Zahra Khan (she/her) ♿️🦻🏼 زہرا خان

Aerospace Engr. Alum: @NASAPersevere @NASA_TESS 🤖 🚗 Interests: patient-centric healthcare, antiwar in STEM. Cofounder @feministfitna blog @SmacksForehead

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Hey folks. I'm starting a big push to raise funds related to health costs ESP W Medicare not covering telehealth and other stuff I need. PLS share in your networks. Link below.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Posting this in case is helpful… Mine was not long-term but I had severe non-allergic neurological RXN later looked it up and read about temporarily the late Line ENCEPHALOPATHY caused by CT contrast rxn
Still have a hard time convincing ER docs not to use it

[Céline @healingfromlc]

My cognitive decline is so severe that I think I would probably qualify for a dementia diagnosis now. It makes me so sad. It’s been going steeply downhill since I had the CT contrast. I don’t even recognize myself.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Marking time with Disability can be wild sometimes…
Today marks one year since I left my apartment to go outside for any reason at all

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

One of the things on my to-do list is to make myself a"Grief resume"…I'm envisioning it as similar to a shadow CV, I think in academia where are they share jobs they didn't get etc.…except in my case it'll be things I missed out on BC Disability, immigration etc.

[Stephen Davis @PlanetEarth_HD]

life strange when your ill you dont realise how time passes, just found out the apprentice i was training 18 years ago when i got sick, is now the boss of all the lads where i worked, the same job i was about to interview for just as i got ill. so much what ifs and life missed 😔

[ThePOTSPostman @ThePOTSPostman]

“You always cancel”

“You never show up anymore”

“You’re always sick.”

“It’s the same thing every time”

Yeah.

It’s almost like chronic illness is… chronic.

[Candace D. @DiaryofaSickGrl]

My health…

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

@DiaryofaSickGrl Yes. For OCD. It worked great

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Link to fundraiser: https://t.co/813MckrHz4

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Hey folks! I'm just over the halfway point of reaching my fundraiser goal to cover very high health related costs that aren't being met with my disability benefits. Appreciate shares.

[Raquel Savage @Raquel_Savage]

Sharing this 🧵 for COVID cautious folks.

TLDR: I was denied entrance into @BrowardHealth for a doctor’s appointment by a group of 5 hospital personnel, including the hospital’s public safety director, for refusing to take my mask off for a biometric photo.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Please RT
Seeking RECCS 4 Social Security lawyers in NYC for a friend who is seeking SSDI/SSI for mental health reasons
And needs disability accommodations for the application process itself..

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Please RT
Seeking RECCS 4 Social Security lawyers in NYC for a friend who is seeking SSDI/SSI for mental health reasons
And needs disability accommodations for the application process itself..

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Seeking mutual aid resources for food insecure disabled friend in NYC. Food banks inaccessible due to health issues so cash assistance preferred. They're working on getting SNAP and SSI but it's taking a while

[Roe 🏳️‍⚧️ they/them @GraceRoe5142]

Maybe, and hear me out, we should give information about various diagnoses to patients so they can decide for themselves what label and treatment plan is most helpful to them.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

@GraceRoe5142 I think first we highlight the conflict of interest apparent in someone who is an "BPD coach"posing this question as a fit were an objective question on their part instead of something that impacts their bottom line

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Reminder for this Ramadan event I'm hosting for disabled folks later this week.. PLS repost

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

I'll be hosting a Ramadan zoom space for disabled/chronically ill folks on February 28. Details below. Repost/share with anyone you think may be interested.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Doing another push to fundraise. halfway to goal and  Allergist wants to try off label treatments not covered by insurance. also struggling to pay for caregiving etc. in the meantime. Help me get to my goal! Repost appreciated
https://t.co/813MckrHz4

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

@Samanth18984539 @markeology It looks like the black box warning for that class of medication is for SINGULAIR not XOLAIR. Though in my case because I tend to be sensitive to psych side effects we might have avoided that whole class. The black box warning for SINGULAIR is for things like suicidal thoughts,

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

Just a regular reminder that the National Libra service for the Blind and print disabled provides free audiobooks and other materials to anyone whose disabilities make it difficult to read. This can include things like dyslexia, ADHD, brain fog etc.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

PPS: CRIP create is open lto anyone in the Disability community to attend in general…I'm just advertising the specific Ramadan space but check it out if you're looking for a place to socialize in general

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

I'll be hosting a Ramadan zoom space for disabled/chronically ill folks on February 28. Details below. Repost/share with anyone you think may be interested.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

PS: if you're coming it would be cool if you comment on this post just so I can gauge interest