ICBDSR

International Clearinghouse for Birth Defects Surveillance and Research

[ICBDSR @ICBDSR]

Do you run a registry of #BirthDefects and you would like to be a Member of #ICBDSR?

Organizations that systematically collect and analyse data for the surveillance of birth defects can become members of ICBDSR. See how in this link ⬇️

https://t.co/ri3uDZyil2

[Journal of Communication in Healthcare (JCIH) @JCIHonline]

Today is World Birth Defects Day!

The mission of the @ICBDSR is to bring together birth defect programs from around the world to conduct worldwide surveillance and research to prevent birth defects and to ameliorate their consequences

Learn more: https://t.co/ZLephv4T9C

[Eva Bermejo-Sánchez, PhD @EvaBS14]

✨Hoy, 3 de marzo, celebramos el Día Mundial de los Defectos Congénitos.
El #ECEMC estuvo en el origen de este día, en 2015, para dar visibilidad a estas patologías, que tanto impacto tienen desde el nacimiento de la persona afectada y su familia
#WorldBDDay @ICBDSR @worldbdday

[World Birth Defects Day 2026 @worldbdday]

Today, March 3rd, 2026 is World Birth Defects Day! Partner with us all across the globe to raise a collective voice for birth defects awareness.
#WorldBDDay #EveryJourneyMatters #AwarenessWithoutStigma
#DiaMundialDeLosDefectosCongenitos

[ICBDSR @ICBDSR]

The abstract submission deadline has been extended to May 12th.
https://t.co/aY5ZYwKWw7

[ICBDSR @ICBDSR]

Last day to submit your abstracts for the 50th ICBDSR Meeting before the May 1st deadline!

[ICBDSR @ICBDSR]

REMINDER: Abstract submissions are due May 1st. You can submit an abstract at https://t.co/AzB8gdYSsp

[ICBDSR @ICBDSR]

(3/3)
- Psychosocial impacts of birth defects, quality of life, education, and other related issues
- Management and care for birth defects
- Patient and caregiver experiences
- Historical perspective of surveillance of congenital anomalies

[ICBDSR @ICBDSR]

(2/3)
- Covid-19 and impact on reproductive outcomes, birth defects surveillance, prevention, and care
- Molecular genetics/molecular epidemiology/epigenetics and birth defects
- Prenatal screening, early pregnancy/birth/postnatal outcomes

[ICBDSR @ICBDSR]

(1/3) Abstract topics should fit one of the following themes:
- Birth defect surveillance and descriptive epidemiology (including surveillance methodology)
- Risk factors and primary prevention for birth defects
- Rare diseases

[ICBDSR @ICBDSR]

Abstract submissions for the 50th ICBDSR Annual meeting are due May 1s, 2024.
You can find the submission link at https://t.co/83qrJ3INY1

[ICBDSR @ICBDSR]

The 2024 ICBDSR annual meeting will celebrate its 50th anniversary since its founding in 1974. The 50th annual meeting will take place in Prague, Czech Republic from Sep 1-4 at the Hermitage Hotel.
More info can be found at https://t.co/qryptKmqgt
#icbdsr #50thanniversary

[ICBDSR @ICBDSR]

Today, March 3rd is World Birth Defects Day! The Clearninghouse is one of the founding partners and continues to foster partnerships for birth defects research and surveillance. Let's spread the word!
#WorldBDDay #EveryJourneyMatters #AwarenessWithoutStigma

[World Birth Defects Day 2026 @worldbdday]

Today, March 3rd, 2024 is World Birth Defects Day! Partner with us all across the globe to raise a collective voice for birth defects awareness.
#WorldBDDay #EveryJourneyMatters #AwarenessWithoutStigma

[ICBDSR @ICBDSR]

Thank you to all @icbdsr partners for participating in #WorldBDDay. We look forward to your continued collaboration. #WorldBDDay #EveryJourneyMatters

[ICBDSR @ICBDSR]

A12. Stay informed of birth defect research, disseminate new findings to colleagues, and collaborate with one another to increase research and surveillance efforts! #WorldBDday #EveryJourneyMatters

[MotherToBaby @MotherToBaby]

Q6A5 Tobacco products should be avoided during pregnancy. Studies have suggested a small risk for cleft lip or palate with cigarette smoking during pregnancy, especially if the person is a heavy smoker. https://t.co/wSmbLIomjh #WorldBDDay #everyjourneymatters

[CDC_NCBDDD @CDC_NCBDDD]

A10. Many children living with birth defects require care from a variety of specialists. Coordination of care helps families work with their healthcare team to navigate care. #WorldBDDay #EveryJourneyMatters https://t.co/1gbk6Gr6cf

[Children's HeartLink @CHeartLink]

A9 3/3 Birth defects screening is also critical for #CHD patients as timely screening for CHD averts unnecessary mortality and complications. #WorldBDday #EveryJourneyMatters

[March of Dimes @MarchofDimes]

A9b. Early treatment for birth defects is important to prevent more serious health problems. A baby with a birth defect may need a team of providers who work together to give the best all-around care. #WorldBDday #EveryJourneyMatters

[March of Dimes @MarchofDimes]

A9a. Babies with birth defects often need special medical care and treatments, like medicines or surgery. Sometimes they need assistive devices, like a hearing aid. Babies with birth defects also may need special therapies, like speech therapy. #WorldBDday #EveryJourneyMatters