@husicklecell

Official Twitter account for the Howard University Center for Sickle Cell Disease. Happy World Sickle Cell Day!

[@husicklecell @husicklecell]

Howard University and the American Red Cross are partnering to put on a blood drive on February 27th from 11 AM - 4 PM at the Blackburn Center.

As many of you know, donated blood is a critical component of some available SCD treatments so any donation helps!

[@husicklecell @husicklecell]

🌟 Be the difference your patients need! 🌟

Join our FREE online course:  Chronic Pain Management of Sickle Cell Disease.

Learn actionable strategies to manage chronic pain and reduce hospitalizations.

💻 Sign up now at: https://t.co/GKOR65oHxe

[@husicklecell @husicklecell]

🚨 Coming Soon! 🚨

A FREE 1.5 Continuing Education credit course on Chronic Pain Management of Sickle Cell Disease is about to launch. 💊✨
Discover cutting-edge strategies for better patient care, all at no cost to you.

[@husicklecell @husicklecell]

FYI - the next Sickle Cell Disease Trait Screening at Howard University Hospital is Thursday, November 14th from 9:00 AM - 1:00 PM.

[@husicklecell @husicklecell]

Yesterday's community screening at the Events DC Health and Wellness Fair. We'll see you for our next open and free SCD Trait Screening at Howard University Hospital on November 14th from 9:00 AM - 1:00 PM.

[@husicklecell @husicklecell]

Patients and caregivers should contact their health care professional about stopping Oxbryta and starting another treatment option.

https://t.co/oEdRv8QlwE

[@husicklecell @husicklecell]

ALERT - FDA is alerting patients, caregivers, and health care professionals that Oxbryta (voxelotor) is being voluntarily withdrawn from the market by the manufacturer due to safety concerns. Health care professionals should stop prescribing Oxbryta.

CONTINUED BELOW

[@husicklecell @husicklecell]

WOW, what an awesome Cure Sickle Cell NOW 5K Walk/Run we had earlier this month. We had over 900 registered and at least 700 came in person. THANK YOU for making it a success! Check out our pictures on the Facebook page: https://t.co/B4jj5LNYTb

[@husicklecell @husicklecell]

Its National Sickle Cell Awareness Month!! The HU Center for Sickle Cell Disease is leading the way with free screenings at HUH this morning.

Join us on September 14th for the Cure Sickle Cell NOW 5K Walk/Run: https://t.co/sSxsHAsXfZ

[@husicklecell @husicklecell]

As we're beginning Sickle Cell Disease Awareness Month, we're 10 days from race day for the Cure Sickle Cell NOW 5K Walk/Run!

Thank you to Vertex Pharmaceutical for being a Titanium Sponsor this year.

#CSCN

Register here: https://t.co/2lF9w5pWD9

[@husicklecell @husicklecell]

REGISTER NOW for the Cure Sickle Cell Now 5K Walk/Run!

Only those who register by today, August 26th, are guaranteed a t-shirt!!

Limited tee shirts available for those who register after August 26.

https://t.co/sSxsHAsXfZ

[@husicklecell @husicklecell]

SAVE THE DATE!!! The 18th Annual Cure Sickle Cell NOW Walk/Run will be on September 14, 2024!

[@husicklecell @husicklecell]

Special thanks to our RED Sponsor Vertex Pharmaceuticals, Inc. Their support makes this event possible! Join us as we MOVE ON to CURE SICKLE CELL NOW!

[@husicklecell @husicklecell]

NEW DATE‼️‼️‼️‼️‼️‼️ Due to inclement weather we have rescheduled the Cure Sickle Cell Now Move-on Event to Saturday September 30,2023 at 9 am! Hope to see you all! 🏃🏾‍♂️🏃🏾‍♂️🏃🏾‍♂️

[@husicklecell @husicklecell]

Hear from patient advocates and @gene_therapies leaders about the impact of #GeneTherapy and the policy updates needed to ensure patient access. Register today! https://t.co/w0jpfNDDf3

[@husicklecell @husicklecell]

Register for @gene_therapies event "Realizing the Promise of Gene Therapy: Ensuring Access" on Capitol Hill (6/26) to hear from patient advocates and IGT leaders. https://t.co/w0jpfNDDf3

[@husicklecell @husicklecell]

Learn more about #genetherapy, the value to #patients + the policy updates needed to #EnsureAccess.

[@husicklecell @husicklecell]

Learn more about the science behind #genetherapy, its value to #patients, and the policy updates needed to ensure patient access to these therapies. https://t.co/w0jpfNDDf3

[@husicklecell @husicklecell]

.@gene_therapies will host a Congressional Briefing this Monday (6/26) entitled "Realizing the Promise of Gene Therapy: Ensuring Access."

[SCANCA.INC @SCANCA_INC]

Some photos from last Friday as the Red Cross lit their Headquarters red for World Sickle Cell Day❤️ #sickelcellawareness #worldsicklecellday #red #redcross #husicklecell https://t.co/T2A9RxEjR5