With shifts in NIH and government funding, researchers are counting on us to sustain their life-changing research. Every dollar you give fuels research, advances clinical trials, and draws bright new minds to the field! https://t.co/eECJ3RtmJI
As you plan ahead for 2026, be sure to save the dates for HA CONNECT 2026! 📣 The world’s largest hydrocephalus conference is heading to Indianapolis! Sign up for email updates on speakers, sessions & registration details: https://t.co/xSH779rN7y
#HACONNECT26#HACONNECT
Want the latest news in hydrocephalus research, education, and community programs? Our newsletter delivers important updates, upcoming events, and meaningful ways to stay involved, right to your inbox!
Subscribe here: https://t.co/qh70RGAK1n
From groundbreaking studies to new clarity for people with iNPH, these advancements mean more hope, more answers & more support for the hydrocephalus community! Your gift can keep lifesaving research on track & ensure families aren’t left without support. https://t.co/nwd7fjvPHy
My Hydro Bear is more than a teddy bear. Its shunt reflects the real experiences of many in our community, helping people feel seen, understood, and less alone. Designed with children in mind but meaningful for all ages 🧸 💙 Order yours today: https://t.co/qZaaP1PKu1
Did you spot the Hydrocephalus Association cleats on the field last weekend? @Broncos’ Adam Trautman wore his custom cleats proudly during the team’s win, helping raise awareness for the more than 1 million people in the US living with hydrocephalus. https://t.co/mY33cCUPf6
We’re grateful for the incredible support this community showed yesterday! Every gift, share, and message of support helps move our mission forward 💙
If you weren’t able to participate on Giving Tuesday, you can still support our mission today!
https://t.co/2QvdMpyZsK
Breakthroughs don’t happen by chance. They’re made possible by supporters who give what they can — and today even the smallest gift goes twice as far! https://t.co/2QvdMpyZsK
Thousands reached out to us in their most challenging moments. With your Giving Tuesday gift, thousands more will find support when they need it most! 💙 Make a gift & share this post to help even more families get connected! https://t.co/2QvdMpyZsK
Understanding the tests for shunt & ETV failure can make a tough situation feel a little less overwhelming. Get the full breakdown: https://t.co/v5uMCjOnCt
Finding your own pace while living with #hydrocephalus isn’t easy. Jenna shares what it’s like to grow up with shifting dreams, changing health, & a timeline that doesn’t match what most people expect. Her story shows that moving forward still matters. https://t.co/PaPiT4Zda7
Today is #WorldPrematurityAwarenessDay. 💜
Prematurity is the second leading cause of infant mortality in the U.S. Join us and @MarchofDimes to raise awareness—wear purple & show support! Learn how to get involved: https://t.co/TTo3q2wqs1
#NICUHeroes
For the fourth consecutive year, the U.S. earned a D+ for preterm birth. Nearly 380,000 babies were born preterm in 2024—1 in 10 births—placing the U.S. among the highest rates in developed nations. Read more: https://t.co/5dr0elg4NZ #MarchofDimesReportCard#MarchofDimes
Each year in the U.S., 1 in 10 babies is born too soon.
Behind every number is a real family — a mom, a baby, a story of courage and hope.
This Prematurity Awareness Month help us give every baby the best possible start. Donate today https://t.co/q3Fa9KbCCN
Parents of premature infants already face enormous stress in the NICU. When posthemorrhagic hydrocephalus is added, families need clear info & strong support. HA is here to help through guidance, connection & programs like RAISE. https://t.co/WmD0sEBxge
We’re excited to feature @bwepmd, pediatric neurosurgeon at @childrens & @UTSWMedCenter, as a #HACONNECT speaker.
Sessions include:
• Treating the Whole Person
• Research in Action: Improving Patient Care
• Partnering w/ Your Care Team
https://t.co/2VwWFIeCJl
Watch HA Research Programs Manager Samantha Lanjewar interview Dr. Kenneth Iserson, a retired ER physician sharing his personal journey with Normal Pressure Hydrocephalus (NPH)—from unusual symptoms to delayed diagnosis and advocacy for earlier detection. https://t.co/VnNVNEaxRA