Hypopara Life

Patients supporting patients helping to live our best hypopara life 🦋

[Bari Gordon Vapnek @gratefulBari]

What is freedom with a rare disease? For me it's stable calcium, not fireworks. Wrote about the other kind of freedom for July 4th: #RareDisease #hypoparathyroidism @bionewsservices @HypoparaNews https://t.co/GvrcCw8cfk

[Will @medtechmd]

Positive data from $MBX Biosciences once weekly SubQ injection for Hypoparathyroidism and awaiting data 4Q26 once monthly SubQ obesity/DM injection.

[Hypopara Life @hypoparalife]

Embrace gratitude and hope on a fresh new year: https://t.co/2w8zDLCD6y

A hopeful reflection on choosing gratitude and optimism despite the challenges of hypoparathyroidism

#Hypoparathyroidism #RareDisease #ChronicIllness #HypoparathyroidismNews #Bionews @HypoparaNews

[Hypoparathyroidism News @HypoparaNews]

Columnist Bari Vapnek intends to navigate hypoparathyroidism with confidence and determination as she begins the Lunar New Year. https://t.co/fNGI8PVHO8

[Bari Gordon Vapnek @gratefulBari]

Your strength and determination is what keeps me going. When we falter in our steps, we comeback a winner. Your comeback is the only medal you need. It’s not about winning, it’s about getting up and doing your best, no matter what! @lindseyvonn @Olympics https://t.co/PjmtWNGNJI

[Bari Gordon Vapnek @gratefulBari]

@GregGraber @lindseyvonn Winning isn’t about a medal. It’s about getting up and keep going despite the “noise”. The comeback is always better than the setback! You got this @lindseyvonn and we got you!!! You’re already a winner in my book! Thanks for inspiring me to keep going!!!
https://t.co/PjmtWNGNJI

[Bari Gordon Vapnek @gratefulBari]

Happy to share my latest column #hypoparathyroidism #olympicgames @NBCSports @lindseyvonn @kerristrug96 #GOLD #adversity

[Hypoparathyroidism News @HypoparaNews]

Watching Olympic athletes go for gold, even in the face of adversity, motivates columnist Bari Vapnek to keep fighting her own health battles. https://t.co/KvO0VF6cSV

[Bari Gordon Vapnek @gratefulBari]

Being independent meant not being a burden to others, but being her mom's caregiver has shown columnist Bari Vapnek it's OK to ask for help. https://t.co/UM54WT2HH2 #Hypoparathyroidism #yorvipath #caregiver

[Hypopara Life @hypoparalife]

Columnist Bari Vapnek keeps pushing for that ideal world she envisions, where rare disease patients have better access to information. https://t.co/ohGOiiaAPt

[Hypoparathyroidism News @HypoparaNews]

Columnist Bari Vapnek compares her favorite NFL team with the self-improvement goals she brings to life with hypopara. https://t.co/ggY9Njg9el

[Hypoparathyroidism News @HypoparaNews]

Columnist Heather Novak prepares to take a break from writing, saying it's not about letting hypopara win, but about putting her health first. https://t.co/xA2H2o6tIG

[Bari Gordon Vapnek @gratefulBari]

“We didn’t realize we were making memories, we just knew we were having fun.” A.A. Milne
Traveling with #hypopara isn't easy, but being prepared increases the potential for a trouble-free trip. Thank you, @harrisonvapnek, for the best trip! #Memories
https://t.co/DB2Y9mt9gX

[Hypoparathyroidism News @HypoparaNews]

Hypoparathyroidism doesn't come with a road map, but columnist Bari Vapnek perseveres with the help of a supportive family. https://t.co/IZ331GWWpJ

[Bari Gordon Vapnek @gratefulBari]

Treasure every moment knowing anything is attainable with determination. I am thankful for each day, the ones that pushed me, the ones that hurt me and the ones that enlightened me. Forever grateful 🩷
https://t.co/KDOok8Oouj
#hypoparathyroidism #bethechange #BraveButterfly🦋

[Gerti Tashko, M.D. @BigPictureEndo]

Hypoparathyroidism is a rare but impactful endocrine disorder. It causes low calcium levels and a range of symptoms, including cramps, numbness, and brain fog. This blog explores what causes it, how it’s diagnosed, and why personalized care matters.

https://t.co/O1QlG5sL9L

[Hypoparathyroidism News @HypoparaNews]

On the anniversary of her hypoparathyroidism diagnosis, columnist Heather Novak is acknowledging her anger while focusing on gratitude. https://t.co/Dm3m7GPksP

[MBX Biosciences @MBXBio]

This week, Richard DiMarchi, Ph.D., @IndianaUniv Prof., MBX co-founder & will present on the discovery process for our novel investigational parathyroid hormone replacement therapy at the 2nd Annual Hypoparathyroidism Summit.

https://t.co/wT1HzbGrUo

[Rare Diseases @CheckOrphan]

New 4-Year Data Shows Sustained Response to TransCon® PTH (Palopegteriparatide) Therapy in Adults with Hypoparathyroidism - Check the Link for More https://t.co/SjF84U0i2Y @AscendisPharma #PTH #Rare_Diseases #Hypoparathyroidism #Orphan_Drugs #Drug_Development #ESPE

[Hypoparathyroidism News @HypoparaNews]

Columnist Bari Vapnek, who has hypopara, shares how she offered resources and the gift of hope to someone whose child has the same condition. https://t.co/m1xLGYD51v