LongHauler

Covid gave me craniocervical instability. Damage to connective tissue is a big part of long covid. Post-viral conditions need care, recognition and research.

[LongHauler @HaulerLong]

I have craniocervical instability (CCI). Diagnosed with upright MRI in flexion, extension and rotation. Covid triggered it. This is not new, the surgeon who diagnosed me has seen viruses and other pathogens do this before. Covid is not different. #MEspine #CCI #LongCovid

[LongHauler @HaulerLong]

@inneiennyfas Visst, skicka DM 👍🏻

[jorgenponder — om coronavirusepidemin @jorgenponder]

The Swedish State Epidemiologist talks about the deaths with Covid that have happened within the last couple of weeks in Sweden.
Swedish Television Morning News, December 11 2023.

[LongHauler @HaulerLong]

@karenlubell @gezmedinger @doctorasadkhan @jencurtinmd Thank you! I’m still not able to play golf again. Pretty far from it, but now I actually dream of doing it again some day.

[LongHauler @HaulerLong]

@lucimitchellfry @gezmedinger @doctorasadkhan @jencurtinmd Spain.

[LongHauler @HaulerLong]

@rb_long @gezmedinger @doctorasadkhan @jencurtinmd The neurosurgeon said that he doesn’t know how but he has seen viruses or other pathogens trigger it before.

[LongHauler @HaulerLong]

@amgnico1 @HeensArno @Priceless20201 @maurici93852731 @jenbrea Bladder symptoms gone. Digestion better. Able to walk and be upright much much more.

[LongHauler @HaulerLong]

I have craniocervical instability (CCI). Diagnosed with upright MRI in flexion, extension and rotation. Covid triggered it. This is not new, the surgeon who diagnosed me has seen viruses and other pathogens do this before. Covid is not different. #MEspine #CCI #LongCovid

[Shaney Wright @ShaneyWright]

Despite thousands of #LongCovid studies revealing profound biological abnormalities in patients vs controls, & millions globally displaying the same consistent symptoms, still – yes, STILL – you have charlatans pushing the "it's psychological / FND, give them exercise & CBT" line

[LongHauler @HaulerLong]

@Priceless20201 @maurici93852731 @jenbrea Still slowly getting better. Able to walk more and I now work full time. My neck is still bad though so I am looking at different non-invasive treatments for it. Proloteraphy and other similar different options.

[Andrew C Ahn @AndrewCAhn2]

PART I: Connective Tissue & Immune System

#LongCOVID is shedding light on long-ignored, physiological aspects of Post-Viral syndromes (e.g. #MECFS)

One fascinating area is the role of connective tissue (and Ehler Danlos Syndrome #EDS) in their pathophysiologies.

1/

[LongHauler @HaulerLong]

@ViccieLeaks Prince

[LongHauler @HaulerLong]

@maurici93852731 @jenbrea I’m not a candidate for neck fusion because my symptoms are ”mild”. I’ve had my occult tethered cord released though. Still early days with ups and downs but overall I think it has helped. Some symptoms are gone.

[LongHauler @HaulerLong]

@ShaneyWright I think the word you are looking for is ”bullshit”.

[LongHauler @HaulerLong]

@KunstJonas Tethered cord surgery

[LongHauler @HaulerLong]

@DonnellyStephen @stjamesdublin I would laugh if it wasn’t so tragic. Virtual exercise? F*ck off.

[LongHauler @HaulerLong]

@MartinKulldorff @WHO Give him a job at Brownhole institute! Perfect fit. He’s also a full blown narcissist and serial liar.

[LongHauler @HaulerLong]

@BohumilRajchl I’ve had the tethered cord released. I will not have a surgery for the neck. In the future, if my symptoms get worse, maybe I’ll have to get it. But for now I can manage them. My life is nothing like before but not bad enogh for a neck fusion.