Years ago when the teenage cancer trust was relatively unknown it took one celebrity to raise its profile with a wonderful comedian giving people something to think about . .
It would only take one person to make a difference - are you that person ?
#Pans#pandas. Raise awareness because my heart broke the day my daughter couldn’t remember who I was. Recognised and treated early, I would never have experienced this and she would not have been terrified because her memory had gone. Her name is Hope and she deserves better.
@WanderingPsych I’m so sorry for your loss . You don’t need to do anything right now except be kind to yourself and take one day at a time . Grief is like a wave, some days it’s raw and crashes hard and some days it’s calm and clear. Don’t try to do too much all at once, that brick wall hurts
Under the wrong care my beautiful daughter might well have been sectioned, prescribed antipsychotics, antidepressants and labelled as severely autistic. Thankfully specialist Immunologist and top class neurologists prescribed antibiotics, steroids and now IVIG. #welovenurofentoo
I was an actor but I am a mum first, and #pans#pandas takes me and my boy to some very dark places but then comes along these two shining lights...they cheer me up 🌻💚
Immunologist just described my daughter’s immune system like a roaring lion. Most immune systems without @PandasPans roar and go back to sleep again when an infection or virus hits. However children with #pandas#pans the lion continues to roar and cause havoc neurologically.
Beautiful to see the VOICES of our children raising awareness. 1 in 200 children. Science showing how repetitive infections break down the blood-brain barrier (Columbia) and specific antibodies that infiltrate portions of the brain responsible for PANDAS/PANS symptoms (Yale).
Next monday (2nd November) from 1pm, @theJeremyVine and I will be talking about #PANS PANDAS on @BBCRadio2. I've done my homework & only hope I can do the subject justice - still so little known about it by public & doctors.
We need to break the silence & help everyone understand
#Oliverscampaign Oliver used to sing this song with his sister, how potent are these words "Stary Stary Night"
They would not listen, they did not know how
Perhaps they'll listen now
For they could not love you
But still your love was true
We're excited to announce that the raffle to win this beautiful handmade guitar is open! All profits will go to research for #PANS#PANDAS Please follow this link to get your entries: https://t.co/eRT8AM3cJ8 https://t.co/alMZnZubfQ
@emerald1910 Hi Edmund , there is only one way from rock bottom and that’s up . One step at a time and reach out if yhe steps up get too hard . The view from the top is worth it