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My son was born with long segment hirschsprungs disease.
We therefore found the RET gene in myslef, my son & my eldest daughter.

[................. @hirschsprungsD]

@HappyFlushAF always happy to help raise awareness !

[................. @hirschsprungsD]

The boys new gadget #nomorewashouts #keepinghimoutofhospital #hirschsprungsdisease #HD #poo #happylad #hecanpoo

[................. @hirschsprungsD]

The boy had #botox few weeks back now for his #hirschsprungs #disease, well he is now none stop, couldn't be #prouder but it's #messy ha!

[................. @hirschsprungsD]

My very own #hero is 6 this week! 💙 still beating the horrid disease but he's coming out stronger every time 💙

[................. @hirschsprungsD]

@rowlz223 @JKCorden 🙌🏻🙌🏻

[................. @hirschsprungsD]

My #HD hero is 6 next week! 😱 #hero #hirschsprungs #disease #fighter #birthday #six can't believe he's got this far. Special little boy 🎈😘

[................. @hirschsprungsD]

My true real life hero, my son. #realhero #supportandfollow #1/5000babies #raredisease #longsegment #follow 🙏

[................. @hirschsprungsD]

@PeppaRl28 thank you 🙏

[Denise Welch @RealDeniseWelch]

It's Mothers Day on Sunday!! RT to win 2 sets!!! @littlebookcafe xxx

[Denise Welch @RealDeniseWelch]

RT to win 2 sets of these fab books!!! Especially mine!!!!! @littlebookcafe xxx

[................. @hirschsprungsD]

The boy on the list for Botox, not for the usual Botox use, but for the relaxation on the muscles around the rectum to allow him to go #HD

[................. @hirschsprungsD]

@RealDeniseWelch of course! Thank you. Trying to make more awareness. 8 times enterocolitis, awaiting list for Botox, maybe stoma in future

[................. @hirschsprungsD]

@RealDeniseWelch can you follow my page please 🙏 @hirschsprungsD to raise more awareness about #Hirschsprungs #HD. Hope your hero is well?

[................. @hirschsprungsD]

#alwaysandforever #hirschsprungs #tothemoonandback #follow #followback #HD my amazing little hero is nearly 6 😱💙

[................. @hirschsprungsD]

@splatt30 my son was also born with Hirschsprung's disease.. Feel free to message me #TrueHeros #HD

[................. @hirschsprungsD]

@lp_preston my son also has Hirschsprung's disease! Follow my page. Your friend can also message me with any questions #TrueHeros #HD

[Lisa Preston @lp_preston]

@RealDeniseWelch my 2 friends fighting this with 3yr old little boys right now one having an emergency op againxx #hirchsprungsawareness

[................. @hirschsprungsD]

@RealDeniseWelch @AlderHey my son was also born with Hirschsprung's disease.. He's now 6 in April! #trueheros 8 times enterocolitis!

[Denise Welch @RealDeniseWelch]

15 yrs ago today, I gave birth to a baby boy Louis. Born with Hirschsprung disease, @AlderHey saved his life & I say thank you every day xx

[................. @hirschsprungsD]

@elitephoto2014 ah!