Carsten Nielsen

@roweerin’s other ½ ❤️ | Dad 👨‍👩‍👧 | Enthusiast 🚵🏼‍♂️🏂🥾🚗🌷🍽 🍺🎨🎸🎹🛠 | Terminal blood cancer fighter | Before I die I’ll live forever 🔥

[Carsten Nielsen @heycarsten]

Wednesday’s at the hospital are dog days, this huge good boy is Dave. His head is massive, and so is his heart 😭❤️

[Carsten Nielsen @heycarsten]

Goodbye. A tweet on behalf of my husband Carsten. https://t.co/zv8x8Y0Vkh

[Carsten Nielsen @heycarsten]

@aanand Nothin you can’t buff out

[Carsten Nielsen @heycarsten]

Whatever the case, the biopsy and analysis of the lymph node should cast a lot of light on what is actually going on. In the meantime I’m super tired (expected) and feeling decent most of the time. So I’m just going to keep doing and enjoying what I can ❤️

[Carsten Nielsen @heycarsten]

About that PET scan I did on Monday: it came back looking bad, lots of activity, new lesions and growth 😩 My oncologist decided that it would be best to do a new biopsy of a lymph node to get an updated picture of my cancer. With that info we can decide what to do next 👍🏼

[Carsten Nielsen @heycarsten]

I might be experiencing the effects of the CAR-T therapy still, the lesions could actually be clusters of T-cells. I may also have a different cancer that spawned the B-cell lymphoma. My cancer may have evolved and shed its CD19 surface proteins rendering CAR-T ineffective

[Carsten Nielsen @heycarsten]

@joe_cressy @bpoetz He literally wants Toronto to die

[Carsten Nielsen @heycarsten]

Getting a PET/CT bright and early in Buffalo on Monday morning. This will let the doctors see if my lesions and tumors have grown/shrunk/disappeared and how metabolically active they are 🤞🏼 #dlbcl #cart #immunotherapy

[Carsten Nielsen @heycarsten]

@eviltrout 😘👌🏼

[Carsten Nielsen @heycarsten]

@aanand I’ve got a set of Sony XM3s, I agree, the Bluetooth experience adds more friction than it removes a lot of the time it seems, it also takes about an hour to update the firmware on mine 😂

[Carsten Nielsen @heycarsten]

@wkbdyb “Fluffy rocks”

[Carsten Nielsen @heycarsten]

Wednesday’s at the hospital are dog days, this huge good boy is Dave. His head is massive, and so is his heart 😭❤️

[Carsten Nielsen @heycarsten]

@wkbdyb The bigger the boi, the sweeter the boi

[Carsten Nielsen @heycarsten]

@aanand Fully agree! Did you have Sony XM3’s?

[Carsten Nielsen @heycarsten]

@lornepw I tell him all about the coyotes at night when he wants to go out 🙀

[Carsten Nielsen @heycarsten]

My cat keeps knocking my phone off of the wireless charger every night, and now even during the day... cats, man 😼

[Carsten Nielsen @heycarsten]

@RobertRousseaux @Hcsued @businessinsider Yep, future rooming houses is all they are

[Carsten Nielsen @heycarsten]

@anildash 28.8kbps

[Carsten Nielsen @heycarsten]

@mattgemmell I use it in Affinity Designer and Procreate, not very inspired 😂