Top Tweets for #thinkMDS
π©Έ THANK YOU to members, friends, supporters & advocates for your incredible commitment to raising awareness for myelodysplastic syndromes (#MDS) this #MDSWAD2024. Together, let's remain #United4MDS to continuously address the needs & challenges of the MDS community. #ThinkMDS
Itβs #MDSWAD2024 Hereβs a shout to all with or affected by #MDS We are small but #united4mds. I hope you #thinkmds today & keep those that are no longer with us & those that struggle as well as those just being diagnosed in your thoughts and prayers @NHSBT @AnthonyNolan @DKMS_uk
π©Έ #MDSWAD2024: Healthcare professionals play a crucial role in supporting #MDS patients. As Jill Dolgin from the @mdsfoundation notes, recommending patient orgs isnβt always top of mind. By linking patients to support groups, care can be more well-rounded. #United4MDS #ThinkMDS
π©Έ #ππππππππππ π’π¬ π‘ππ«π! #MDS is a rare blood cancer where the bone marrow doesnβt produce enough healthy cells. Its life-impacting symptoms include fatigue, breathlessness, and infections. For info: https://t.co/cztMNXR3AJ #MDSWAD2024 #United4MDS #ThinkMDS
π¨ Just one more day to #MDSWAD2024! Connecting with MDS patient organisations offers less-known benefits, like access to critical info that can save time and energy. As caregiver Diane Coyne shared, it could ease both time and financial burdens. #United4MDS #ThinkMDS
π¬ Dr. Heather Leitch, St. Paulβs Hospital, highlights that patient orgs arenβt always covered in medical training. HCPs can enhance MDS care working with these groups as they offer education and support, improving patient outcomes π©ΈJoin us for #MDSWAD2024! #United4MDS #ThinkMDS
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#MDSWAD2024 is this week on 25 Oct! Early detection is π for MDS. It's often diagnosed through low blood counts, with bone marrow tests to confirm abnormal cells. For useful info and resources, patient orgs can help patients on their journey! #United4MDS #ThinkMDS
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Countdown to #MDSWAD2024 25 Oct: Patient Organisations π This year, the spotlight is on the role of patient organisations in the #MDS community. Dr. @BrettLHouston of CancerCare Manitoba emphasises their impact on support, research & advocacy. #United4MDS! #ThinkMDS
π Mark your calendars for πππ ππ¨π«π₯π ππ°ππ«ππ§ππ¬π¬ πππ² π¨π§ ππππ‘ ππππ¨πππ«! With Blood Cancer Awareness Month 2024 behind us, letβs keep raising awareness & advocating for those living with #MDS. Stay tuned for #MDSWAD2024 updates. #United4MDS #ThinkMDS
π©Έ As Blood Cancer Awareness Month 2024 ends, thanks for helping to raise awareness about #MDS! Connecting with patient orgs is vital for better outcomes. Explore resources at https://t.co/svyFscUM5L & https://t.co/KS2Jr3Oyk3 #United4MDS #ThinkMDS
π©ΈProf. Dr. @UwePlatzbecker, Dir. of the Clinic & Polyclinic for Hematology, Cell Therapy and Hemostaseology at Leipzig University Hospital highlights the strength in collaboration. Together, patients, patient orgs, and healthcare pros can enhance MDS care. #United4MDS #ThinkMDS
π @GereonMaenzel from LHRM-MDS Patienten-Interessen Gemeinschaft on how #MDS patient orgs can be vital, offering easy-to-understand info and connecting patients with experienced peers. Find support: https://t.co/KS2Jr3Oyk3 #United4MDS #ThinkMDS
π©Έ Connecting with #MDS patient orgs benefits both patients & caregivers. They offer counseling, advocacy, access to clinical trials, legal advice, long-term survivorship planning, amongst others. Engaging them early can greatly improve your MDS experience #United4MDS #ThinkMDS
π©ΈDr @BrettLHouston - Hematologist - Dept. of Oncology & Hematology, CancerCare Manitoba emphasises the importance of understanding patient orgs to empower MDS patients. From services, info, legal help, support + more, research how they can best assist you. #United4MDS #ThinkMDS
π¬Discussing your #MDS with your healthcare team is vital. Ask: Your MDS type, risk group, treatments, changes to daily life, patient organisations in your area that can help. No question is too small. Understanding your condition & available resources help! #United4MDS #ThinkMDS
π©Έ Dr. Heather Leitch, Dir. of Hematology/Oncology Research at St. Paulβs Hospital highlights a big challenge for MDS patients: Figuring out how to organise their life around their diagnosis. Connecting with an MDS patient organisation for support can help. #United4MDS #ThinkMDS
πDiane Coyne, @mdsfoundation, on importance of resources to navigate complexities of #MDS. Patients & caregivers face:
π© Understanding complex medical info
π© Managing symptoms
π© Financial strain
π© Emotional stress
Patient orgs can offer crucial support. #United4MDS #ThinkMDS
π Looking for MDS support? There may be a patient organisation near you πΊοΈ Research or check out the MDS Alliance members page for more info: https://t.co/KS2Jr3Oyk3
No one should face #MDS alone. Connect with the right support. #United4MDS #ThinkMDS"
βThey can provide guidance on treatment during the different stages of disease by leaflets or other information,β - Ester Natalie Oliva MD, Hematologist, Grande Ospedale Metropolitano Bianchi Melacrino Morelli (Italy).π©ΈOn patient orgs' vital info & support #United4MDS #ThinkMDS
π©ΈβThese are serious organisations that have a mission of improving the lives of patients with MDS.β β Stuart Goldberg MD-Faculty, Hackensack Meridian School of Medicine, New Jersey (US). Patient orgs & their role in supporting MDS patients & families #United4MDS #ThinkMDS
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