Top Tweets for #thisisALS
I don’t think I’ve ever met a guitar prodigy before - can you tell I’m excited for Fight ALS Film Fest - Jason Becker: Not Dead Yet?
See y’all there! #alsawarenessmonth #als #endals #mdapartner #endalswithmda #heralsstory #alstdi #sunnystrong #thisisals #alsawareness #linkinbio
Life avoiding #ALS would be easier for most but the perseverance is where I find the most joy.
#ourALScommunity #heralsstory #EndALSwithMDA #MDApartner #sunnystrong #ALSawareness #thisisals #EndALS #ALSAwarenessMonth @HerALSStory
I would add Opening Door Using Walker gymnastics. I left the sport 8 years ago. However, I vividly remember falling off the balance beam too many times count. Ouch! #ALS #ThisIsALS #EndALS
I just parted with a nurse who has become a dear friend. She gave me a quote from a book on archetypes of wild women. I gave her this song.
Linda Ronstadt - Long Long Time (Midnight Special 1973) #ALS #ALSsucks #ThisIsALS #Goodbye https://t.co/tMAdUDmX2B via @YouTube
Who says you can’t make friends on dating apps? Really nice friend-date with Sarah: Sushi lunch and the always glorious Lake Champlain. #alifederailed #ThisIsALS #ALS #EndALS #btv #Vermont
It's very simple. You have two choices. Keep Fighting. Or. Give Up. I'm not ready to give up. #alifederailed #ThisIsALS #ALS #EndALS
I met someone new on Sunday, my first first date of the year. She’s already told me we can’t be more than friends. She cares about me too much to keep it casual, and it would hurt too much to try for something more. Ugh. #alifederailed #ThisIsALS #ALS #EndALS
While buying a few groceries—in my behemoth powerchair, with my mom—I crossed paths with a woman I hung out with in college. I’m not sure she recognized me; I’m not sure I wanted her to. She looked great, especially from my newer, lonelier perspective. #alifederailed #ThisIsALS
Feeling rejected, unwanted, unloved, unappreciated, useless, and even inhuman? Welcome to ALS. #alifederailed #ALSAwarenessMonth #ThisIsALS #ALS #EndALS
I think, to a certain extent, #pALS (and those around us) are always in grief. Because the losses keep coming. #alifederailed #ALSAwarenessMonth #ThisIsALS #ALS #EndALS
I really need this to be true and soon. Like, tomorrow. #ALS #ALSAwarenessMonth #LivingWithALS #ThisIsALS #ALSsucks #Depression #MentalHealth #PTSD #Trauma
https://t.co/2MXjweMPkw
All of these stories of heartbreak, addiction, and pain, it’s hard to believe regular (healthy) people have such a hard time. ALS has a way of dominating perception and dwarfing everything else. #alifederailed #ALSAwarenessMonth #ThisIsALS #ALS #EndALS
Dropped off a copy of my memoir at the little library in the #UVM Medical Center lobby. It was gone when we came back through an hour later. #alifederailed #ALSAwarenessMonth #ThisIsALS #ALS #EndALS
“Everything can be taken from a man but one thing: the last of the human freedoms—to choose one's attitude in any given set of circumstances.”
-Viktor Frankl #alifederailed #ThisIsALS #ALS #EndALS #ALSAwareness #MND #MNDAwareness
I am so sorry to hear this @neil_emms. I had ten falls before I got my first wheelchair. You learn much faster than me. #ThisIsALS
Thank you to everyone who bought the Kindle version of my memoir. A Life Derailed: My Journey with ALS has now sold over 300 Kindle copies! #alifederailed #ThisIsALS #ALS #EndALS #Amazon
"Because that’s what you do for Valentine’s, right? I was 15. I only knew I was obligated to do or say SOMETHING."
Valentine's, past and present. https://t.co/GW3AbATiGt #alifederailed #ThisIsALS #ALS #EndALS #ALSAwareness #MND #MNDAwareness
For most of my life, I treated hugs with my mom as a bit of a chore. They were for HER. At almost 40, I’m learning, they’re also for me. It’s too bad that boys are taught to resist such closeness and vulnerability. It’s harmful. We all need. #alifederailed #ThisIsALS #ALS #EndALS
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