Hope For Marian

Marian is a child who is fighting for her life by fighting for against fatal #NiemannPickTypeC #DontGiveUpOnNPC #SaveOurMedicine

[Jason Winston George @JasonWGeorge]

This situation breaks my heart

If bureaucracy is the only reason these sick kids can’t get the ONE medication that seems to prolong their life or give any quality of life….

….we have to change that

I hope, like me, you want to learn more

[Celebrity Page @CelebrityPageTV]

WATCH: @kramergirl is chatting all about her latest projects and the importance of the #SaveOurMedicine campaign. ❤️ Learn more at https://t.co/vYLucqdsWD. ⬇️
@HopeForMarian
@PatientWorthy https://t.co/UfKUXuIBHz

[Trueheart @wearetrueheart]

Proud to team up with @HopeForMarian Foundation for the #SaveOurMedicine campaign. Be a hero and help kids & adults with Niemann-Pick Type C (NPC) have access to their life-saving medicine by signing & sharing the @Change petition at https://t.co/TacYaZQXHY 💜

[Jana Kramer @kramergirl]

I’m so honored to team up with this fierce group of Mamas @HopeForMarian Foundation for the Save Our Medicine campaign. Be a hero and help kids with Niemann-Pick Type C (NPC) have access to their life-saving medicine by signing & sharing the petition at https://t.co/pVmrphAHGV

[Save Our Medicine @dontgiveuponnpc]

The clock is ticking @US_FDA! When are you going to save access to life changing medication for families living with NPC (Niemann Pick Type C)?

Save these children’s lives.

#DontGiveUpOnNPC
https://t.co/RPqKkHe4nw

[Hope For Marian @HopeForMarian]

@natvanlis thank you so so much <3

[Canisius Softball @GriffsSoftball]

https://t.co/5QBGaDWxoe #HopeforMarion #NoPuckerChallenge

[Hope For Marian @HopeForMarian]

@GriffsSoftball Thank you guys so much!!! We are so excited! Could you send me a copy please so I can put it on our website? [email protected] :)

[Hope For Marian @HopeForMarian]

Thank you @CureSanfilippoF for taking the #nopuckerchallenge! What a huge honor to have your support!!

[Hope For Marian @HopeForMarian]

How adorable is this #nopuckerchallenge video from these tough military academy girls?! Thank you!!! https://t.co/TWUSH4NBsw

[Hope For Marian @HopeForMarian]

Please WATCH and SHARE to help save Marian and kid's with NPC lives - we need your help #hopeformarian #nopuckerchallenge #cureNPC

[Hope For Marian @HopeForMarian]

Thank you @mariamenounos for giving your inspirational voice to Marian and NPC! #nopuckerchallenge #hopeformarian https://t.co/gMSjqXvYvl

[Darsha Philips @DarshaPhilips]

@mariamenounos did the #NoPuckerChallenge for @HopeForMarian Now it's YOUR turn ! @ABC7 #ChildhoodAlzheimers

[Hope For Marian @HopeForMarian]

@KFIAM640 @jjlkfi thank you for taking the #nopuckerchallenge ambush style in the studio, SO much fun to watch and lots of #hopeformarian!! https://t.co/C8JqVMmGUX

[WakeUpCallKFI @WakeUpCallKFI]

Two days late, but guess what's finally happening today! 🍋🍋🍋#nopuckerchallenge #hopeformarian @jjlkfi @billhandelshow @HopeForMarian

[Hope For Marian @HopeForMarian]

"Do it. And do it with a lime." @abc7darsha @KarlaSouza7 thank you for accepting the #nopuckerchallenge to hep save M! Both so amazing!! https://t.co/6p341zHMtW

[Darsha Philips @DarshaPhilips]

I did the #NoPuckerChallenge 4 @HopeForMarian & kids w/#ChildhoodAlzheimers Now it's YOUR turn! @KarlaSouza7 @bobbydtv @courtneyfriel @ABC7

[Hope For Marian @HopeForMarian]

@KFIAM640 @jjlkfi Thank you for taking the #nopuckerchallenge and sweeping it through the station ambush style, so much fun! https://t.co/C8JqVMmGUX

[WakeUpCallKFI @WakeUpCallKFI]

Two days late, but guess what's finally happening today! 🍋🍋🍋#nopuckerchallenge #hopeformarian @jjlkfi @billhandelshow @HopeForMarian

[Hope For Marian @HopeForMarian]

We pray sweet Stella, a part of our #NPC family, can get the #cyclodextrin she so urgently needs. https://t.co/ptsIMhk53I via @todayshow

[Hope For Marian @HopeForMarian]

Marian's fellow preschoolers held a Bike-A-Thon for #curenpc today! The littlest people have the biggest hearts!

[Hope For Marian @HopeForMarian]

Celebrating round #2 of #VTS270 with #cookies! #curenpc

[Hope For Marian @HopeForMarian]

#Bigsister checking in on our #patient. #NationalSiblingsDay #NationalSiblingDay #sisterlove #myheart

[Hope For Marian @HopeForMarian]

“We are all mothers, fathers, sisters, brothers, aunts, uncles, and grandparents.” @Marriott thanks for the gifts and your kindness. 💗