Hope4Ellsa

Ellsa suffered seizures from 7 weeks of age. Daily occurrences of the seizures, CVI blindness, GDD are all part of her diagnosis, CDKL5 #hope4ellsa

[Hope4Ellsa @hope4ellsa]

Guess who is 5 today!!?? Yes, this little Superstar. She is the strongest, resilient warrior princess we have ever met, and everyday with her makes us realise how wonderful and quirky she is. She makes us all... https://t.co/z9S2E9xwpE

[Hope4Ellsa @hope4ellsa]

January/February update:

Been a mad few months, the last you all heard, and apologies for not updating, we were in the hospital over Xmas. Then little lady was flat out unwell, vomiting left right and centre.... https://t.co/7xJcIlsuXd

[Hope4Ellsa @hope4ellsa]

I will provide a better update tomorrow, but everything is a little more positive, still here mind, and seeing in the new year here, but what can you do...

We just want to say Happy New Year to you all. You... https://t.co/YPtuZGrBZ7

[Hope4Ellsa @hope4ellsa]

Still here... Still vomiting... Still no reasons. This morning Ellsa will be going to theatre to get a PICC line in as the access for bloods is really bad. They've attempted nearly 20 times while we've been here... https://t.co/lTHMu8xcnE

[Hope4Ellsa @hope4ellsa]

Merry Xmas... More drama in our house than an episode of Eastenders!!! Ellsa has been very ill today, vomiting everything we've tried to put into her, and been very lethargic... In the Royal now, hoping not for... https://t.co/5RvFP7Wcbr

[Hope4Ellsa @hope4ellsa]

Well, an update to see us all into 'silly season' and the season we love to hate, mainly because with the cold, comes illness, and an illness or sniffles for you or I, is life threatening for Ellsa.

I know I... https://t.co/8xCr2rv7L7

[Hope4Ellsa @hope4ellsa]

Hey everyone, again another long period of no update, to be fair I just don't want to bore you all with our boring lives... But I thought, since the summer is now officially finished and Ellsa will be returning... https://t.co/FF7eSNIMVH

[Hope4Ellsa @hope4ellsa]

#sophiaslaw https://t.co/rLpTT7o8sw

[Hope4Ellsa @hope4ellsa]

It's just boring now isn't it!? Her time will come I suppose, Charlotte Caldwell shame on you. https://t.co/scdLvmpVGk

[Hope4Ellsa @hope4ellsa]

Apologies about the last few days, as you can see it's been a bit of a platform for showing the true colours of certain individuals. I do hate using the page as a platform but it allows our voice to reach a... https://t.co/XtObjVhd23

[Hope4Ellsa @hope4ellsa]

Another family... Wow, what's that saying, no smoke without fire. Jilly Beattie have you covered any of these families stories...? That's quite a few now isn't it, that have come out and voiced concern... Along... https://t.co/s4zDxHAWXX

[Hope4Ellsa @hope4ellsa]

And the story continues to unfold with ALL of the families voicing disgust in Charlotte Caldwell. Think it's time Belfast Live grow a backbone and start asking the serious questions... Where's the money... https://t.co/oh9gJJlUmI

[Hope4Ellsa @hope4ellsa]

I'm thankful that people are waking up to this woman... I've had many negative feedback from people about Charlotte... and it seems her web if deceit is crumbling around her... Good!!!

Poor Billy is all I can... https://t.co/o33uYjcBGr

[Hope4Ellsa @hope4ellsa]

Good people supporting good people... Beware of the limelight grabbers, beware of the loudmouths... Quietly and dignified I how true parents do it, after all, it's about the kids... Isn't it?

#hope4ellsa #sophiasseizures https://t.co/Me7wr8BEec

[Hope4Ellsa @hope4ellsa]

Hello everyone... Just wanted to stop by and give a quick run down on the wee lady. This last month and a bit things have been steady enough, she is still having quite a few daily seizures, but generally she is doing... https://t.co/GJ7GIcZ9Qp

[Hope4Ellsa @hope4ellsa]

Sleep easy Lacey... 💔 Our hearts break for your family, in these horrendous times we wish you all the positivity... https://t.co/WpJNhmAct8

[Hope4Ellsa @hope4ellsa]

Ever since we started this journey we have had everyone and anyone tell us the powers of cannabis oil, and how it... https://t.co/HXIG5uZaUl

[Hope4Ellsa @hope4ellsa]

Hopefully January has been kind to you all, such a long month, and hard on the pocket. Things have been chugging... https://t.co/DIZbNqbecj

[Hope4Ellsa @hope4ellsa]

Can we have all prayers, positive thoughts and energy for little Naomi who is having a tough time of it this... https://t.co/jJJQPOQSfc

[Hope4Ellsa @hope4ellsa]

Sorry to everyone for the delay in posting, it's been one thing after the other recently and we just haven't... https://t.co/FLVEtf08E1