Top Tweets for #supplyAndAccess
.@foodfixco tells me @CoryBooker is exploring a followup hearing on "Food is Medicine" from #WHConfHungerHealth. I'd love to join & share how for those on #medicalnutrition, our medicine is our food. We we need #supplyANDaccess through the #MNEA. Health is a #bipartisan issue.
TY @CoryBooker for cosponsoring MNEA/S2013 to secure access to treatment for metabolic disorders & GI conditions. Here's Izzy w/ #PKU when she 1st lobbied in DC in 2017 & today. Now 1 step closer to #MedicalNutritionEquityNow #WHConfHungerHealth @NutritionEquity #supplyANDaccess
Important #metabolic formula supply updates have been posted to https://t.co/UWbB71vw11, including date shifts for some @AbbottNews formulas & in-stock updates from @VitafloUSA & @Aji_Cambrooke. Updates from @lowproliving were posted last week. #formulashortages #supplyANDaccess
@SecVilsack @POTUS Nonprofits like @howmuchphe have been working for decades to support people with rare #metabolic disorders who rely on #medicalnutrition. They will keep working but they need the support of their government. They need medical nutrition #supplyANDaccess to stay healthy. #PKU
Everybody clap (or drink?) during the #WHConfHungerHealth Pillar 2 session when they mention #fullyreimbursablebenefit. The #MNEA provides this for those with inborn errors of metabolism and GI conditions who rely on #medicalnutrition. Pass S2013/HR3783 NOW for #supplyANDaccess
Quote @POTUS at the #WHConfHungerHealth: If you look at your child, & you can't feed that child, what the hell else matters? The #formulashortage proved that for my kid with a rare #metabolic disorder. We need to pass the #MNEA for #supplyANDaccess to #medicalnutrition
@jlightdale Thank you for representing #medicalnutrition at the conference! Pulling for you and the #MNEA. We need #supplyANDaccess to treatment.
The #WHConfHungerHealth starts today and #medicalnutrition is on the agenda. Share your story with a quick video on why #supplyANDaccess to low-protein foods and formula is essential to you. Retweet & tag @nutritionequity https://t.co/BSHbG1l6jy #MedicalNutritionEquityNow
TY @CoryBooker for cosponsoring MNEA/S2013 to secure access to treatment for metabolic disorders & GI conditions. Here's Izzy w/ #PKU when she 1st lobbied in DC in 2017 & today. Now 1 step closer to #MedicalNutritionEquityNow #WHConfHungerHealth @NutritionEquity #supplyANDaccess
Thank you @meredithllee and @politico for keeping the #formulashortages and particularly those at risk in the #metabolic community as part of the story of the #WHConfHungerHealth. Our #formulacrisis won’t end until we have #supplyANDaccess @DrCaliff_FDA
Plans Biden will unveil this wk to tackle hunger, nutrition + diet-related diseases include FDA, per ppl familiar. The agency, which helps ensure Americans’ food is safe, is at the center of serious failures in the fed baby formula food safety response
https://t.co/2TlVkT6dSZ
@michaelcburgess We can’t forget it.. it’s still ongoing. Specialty and #metabolic formulas have ongoing back orders and we need #supplyANDaccess to what may be the only medical treatment for some disorders. #MNEA and full transparency from manufacturers + full reimbursement from payers
Medical Nutrition needs to be part of this conversation.
We still have a hard time keeping formula & even sterile water in stock in hospital. We still struggle w/ home health companies who either cannot get standard term formula or who cannot take new clients #supplyANDaccess
The #WHConfHungerHealth is 9/28. Affected by the #formulashortages, DME discontinuations, barriers to #SupplyANDAccess of #medicalnutrition or #priorauth headaches? Share this video and your story to put our issues on the national agenda for this historic conference.
2/2 And that's a "normal" where we have supply and *only* have to grapple with access, constant coverage denials, prior auth battles, and DME discontinuations. Assuming supply from other providers catches up, and we're not there yet. #formulacrisis #supplyANDaccess #MNEA
The #WHConfHungerHealth is 9/28. Affected by the #formulashortages, DME discontinuations, barriers to #SupplyANDAccess of #medicalnutrition or #priorauth headaches? Share this video and your story to put our issues on the national agenda for this historic conference.
@BuildUpRDNs @WHConfHungerHealth let's put #MedicalNutrition on the agenda! We know these cans of formula sustain lives. Thousands of Americans who need medically-necessary nutrition are in a constant #hungercrisis that we CAN solve through #supplyANDaccess and the #MNEA.
@BuildUpRDNs Phenex2, anyone? Guess it’s not infant but thousands with #pku rely on it as their primary medical nutrition. We need #supplyAndAccess with @NutritionEquity
Thank you @hbottemiller for keeping the #formulashortage and #medicalnutrition top of mind. This is not over. We need #supplyANDaccess to metabolic formula. For those who care about food/nutrition/policy @foodfixco is a must-read.
The latest edition of @foodfixco is out!
Today: Why a key taskforce informing the White House conference is divided on SNAP & soda taxes.
+ latest on infant formula, WIC and a USDA analysis showing adult obesity rate increased during the pandemic
https://t.co/Tf3TtHmqbY
@csbonta @NASPGHAN @NutritionEquity @SenBobCasey @RepMcGovern The screen that showed backordered, backordered, backordered, cancelled, backordered usually says Denied, denied, denied. Monthly hassles and end-of-year massive bills to keep my kid alive on medical nutrition. We need #supplyANDaccess
The #formulacrisis won't end when supply resumes. We need #SUPPLYANDACCESS. I'm excited to share my perspective on the formula crisis, the rare disease community and the #MedicalNutritionEquityAct on tomorrow's webinar alongside these other advocates.
Join us for this month's June RDLA Monthly Webinar to discuss legislation and developments that affect the #raredisease community.
When? June 23rd, 9:00 am PT/12 pm ET
Where? Register here: https://t.co/ln67VcrTGg
Many #RareDisease patients rely on specialty formula as medically necessary treatment for their condition. That's why both #SupplyAndAccess to these formulas for patients who need them of all ages is important to us throughout this shortage and beyond.
Alexa, a mom from Leesburg, Virginia, recently told my team about her two young sons who rely on specialty formula because of a pre-existing condition. Stories like hers are why getting specialty formula on shelves is a top priority for us. https://t.co/DbFSRueA8s
Thank you Alexa Beichler for raising awareness of the crisis the #metabolic community faces in the #formulashortage. This won’t end for us until we have #supplyandaccess via the #medicalnutritionequityact. TY @CNN for including the most #rare in your coverage of this issue.
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