Top Tweets for #transferablemodelofcare
So interesting to hear from a person living with a rare condition, a carer, and a care coordinator. It focused on the workings of the 22q11 paediatric clinic and how this is also a #TransferableModelOfCare #HearDifferentPerspectives
@22Q11_Ireland

Congratulations to the 22q11 Complex Care Team in Crumlin π₯³ It really is a marriage of the clinical knowledge & the lived experience. Coordinated #CareForRare makes a difference. So happy for Anne @22Q11_Ireland who is always advocating for the community #DeterminedPerseverance
@22Q11_Ireland @rareireland @RareDiseasesIE @roinnslainte @HSELive π― there are so many commonalities among rare conditions. Complex medical & social needs are similar across thousands of rare diseases. #TransferableModelOfCare
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