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๐ข IRDiRC leading critical conversations at World Orphan Drug Congress USA 2026 ๐บ๐ธ
๐๏ธ 9โ11 June 2026
๐ Thomas M. Menino Convention & Exhibition Center, Boston
๐Full agenda: https://t.co/avM3DsJaxA
#RareDisease #IRDiRC #WODCUSA
Our global Head of Rare Diseases, Rachel Smith, shared some valuable insights at @OrphanConf, where she moderated a panel of industry luminaries discussing ways to expedite gene therapy drug development.
@EveryLifeOrg @RocketPharma @BridgeBioPharma @AlexionPharma #WODCUSA
@NSTherapeutics in DC this week for @OrphanConf with presentations on 5/24 and 5/25. #WODCUSA #genetherapy #retinitispigmentosa
https://t.co/r8D2r8qyge
I am looking forward to moderating a panel at World Orphan Drug Congress with respected leaders from the International Fibrodysplasia Ossificans Progressiva Association, OpenTreatments Foundation, and MDA. Learn more: https://t.co/z0rkuhg5n7
#WorldOrphanUSA #WODCUSA
Join these amazing panelists next Wednesday, May 24 at 9:10am for a keynote on "Better care for rare - advancing better diagnosis, innovation, access and patient support." Only at #WorldOrphanUSA #WODCUSA
It is time for pharma industries to recognize that in order for medications and devices to be maximally effective for all populations, a diverse mix of #clinicaltrial participants is critical.
More๐https://t.co/zBtVBanYZJ
@GGIgreatergift #WODCUSA #WORLDORPHAN
All #WorldOrphanUSA attendees: Stop by the NORD booth during today's networking reception โ starting now in the expo hall! #WODC #WODCUSA
Thinking about all the amazing connections made at #WorldOrphanDrugUSA this past event. We look forward to seeing even more in the year to come. #WODCUSA
Thank you to @OrphanConf for the opportunity to highlight our innovative #geneediting approach in pediatrics and join the #raredisease community in learning about the latest advances in research and patient care at #WODCUSA.
Tomorrow: Catch @LogicBio Therapeutics' CEO, Frederic Chereau speak on the Next Gen Therapies Seminar.
Need a pass? Head to the link in our bio. There is still time to register!
#WODCUSA #orphandrugsus #rarediseases #orphandrugs
During last weekโs @OrphanConf, Norman Barton, Head of Clinical Sciences, Rare Genetic and Immunological Disease and Neonatology at Takeda, discussed partnership and external innovation strategies in the rare disease space. #WODCUSA
Sharing a few highlights from last week's @OrphanConf, where our own Mo Heidaran participated in a keynote panel discussing the future of cell and gene therapies to treat rare diseases with representatives from @editasmed, @ask_bio, and @NovartisGene. #rarediseases #WODCUSA
With the one and only @Durhane of the @raredisorders, a living legend in the #raredisease world ๐คฉ #WODCUSA
Today, Vikram Karnani, EVP and president, international, attended the @OrphanConf where he presented during the โGlobal Expansion in Rare Disease: Strategic considerations for global commercialization of rare disease medicinesโ session. #WODCUSA
Thank you all for an amazing #WODCUSA conference! It felt so great to be back! - The WODC team โค๏ธ
Access to medications NYU Langone Health-excellent presentation on Expanded Access #WODCUSA
So thankful to have met Ms. Victoria Wagner. She has done a great job keeping the 'Rare' Delegates in line at #WODCUSA. I'm sure all of her behind-the-scenes work with @Terrapinn does not go unnoticed! Well done! #EveryLinkMatters
So thankful to have met Ms. Victoria Wagner. She has done a great job keeping the 'Rare' Delegates in line at #WODCUSA. I'm sure all of her behind-the-scenes work with @Terrapinn does not go unnoticed! Well done! #EveryLinkMatters
Some amazing conversations happening on the roundtables this afternoon at #WODCUSA
Lunch is served! #WODCUSA
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