iCHOOSE study

Research study to develop a core outcome set for stillbirth and neonatal death care research

Email: [email protected]

[iCHOOSE study @ichooseresearch]

We are still looking for #Dads to take part in research interviews to hear about their experiences of care after #neonatal death. Click here for more info and to register interest: https://t.co/9u4LwDVsbs
#babyloss #research

[iCHOOSE study @ichooseresearch]

We're still looking for #Dads who have experienced neonatal loss. We want to hear about your experiences of post-bereavement care and what is important to you in a telephone/online interview. Click on link in bio @FCVilomah @SUFCAllTeams @SandsUK @Petalscharity @twinstrustbsg

[iCHOOSE study @ichooseresearch]

We want to speak to Dads
who've experienced neonatal loss! The iCHOOSE neonatal study at Bristol University is reaching out to hear your valuable insights. Share your care experiences in online/telephone interviews after the loss of your baby. Your perspective matters. @SandsUK

[iCHOOSE study @ichooseresearch]

🌈 @ichooseresearch understand that Black and Asian parents don't always have their voices heard in research. If you have experienced neonatal loss, your voice is important in enhancing future care for all families. Find out more in our bio
@SandsUK

[iCHOOSE study @ichooseresearch]

🌈 Are you a non-birthing parent who’s experienced neonatal loss? We are conducting online/telephone interviews with parents after their baby died. We want to hear about your experience. Your perspective can help improve future care. 🌻💔 @SandsUK
#NeonatalLoss #nonbirthingparent

[iCHOOSE study @ichooseresearch]

🌈We are working with @sandscharity to find out about the care received by parents after neonatal loss. We want to hear from parents of twins in this research to include your perspective in this work. To find out more click the link in our bio #twinparents #twinloss

[iCHOOSE study @ichooseresearch]

We want to speak to Dads
who've experienced neonatal loss! The iCHOOSE neonatal study at Bristol University is reaching out to hear your valuable insights. Share your care experiences in online/telephone interviews after the loss of your baby. Your perspective matters. @SandsUK

[iCHOOSE study @ichooseresearch]

🌈 @ichooseresearch understand that Black and Asian parents don't always have their voices heard in research. If you have experienced neonatal loss, your voice is important in enhancing future care for all families. Find out more in our bio
@SandsUK

[Sands - baby loss charity 💜🧡 @SandsUK]

Black and Asian bereaved parents whose baby died before, during or shortly after birth have been sharing their experiences with us.

The 56 parents who took part shone a light on care that works well, while also highlighting barriers, biases, and poor care.

For some families, not being listened to or having their concerns taken seriously led to important warning signs going unnoticed, investigations not being carried out and opportunities to save babies’ lives being missed.

Read the experiences of Black and Asian bereaved parents as well as what needs to change and our recommendations to make pregnancy safer for everyone ⬇️

https://t.co/oFIXhHmLcU

We’re sharing the voices of Black and Asian bereaved parents to ensure they’re heard alongside today’s publication of the @mbrrace confidential enquiry findings.

#SavingBabiesLives #SaferMaternity

[MBRRACE UK @mbrrace]

Latest @mbrrace perinatal confidential enquiry reports published today comparing the care of Asian, Black and White women whose babies died. Download the full report and recommendations:https://t.co/fFx5yHMOyk  https://t.co/rUsySdoMVb @TIMMSleicester @NPEU_Oxford

[Sands - baby loss charity 💜🧡 @SandsUK]

We are funding the @ichooseresearch neonatal research study and are looking for bereaved parents who've experienced a neonatal loss to share their experience and take part in interviews.

Help us shape future care 💙🧡

Find out more ➡️ https://t.co/shio0uHMkU

#BabyLoss

[iCHOOSE study @ichooseresearch]

Bristol University's iCHOOSE neonatal study is seeking parents who've experienced neonatal loss. Share your care journey in an online/telephone interview. Together, we can make a difference. Click for more info https://t.co/9u4LwDVsbs. 🌼💔#iCHOOSEStudy #NeonatalLoss @SandsUK

[iCHOOSE study @ichooseresearch]

The iCHOOSE neonatal study at Bristol University are conducting online/telephone interviews with parents after their baby died. We want to hear about your care experiences to help improve future care.🌻🌈

To find out more click the link in our bio.

#NeonatalLoss @SandsUK

[iCHOOSE study @ichooseresearch]

Introductory event to iCHOOSE research addressing how parents and families are cared for after a neonatal death.
Inviting parents who have experienced neonatal death and would like to participate in the research, please email: [email protected]

[Sands - baby loss charity 💜🧡 @SandsUK]

The @ichooseresearch team are looking for parents who have experienced neonatal death to join their research team to look at how parents and families are cared for.

If you would like to get involved, please email…

📧 [email protected]

#SandsResearch #Neonatal

[Danya Bakhbakhi @danyabakhbakhi]

Are you a parent who's experienced a stillbirth or neonatal death? Can you help us evaluate whether the booklet Stillbirth, Neonatal Death & the Grief Journey is a helpful resource for bereaved parents & professionals who support them? 👉 [email protected] for info

[Dr Margaret Murphy @mgtmurphy123]

Places available FREE online course Meeting the Needs of Parents in Pregnancy and Parenting after Loss with Dr Joann O'Leary, Lynnda Parker, Dr Margaret Murphy. Sponsored
@Fulbright_Eire
4 x 3 hour sessions. March 10; April 7/26; May 12 email [email protected] to book a place.

[Sands Insights @SandsInsights]

Huge thanks to all the parents who contributed to developing this important new protocol to help standardise outcome reporting across #stillbirth research

#SandsResearch

[Danya Bakhbakhi @danyabakhbakhi]

Protocol to develop #coreoutcomeset for #stillbirth care now published. Thank you to the team helping to get this out there https://t.co/rCTSAsVfVK

@abifraser1 @DSiassakos @LisaHinton4 @DrAnnaDavies @abimerriel @BurdenChristy @JamesMNDuffy @VickiFlenady @MCR_SB_Research

[Tamarin Norwood @TamarinNorwood]

.. the #babyloss researchers gathering and interpreting data that drives change—the hidden work that may not be seen by its beneficiaries but is felt very deeply: @StillbirthFoundation @ISIStillbirth @CREStillbirth @ichooseresearch @Sandsinsights @ISAISPID2021 & many others.. 3/5

[iCHOOSE study @ichooseresearch]

Thank you so much everybody for taking part in the first round of our Delphi survey. We had a fantastic response with 386 parents, 196 professionals and 33 individuals who identified as both. Keep your eyes peeled for updates! The next round will be opening soon.