Top Tweets for #tpait
💡@cincykidspcc’s surgical director @JPGurria presenting at #PancreasFest2025 on complicated course of #genetic #pancreatitis requiring #TPAIT #surgical considerations 🧬✂️
#pancreas #surgery

It was great to have @DavidVitaleMD and @JPGurria from @cincykidspcc showing their innovative of this challenging cases . #TPAIT #Naspghan
@DavidVitaleMD & @JPGurria presenting ‘Cardinal Concepts’ during extramural grand rounds @cardinalglennon Pediatrics. We are excited for future collaboration! Thank you for the warm welcome! #tpiat #pancreatitis #pediatrics

Girls back in #ICU. Went to the smaller #hospital in our town. Praying 🙏🏻 it goes better but @SanfordHealth & #CHI share info & Sanford literally has gaslit her in her #medicalchart. #ChronicIllness #ChronicPain #PRSS1 #TPAIT

We NEED better care after #discharge and/or better information that can be provided to #physicians that treat those who have have had #TPAIT
#pancreatitis #aftercare 3
Just was notified that another #TPAIT #patient passed. I don’t know specifics but know he struggled with managing #BloodSugars after the #transplant. We know that most physicians outside of #transplant team struggle managing #bloodsugars when #islet transplant does not ‘take’. 1
No damn accusations because the team has cared for post #TPAIT. A friend asked if I had talked with the specialist for an update - my reply, no I’ll ask my daughter. She has the knowledge, she knows her body but at Sanford they mis-identified #PTSD from #MedicalTrauma & instead 3
seeking help & is blamed and shamed. While the #TPAIT has help improve many lives, for those w #complications the access to competent care extremely difficult to find. Because #complications are often issues that are not #typical #patients are blamed. In 2016 due to #CDC 3
#Physician we’ve never had before. He asks my son if he is #Diabetic. My son responds yes #T3c. The #physician asked if he had the #TPAIT.
OMG he knows about #T3c. He knows about #TPAIT. He has worked with their #specialists!
Congrats @MichelleSaadMD on this amazing achievement! We are excited to have you stay on as a #PedsGI #faculty
#fellowship #TPAIT #Pancreas #pancreatitis #MedTwitter
@MaisamHaijaMD @ConradCole10 @vmukkada @CincyChildrens @CincyKidsSurg @CincyKidsRad @CincyKidsAlum @NatPancFdn
@MichelleSaadMD nailed her end of fellowship research talk today! So proud of your achievement, can’t wait to continue our paths when you become an attending here @CincyKidsGastro where wonders happen #pancreatitis #ImagingOurFuture #TPIAT

#complications of #TPAIT…….how is that ok? Fine, don’t believe my daughter or myself but then #Consult w the damn specialists as their lives are being placed at risk.
If you pray or are willing to send good #Vibes please ask for #Direction for my kids, for #Strength 10
Long Thread 🧵:
#PatientVoice #CarePartner #AnchoringBias #PatientRights #Transparency #DifficultPatient #Addict #RareDisease #PowerDynamics #Safety #Pancreatitis #TPAIT #AfterCare #SafetyNet
Yes, I know excessive on the #hashtags. If you follow me (wo muting) you know I 1
#Insulin. This needs to be retracted from her chart. Also you have no video tape of that occurring bc it’s A COMMON #complication. #Pancreatitis #TPAIT #PRSS1 #RiskingHerLife.
Based on #Medicare there should have been a number of #Investigations IF #PatientRelations & #Risk 2
Dear Bismarck @SanfordHealth here is post from another #TPAIT. This DOES happen. Some experience more than others. My daughter was # 9 to have #Transplant. Since then significant changes in protocol due to her #Complications w #Transplant.
She is NOT injecting herself w 1

Today is 2 year anniversary of the death of a young man who had #TPAIT. He died of complications & lack of #AfterCare. While many will have improved QoL others have significant #complications. There MUST be improved #AfterCare & #Engagement of #physicians & #hospitals 1
My friend recently lost her daughter of complications from #TPAIT. She herself in the last two years developed significant health issues one of which is a #BrainTumor as well as issues that can cause #pain. Her physician has prescribed #opioid #pain medications when necessary. 1
Hands down my kids are some of the strongest people I know, if not the strongest. #LuckyMama #TPAIT #Pancreatitis #SteckStrong
during their shift. Id love to see physicians be able to have more #medical autonomy and more time to spend with #patients……
Id love to see patients like my daughter who have been labeled be provided basic rights.
#HealthcareInAmerica
#BetterTogether #Aftercare #TPAIT 16
crises. We will continue to tweet - for us it feels uncomfortable and exposing and we know that many will say ‘there is more to the story’. #SweetSami & others have died to lack of after care & knowledge of doctors re the complexities of complications from #TPAIT. I’ll push 12
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