases #NIHR
Extremely proud to support the Ring 20 charity today though the @NIHRBioResource thank you to our amazing participants for travelling from all over the U.K! 👏 🎉 #ring20 #research #nihrbioresource @LeedsHospitals @LTHTResearch
We are raising #awarness of #Ring20 diagnosis for #RareDiseaseDay. Check our page ➡️➡️➡️ https://t.co/yM9iJvHPyU…/unravel_phasei_infog…/ ⬅️⬅️⬅️ #R20 #support #Research #epilepsy #diagnosis @rarediseaseday @rarediseaseuk
We are raising #awarness of #Ring20 diagnosis for #RareDiseaseDay. Check our page ➡️➡️➡️ https://t.co/OQg9AkZrBe ⬅️⬅️⬅️ #R20 #support #Research #epilepsy #diagnosis #Epicare
Research into the #rareepilepsy #Ring20 - published in @epilepsyaction’s “Epilepsy Today” by our Deputy Coordinator & Co-Chair: Allison Watson, also CEO of @Ring20UK.
#epilepsy
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