HSPRF

Hereditary Spastic Paraplegia - HSP Research Foundation

[HSPRF @hsprf]

Link to the Research update as at December 2019 follows.

https://t.co/QjcTA6ghJh https://t.co/QjcTA6ghJh

[HSPRF @hsprf]

Help find a treatment for HSP - Give Today!

$12,000 is now waiting to be matched. What you give makes a huge difference!

Two community members will match up to $12,000 in new contributions... https://t.co/NRKuUyAANx

[HSPRF @hsprf]

An interesting read and something to reflect on.

https://t.co/NAldFPR8UI https://t.co/NAldFPR8UI

[HSPRF @hsprf]

Adam Lawrence's 2019 survey is now available. Please read and feel free to participate. https://t.co/e8KuYHgLvz

[HSPRF @hsprf]

The Foundation's Annual General Meeting is scheduled for next Tuesday - details follow:

Date & Time
The meeting will take place online on Tuesday 29 October 2019 at the following time:
• 5-6pm AWST... https://t.co/RESpNAWhPF

[HSPRF @hsprf]

An interesting article on our website. Wheelchair gardening.......
https://t.co/RE04KQm8AJ https://t.co/RE04KQm8AJ

[HSPRF @hsprf]

HSPers around Australia continue to organise get togethers to share experiences and fellowship. A big thank you to the organisers. Another 3 gatherings are already on the calendar.

Some more good fundraising... https://t.co/wSBIqxjHqh

[HSPRF @hsprf]

Here is the Foundation's latest update on the clinical trial program.

https://t.co/1UQ58akdxk https://t.co/1UQ58akdxk

[HSPRF @hsprf]

In September last we mentioned the 2018 survey conducted by Adam Lawrence was available. Results of the survey are in the following link to our website.

https://t.co/Ul4mEFAAHU https://t.co/Ul4mEFAAHU

[HSPRF @hsprf]

When dealing with the issues around HSP, it is important for awareness of possible changes. The attached article provides interesting reading on Social Cognitive skills and correctly identifying the... https://t.co/0jxtEFlu5f

[HSPRF @hsprf]

On our website, there is an article on the NDIS for our Australian readers. I have attached the link for ease of access.

https://t.co/RbI3TTkAtq https://t.co/RbI3TTkAtq

[HSPRF @hsprf]

We have separately covered our fundraising campaign. However, if a donation now does not suit, then the following stories from 4 of our community members may assist you.

James, Debbie, Suzie and Deeon decided to invite... https://t.co/16mNUCmfoQ

[HSPRF @hsprf]

We have undertaken our annual end of financial year fundraising campaign. Thank you from the Foundation and the whole HSP Community to those who have contributed. It is not too late if you are still... https://t.co/XIjCwZRAHw

[HSPRF @hsprf]

The end of financial year and we have undertaken our annual fundraising campaign - thank you from the Foundation and the whole HSP Community to those who have donated to continue the research and fund clinical trials. If... https://t.co/16mNUCmfoQ

[HSPRF @hsprf]

Thought you would enjoy reading this article. https://t.co/zEd0PNcs1J

[HSPRF @hsprf]

For those who are wondering what is happening with the current research and steps towards Clinical Trials, here is the link to the Foundation's website with updates on a number of fronts.... https://t.co/guSc9qwI61

[HSPRF @hsprf]

If you haven't seen this, thought readers would enjoy seeing increased awareness of rare diseases such as HSP. https://t.co/wT5UDDYBSt

[HSPRF @hsprf]

Rare Disease Day is 28 February. Here is a link to the official site if you haven’t already seen it. Feel free to share with friends to raise awareness of rare diseases such as HSP.

https://t.co/8ZuIpW5xAW https://t.co/8ZuIpW5xAW

[HSPRF @hsprf]

One of the biggest challenges for HSPers is the distance involved in catching up with each other. This is especially the case in a country the size of Australia. Here is a story on a get together in Western Australia near... https://t.co/8sseJNtOoQ

[HSPRF @hsprf]

Some interesting articles feature on our web page and we encourage people to periodically visit our site to check for updates. The followin g article is one that I read and while the cause of the paraplegiain this study is... https://t.co/dpstroDAK4