CMT4B3 Research Foundation

Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases!

[CMT4B3 Research Foundation @hunt2cureCMT]

Grateful to @BeckyQuick for turning her family’s journey into hope for so many through #CNBCCures. Rare disease families everywhere are fighting the same fight. Together, we are stronger — and we’d love to join forces.
#RareDisease #Hope #PediatricResearch #PatientAdvocacy #CMT

[Mayo Clinic Center for Individualized Medicine @MayoClinicCIM]

The Functional Omics Symposium is a free event on May 15 & 16. Speakers from @MedicalCollege @UMNews @UofIllinois @hunt2cureCMT & @MayoClinic discuss the evolution of functional omics, cutting-edge clinical trials & collaboration, and more. Register: https://t.co/Dz9WqF7ds3

[CMT4B3 Research Foundation @hunt2cureCMT]

@szuchner Hunter had the best time and we love getting updated on all the CMT4B3 Research!

[Stephan Zuchner, MD, PhD @szuchner]

Thank you for visiting the lab, Hunter and Iris. And for your support for CMT research! ⁦@hunt2cureCMT⁩

[CMT4B3 Research Foundation @hunt2cureCMT]

Only 20 more minutes of shopping! Be sure to support Hunter by shopping our amazing vendors today if you haven't already ✨. #hunterstribe

[CMT4B3 Research Foundation @hunt2cureCMT]

Shopping is about to begin!! If you're in the area, come on by! If you can't attend in person, you can click here to support our mission: https://t.co/EbivFVl71T 💗

[CMT4B3 Research Foundation @hunt2cureCMT]

It's lunch time! If you're joining us at our Golf Outing, Card Party, and shopping fundraiser we hope you're hungry 🍔🍕🥗🍟 #hunterstribe

[CMT4B3 Research Foundation @hunt2cureCMT]

YOU'RE INVITED to our CMT4B3 Golf Outing and Card Party... coming May 22nd of 2023🤗. Registration is open NOW, so be sure to head to the link in our bio to claim your ticket!

[CMT4B3 Research Foundation @hunt2cureCMT]

Have YOU made your donation? If not, you still have another week to do so! Head to the link in our bio 💙
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#nonprofit #philanthropy #rarediseaseawareness #rarediseasefunding #cmtresearch #rarediseaseresearch #medicalresearch #researchhospital

[CMT4B3 Research Foundation @hunt2cureCMT]

Do you or someone you love suffer from CMT (more specifically, CMT4B3)? Head to the link in our bio now and click the "patients" tab to learn more about the neurogenetics registry 💙
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#medicalmom #research #raremama #raremamasrising #cmtwarrior #cmt #hunt2curecmt

[CMT4B3 Research Foundation @hunt2cureCMT]

What fun activities do YOU guys have planned in the new year? We loved going to Disneyland as a family in 2022!!!😍 #disney #hunterstribe #hunt2curecmt #rarefamily

[CMT4B3 Research Foundation @hunt2cureCMT]

Did you know that we're in the process of establishing a secure, centralized repository called the CMT4B3 Bio Repository to store and distribute quality controlled and reliable research materials.
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#hunterstribe

[CMT4B3 Research Foundation @hunt2cureCMT]

Merry Christmas to all who celebrate! #merrychristmas

[CMT4B3 Research Foundation @hunt2cureCMT]

Have you donated this month? If not, you STILL HAVE TIME! Through the end of the year, we're matching donations up to $50,000 dollar for dollar. We're so grateful to all of our donors who continue to show Hunter how loved and valued he is💙 #rarediseaseresearch #hunterstribe

[CMT4B3 Research Foundation @hunt2cureCMT]

Happy Hanukkah to all who celebrate!! #happyhanukkah

[CMT4B3 Research Foundation @hunt2cureCMT]

While all patients with CMT suffer from pain, weakness, and serve damage, CMT4B3 presents with early onset, rapid degeneration, and is extremely rare. #hunterstribe

[CMT4B3 Research Foundation @hunt2cureCMT]

Looking for some affordable holiday gift finds? Head over to our Instagram to see our top picks; bonus points if you shop through our Amazon Smiles link💙 #holidaygiving

[CMT4B3 Research Foundation @hunt2cureCMT]

Today only, both facebook and our foundation will be MATCHING your donations✨. If you were waiting for a sign to make a donation, this is it! Link in our bio💙 #givingtuesday

[CMT4B3 Research Foundation @hunt2cureCMT]

Are you a holiday shopping early bird?! If so, Amazon Smiles has you covered; you can ensure that you're giving back to important causes during a time of year in which it's all too common to have fewer funds leftover for donations! Head to the link in our bio to donate now💙

[The Giving Block @TheGivingBlock]

The generosity of the crypto community is amazing. Just a few days ago, we launched our $1M Crypto Flash Match, and as of today we’ve passed $100K donated! ⚡⚡⚡

Join in on the crypto love, and donate today: https://t.co/lX4JcNky1i