HelpAyah

Ayah's journey with Spinal Muscular Atrophy (SMA) type 2 | Zolgensma at 20months | SMA Awareness & Advocacy | More info on linktree below #friendsoflittleayah

[HelpAyah @help_ayah]

Hello #friendsoflittleayah, it is with utmost joy to announce that Ayah got Zolgensma on Monday the 20th of September 2021.

We couldn't have done it without your support. From donating and spreading Ayah's story.

We say thank you and as Ayah says ‘Tak’.
#wedidit #grateful

[HelpAyah @help_ayah]

Ayah started school 😃
It's been a week now and she is doing great. She loves kids and has already made a friend 🥰 We have our worries but this girl is unstoppable and we're learning so much from her ❤️
#friendsoflittleayah #spinalmuscularatrophy #zolgensma #curesma #grateful

[HelpAyah @help_ayah]

Ayah is 2 🎂🎈

I could write a book about our little ray of sunshine ...

May God guide you, my child. You are so loved and favored by God and people. May we celebrate many more! 🎊🎉🎂❤️❤️❤️

#birthday #birthdaygirl #grateful

[HelpAyah @help_ayah]

@DizzyLilDreamer We are grateful to you for your support !! 🙏🏾🙏🏾❤️❤️

[HelpAyah @help_ayah]

@ChepchumbaLucy Thank you for your love and support, Chep!
We love you back 💕💜

[HelpAyah @help_ayah]

Aww, you are too kind @ChepchumbaLucy 😊 Thank you! We love you 💜

[Lucy @ChepGoodKenyan]

Baby ayah @help_ayah and her mom are my shujaas!

[HelpAyah @help_ayah]

Stay blessed #friendsoflittleayah 💜💜

And happy mashujaa day to my fellow Kenyans 🇰🇪🇰🇪🇰🇪
4/4

#keepusinyourprayers #spinalmuscularatrophy #smatype2 #spinraza #zolgensma #curesma

[HelpAyah @help_ayah]

UPDATE: One month post-infusion ⬇️

It's been a month already since Ayah received #zolgensma and she's doing great! Ayah gets steroids daily to keep her liver on check and weekly bloodwork to monitor the same.
1/4

#friendsoflittleayah #curesma #spinalmuscularatrophy #smatype2

[HelpAyah @help_ayah]

So far, everything seems to be as it should be and we pray that things continue this way 🙏🏾

We are so happy we chose this route and grateful that all of you #friendsoflittleayah choose to be part of her beautiful journey.
3/4

[HelpAyah @help_ayah]

We are SUPER grateful and so proud of our lil miss sunshine. Watch her SMAsh SMA. Plus she did this while on video call with her fave internet-turned real life auntie Gathoni wa Wairura.
#gratitude #friendsoflittleayah #zolgensma #curesma #spinraza #sma #createawareness #tak
3/3

[HelpAyah @help_ayah]

UPDATE: Two weeks post #Zolgensma ~
In these 14 days, we've seen Ayah gain strength and do things she could only do when she was 7 months.
1/3

[HelpAyah @help_ayah]

This is not the position her therapist wants her in because she is locking her elbow, but she has to start somewhere, right? We know that the journey ahead is long but we celebrate every small gain.
2/3

[HelpAyah @help_ayah]

Note: this event will be happening on our IG live: https://t.co/8SWQQ8ZODF

[HelpAyah @help_ayah]

Dear #friendsoflittleayah, join us on Saturday at 11am EST/6pm EAT. Let's celebrate and rejoice getting to our goal 🎊
#gratitude #helpayah #zolgensma #wedidit

[HelpAyah @help_ayah]

@samkorvie Thank you very much Sam!! We cannot thank you and your friends enough for helping us spread awareness about our daughter Ayah. May you be richly blessed! 🙏🏾💜

[Sam Korvie @samkorvie]

Thank you to everyone who donated, posted, tweeted and or contributed to the success of this goal. Now I request that we keep Ayah and her family in prayers (or whichever spirituality you believe in ) for a successful treatment procedure. God bless you all

[Edna Sangaka @edna_sangaka]

💜💜💜💃🏽💃🏽💃🏽 We did it y'all!
The journey has been soo long but we have finally made it to the goal! Super grateful to everyone who supported in one way or another! 🙏🏾🙏🏾 Bless up!
#friendsoflittleayah

[Charles @2charles]

😍😍🎉