I Am Super capes

We make Superhero capes for sick & disadvantaged children in the UK & around the world. Giving children the POWER to be children! Own & run by Claudia Beard

[I Am Super capes @iamsupercapes]

@BBCTheOneShow I am superhero capes from donated children's duvets.- we donate them to children in hospital, children with disabilities and children's charities - https://t.co/vInbVD9Jkb

[Michael Day @JustMike2K24]

Really excited to be introducing @iamsupercapes to our @HHFTnhs Children’s departments 🙌🏻👏🏻

What a fantastic insight into this family run beauty lead by Claudia 🎉

Check out the interview here 👉🏻 https://t.co/MKxGJKxuqF

#childrenshealth #happinessiskey

[I Am Super capes @iamsupercapes]

#NewProfilePic

[Capes 4 Kids AU @capes4kidsAU]

Thank you to Signature Upholstery for once again generously supporting us during our Birthday Month cape sponsorship drive.

[Graze Festival @GrazeFestival]

Only 4 months to go! A big thanks to all our production partners, sponsors and volunteers who have committed to supporting Graze Festival 2018 🎪🎭🎸☀️🍻 #winchester https://t.co/xTp42Gdwep

[I Am Super capes @iamsupercapes]

So proud of my boy. He is such an amazing big brother. https://t.co/mQOrk5qq2G

[SWAN UK (syndromes without a name) @SWAN_UK]

Meet Broden and his superhero siblings in our second Undiagnosed Children’s Day film. Broden shares his story of having a sibling with an #undiagnosed #genetic condition. RT to raise awareness! Donate here: https://t.co/QaFoSwoGK6 #UCDsuperhero https://t.co/qhxDd4xQk8

[SWAN UK (syndromes without a name) @SWAN_UK]

We can't wait to share our family videos for Undiagnosed Children's Day! #UCDsuperhero https://t.co/cUQM1AOwyB

[Capes 4 Kids AU @capes4kidsAU]

We are getting excited 🤡 for Wednesday night .
#stardustcircus #realfooddubbo
The Project Sunrise Today Show... https://t.co/jLVVU1QEWz

[SWAN UK (syndromes without a name) @SWAN_UK]

Want to find out more about the @GeneticAll_UK team? Genetic Alliance UK is the charity that runs SWAN UK. You can find out about us here: https://t.co/m6vnPGxAZ5. We had to capture Jayne, Mariana, Nick and Lauren who came to work unwittingly dressed as a pack of fruit pastels!

[SWAN UK (syndromes without a name) @SWAN_UK]

We're doing a big shout out to Amanda Wathen @Ljaw75 who is running the @LondonMarathon for SWAN UK! Please help spur Amanda on and donate through @VMGiving: https://t.co/EzPApTY2ZJ. Interested in doing something similar for SWAN UK? Email us: [email protected]

[SWAN UK (syndromes without a name) @SWAN_UK]

'The impact of getting a diagnosis through genome sequencing is huge. When there is a diagnosis it's often just a string of letters and numbers & it's hard to know where to go for support. SWAN UK still provides support for families whose children have received a rare diagnosis.'

[SWAN UK (syndromes without a name) @SWAN_UK]

'Without a #diagnosis you allow yourself to think, "perhaps it’s nothing, perhaps it will go, perhaps I’m just being over protective and neurotic".'
https://t.co/LG4Y83aaGz #undiagnosed

[I Am Super capes @iamsupercapes]

We have been away for a little while, but we are hitting the ground running in 2018 & are starting with Winchester Young Carers & Winchester Hospital.
Our first Super Sewing Day is this month. Please come along and help us sew as many capes as possible.

[SWAN UK (syndromes without a name) @SWAN_UK]

Every week we send balloons to children who have been in hospital so that we can put a smile on children’s and families’ faces and let them know that they aren’t alone. To find out more about the support that SWAN UK offers, visit: https://t.co/YT96NcHcnQ #undiagnosed

[SWAN UK (syndromes without a name) @SWAN_UK]

Here in Bristol we held a Christmas Party @HSJFoundation. LJ

[SWAN UK (syndromes without a name) @SWAN_UK]

Hi @RainbowTrustCC please can you RT to help us get the word out to families about our #undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London? To find out more and register click here: https://t.co/2xVIsKCyOg #charitytuesday

[SWAN UK (syndromes without a name) @SWAN_UK]

After our successful #Newcastle event, we've got undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London. Pls RT to get the word out to families @contactfamilies! To find out more and register click here: https://t.co/2xVIsKCyOg

[SWAN UK (syndromes without a name) @SWAN_UK]

We've got an #undiagnosed #genetic conditions information event coming up in London on 1 March. Would you like to come along? https://t.co/NNr0itwYCs

[SWAN UK (syndromes without a name) @SWAN_UK]

Our lovely Parent Rep for East Sussex, Marie Pritchard has a stand at the @FamilyFund event today in #Brighton at @BrighthelmURC 10am-2:30pm. If you're in the area come and say hello! #undiagnosed

[SWAN UK (syndromes without a name) @SWAN_UK]

Our Big Ambition is that all families who have a child affected by a syndrome w/out a name get the support they need, when they need it. We want it recognised that being #undiagnosed is not always a temporary stage-the genetic cause of some conditions may never be known. *LR