HDYO

An international non-profit organisation supporting, educating & empowering young people, up to 35 years, impacted by Huntington’s Disease around the world.

[HDYO @HDYOFeed]

Full video - https://t.co/DMtPdaQNan

[HDYO @HDYOFeed]

Beth Borowsky from Novartis joins HDYO to share more details about INVEST-HD. Bc this trial is looking at people earlier in their disease progression, some symptoms may not be detectable in day to day life but could be measured by clinicians. We dive deep into that conversation.

[HDYO @HDYOFeed]

@Help4HDI @HDSA

[HDYO @HDYOFeed]

Inspired by the advocates, families and community members, five Huntington’s disease organizations came together today to champion the future of rare disease innovation at the FDA. 

Together, we look forward to strengthening our partnership with the FDA.

[HDYO @HDYOFeed]

Today is Huntington’s Disease Awareness Day! We are celebrating through the faces, past and present, of HDYO over the years. The impacts of HD on young people still needs to be acknowledged, understood and listened to. We are proud to champion those voices.

#huntingtonsdisease

[HDYO @HDYOFeed]

There's a lot people don't see - and even more they don't understand.

This Huntington's Disease Awareness Month, young people are sharing their truth 💬

Our Voice, Our Truth.
The Next Generation Speaks.
Begins tomorrow ✨

#HDYO #HuntingtonsDisease

[HDYO @HDYOFeed]

@HDAwareness2024 Here’s the complete video - https://t.co/qQNnHDOCzF

[HDYO @HDYOFeed]

@laurencurehd @US_FDA Here’s the complete video - https://t.co/qQNnHDOCzF

[HDYO @HDYOFeed]

Meet Banaz, an inspiring ambassador for HDYO from the Kurdistan region in Iraq! She's bravely sharing her journey with Huntington's Disease and making a difference in the Middle East. #whatishappening #huntingtonsdisease #hope #impact

[HDYO @HDYOFeed]

@l_e_whyte @RepAuchincloss

[HDYO @HDYOFeed]

HDYO team reacts to the recent @US_FDA recommendations for sham surgery in gene therapy for #Huntingtonsdisease community. Full statement below ⬇️

https://t.co/mLX8mvPdpU

@uniQure_NV @laurencurehd

[Help4HD @Help4HDI]

Together, we will continue to fight for you💙💜💙
@HDSA @HDReach @HDYOFeed @hdfcures

[HDYO @HDYOFeed]

HDYO would like to wish all who celebrate a very Happy Easter! Have a great day!

[HDYO @HDYOFeed]

We are committed to creating a community that is built on the foundation of making every single member feel valued and empowered. Together, we can support each other to create change 💙💛💚🩷 #HDYO

[HDYO @HDYOFeed]

Happy Passover! The evening of Saturday 12 April marks the start of Passover which lasts until Sunday 20 April. HDYO wishes everyone who celebrates a joyous time.

[HDYO @HDYOFeed]

🎉 Big News! 🎉 We just launched our brand-new Research Terminology catalog! 🧠✨ Dive into the latest terms and concepts in Huntington’s disease research.
The definitions are designed to be understandable and can be easily translated. Check it out now! #HDYO #HuntingtonsDisease

[HDYO @HDYOFeed]

Thank you to our sponsors! @TevaUSA , @uniQure_NV , @Roche, @neurocrine , @WaveLifeSci and the Griffin Foundation.

[HDYO @HDYOFeed]

Watch full video: https://t.co/O4AberObI7

HDYO Ambassadors weigh in on the recent study looking at early progression in Huntington’s disease and how that may impact how young people view research. @EHDN_GRANTM

[HDSI @HDSocietyIndia]

The Huntington’s Disease Society of India (HDSI) will host HDSI International Conference. Bringing together global experts, researchers, clinicians, patients, caregivers, policymakers. Understanding, treatment, and care of Huntington’s Disease @HDYOFeed @cbmnimhans @NIMHANS_BLR