We make Superhero capes for sick & disadvantaged children in the UK & around the world. Giving children the POWER to be children! Own & run by Claudia Beard
@BBCTheOneShow I am superhero capes from donated children's duvets.- we donate them to children in hospital, children with disabilities and children's charities - https://t.co/vInbVD9Jkb
Really excited to be introducing @iamsupercapes to our @HHFTnhs Children’s departments 🙌🏻👏🏻
What a fantastic insight into this family run beauty lead by Claudia 🎉
Check out the interview here 👉🏻 https://t.co/MKxGJKxuqF
#childrenshealth#happinessiskey
Only 4 months to go! A big thanks to all our production partners, sponsors and volunteers who have committed to supporting Graze Festival 2018 🎪🎭🎸☀️🍻 #winchester https://t.co/xTp42Gdwep
Meet Broden and his superhero siblings in our second Undiagnosed Children’s Day film. Broden shares his story of having a sibling with an #undiagnosed#genetic condition. RT to raise awareness! Donate here: https://t.co/QaFoSwoGK6 #UCDsuperhero https://t.co/qhxDd4xQk8
Want to find out more about the @GeneticAll_UK team? Genetic Alliance UK is the charity that runs SWAN UK. You can find out about us here: https://t.co/m6vnPGxAZ5. We had to capture Jayne, Mariana, Nick and Lauren who came to work unwittingly dressed as a pack of fruit pastels!
We're doing a big shout out to Amanda Wathen @Ljaw75 who is running the @LondonMarathon for SWAN UK! Please help spur Amanda on and donate through @VMGiving: https://t.co/EzPApTY2ZJ. Interested in doing something similar for SWAN UK? Email us: [email protected]
'The impact of getting a diagnosis through genome sequencing is huge. When there is a diagnosis it's often just a string of letters and numbers & it's hard to know where to go for support. SWAN UK still provides support for families whose children have received a rare diagnosis.'
'Without a #diagnosis you allow yourself to think, "perhaps it’s nothing, perhaps it will go, perhaps I’m just being over protective and neurotic".'
https://t.co/LG4Y83aaGz #undiagnosed
We have been away for a little while, but we are hitting the ground running in 2018 & are starting with Winchester Young Carers & Winchester Hospital.
Our first Super Sewing Day is this month. Please come along and help us sew as many capes as possible.
Every week we send balloons to children who have been in hospital so that we can put a smile on children’s and families’ faces and let them know that they aren’t alone. To find out more about the support that SWAN UK offers, visit: https://t.co/YT96NcHcnQ #undiagnosed
Hi @RainbowTrustCC please can you RT to help us get the word out to families about our #undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London? To find out more and register click here: https://t.co/2xVIsKCyOg #charitytuesday
After our successful #Newcastle event, we've got undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London. Pls RT to get the word out to families @contactfamilies! To find out more and register click here: https://t.co/2xVIsKCyOg
Our lovely Parent Rep for East Sussex, Marie Pritchard has a stand at the @FamilyFund event today in #Brighton at @BrighthelmURC 10am-2:30pm. If you're in the area come and say hello! #undiagnosed
Our Big Ambition is that all families who have a child affected by a syndrome w/out a name get the support they need, when they need it. We want it recognised that being #undiagnosed is not always a temporary stage-the genetic cause of some conditions may never be known. *LR