NORD & @EveryLifeOrg are sending a letter to #Congress, urging the inclusion of PRVs in an end of year package. The #PRV program is a vital incentive for pediatric #RareDisease drug development. To sign on to this letter, please fill out this form before this Friday, November 22 at 12pm Eastern. https://t.co/C95Fkrd0da
I travelled all year. Never skipped a day in the lab. Never wore a mask or washed my hands.
I touch my face and pick my nose too much.
Never got COViD.
But I took CBD daily.
The literature on Cannabinoids and SEB (the superantigen in spike) is vast.
https://t.co/Dn0CMKWKsE
What an honor and privilege it has been to help steward @PatientsLikeMe for 15 years. Last night @bheywood Jeff Cole and I our staff and 100 alumi gathered to celebrate 15 years of patient centered invention and learning and I announced my departure.
🚨🆕 company profile in @cenmag by the inimitable @lisamjarvis!
PBCs, PerlQuests and following an unconventional drug development path with highly motivated rare disease families https://t.co/ulM1B1nT9a