Top Tweets for #ukist
Know the signs of infantile spasms. Seizures can inc repetitive, but often subtle movements, incl jerking of the midsection, dropping of the head, raising of the arms or wide-eyed blinks. 👀our awareness video #isaw2023 #infantilespasms #UKIST #BrynBear
https://t.co/CwAFPLtbsv
Here is what Jenny (Trustee and Co founder of UKIST) has to say.
#epilepsymatters #UKIST #epilepsyawareness
We asked you to describe UKIST in one word.
Here are the answers💜
#NationalEpilepsyWeek #Epilepsy #UKIST #InfantileSpasms
💜We are proudly part of National Epilepsy Week💜
We would love to know what you want people to know about epilepsy?
#Epilepsy #EpilepsyMatters #nationalepilepsyweek
#UKIST #InfantileSpasms
💜💜 Purple Day 2023 💜💜
We hope you all have an amazing day and spread lots of much needed awareness💜
#PurpleDay2023 #Epilepsy #EpilepsyAwareness #UKIST
We are working together with the action network to STOP infantile spasms. The aim of this campaign is to help parents see and recognise the signs, take a video, obtain a diagnosis and prioritise treatment #ISAN #STOPinfantilespasms #ISAW2022 #UKIST #thebraincantwait
2/2 The small outward movements are a sign of underlying chaotic brainwaves and the brain can't wait! #UKIST #ISAN #ISAW2022 #thebraincantwait #STOPinfantilespasms
2/2 This week we’ll be sharing lots of videos and content and we’d like our supporters to help us get the message out there by sharing our posts.
#ISAW2022 #ISAN #UKIST #thebraincantwait
💙HAPPY WORLD DOWN SYNDROME DAY💜
Sending all our love, to all the wonderful children and their families on such a special day worldwide!
Rock your Odd Socks 💜❤️💜
Have an amazing day !!! This is your day !!!❤
#WorldDownSyndromeDay2022
#Inclusion
#Love
#UKIST
UKIST would like to thank Ollie, Samuel and Charlotte who are challenging themselves to spend 24 hours in one room to raise money for us. Hope you have plenty of snacks and toys! https://t.co/NdXCzyhhRL #ukist #Warriors #infantilespasms
Advocating for your baby is 🔑. Though infantile spasms may not look “dramatic,” they can have serious, life-long effects if not treated quickly. Do not hesitate to contact your doctor if you see possible symptoms of infantile spasms #ISAW2021 #infantilespasms #ukist #brynbear
Spread the word to ‘STOP’ Infantile Spasms during Infantile Spasms Awareness Week 2021. See the signs, Take a video, Obtain a diagnosis, and Prioritize Treatment to get babies a prompt diagnosis they need to live a healthier life.
#ISAW2021 #infantilespasms #UKIST #brynbear
Annual Purple Pumpkin painting - continuing the conversation about epilepsy #purplepumpkinproject #epilepsy #infantilespasms #ukist #happyhalloween @UK_IS_T 💜🎃
Good Luck to Daisy and Farnie running the London Marathon today for UKIST. Thank you so much - please sponsor them if you can https://t.co/4PD2IIoKkU #LondonMarathon #ukist #epilepsy #infantilespasms
May is Tuberous Sclerosis awareness month & May 15 TSC awareness day. I think a new PB is a good way to start the month off. Surely, that's worth a quid or two?
https://t.co/kSgUNeAKYg
#ukist #tuberoussclerosisassociation #uktsa #ukist1millionstepchallenge #tuberoussclerosis
In my bid to raise awareness and funds for TSA and UKist, yesterday we walked around Drewston woods. Stopping for a snack break along the way. https://t.co/kSgUNej9zG
#ukist #tuberoussclerosisassociation #uktsa #ukist1millionstepchallenge #tuberoussclerosis
Today was a nice stroll around Teignmouth with Bethany Rice. Please help me raise awareness and money by sharing or to sponsor me follow the link; https://t.co/kSgUNeAKYg
#ukist #tuberoussclerosisassociation #uktsa #ukist1millionstepchallenge #tuberoussclerosis
UKIST is committed to funding vital research - because the more we know, the more we can do. You can find out more about UKIST and how to support us here - https://t.co/rfw5rCtGPj
#ISAW2020 #infantilespasms #awareness #UKIST #BrynBear 2/2
Most children who have had infantile spasms will suffer some regression in their development – even a short period of infantile spasms tangles up the wiring in their brain, & they will often need therapy to get back on the right track.
#ISAW2020 #infantilespasms #UKIST #BrynBear
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