Sandra, your friendly neighborhood HS activist

Wife and mother of two 👨‍👩‍👦‍👦, loyal friend and unrelenting optimist dedicated to advocacy, awareness, and activism for Hidradenitis Suppurativa

[Hope for HS @hopeforhs]

It's #HSAwarenessWeek and raising awareness means helping people recognize symptoms of #HidradenitsSuppurativa.

If you recognize the symptoms in this graphic and suspect "that painful spot that just won't heal properly" could be HS, seek a diagnosis from a dermatologist.

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

I signed up for the Walk, Run, and Rest for Hidradenitis Suppurativa Awareness on Jun 7, 2021! https://t.co/9Yss2O1xon

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

Doctors: Your #HidradenitisSuppurativa symptoms will improve if you wear loose clothes.
Me:

[HSCOVID @hscovid]

Myths about #HidradenitisSuppurativa: No one can understand my HS and no one can help me.

Truth: @hsforg can provide reliable information and direct you to HS doctors. @hopeforhs can help you find in-person and online support group.

#HSAwarenessWeek2020

[HSCOVID @hscovid]

Myths about #HidradenitisSuppurativa: There are no good treatments for HS.

Truth: Although there is no single medication that works for every HS patient, there are several medical and surgical treatments available for HS. #HSAwarenessWeek2020

@hsforg
@hopeforhs
@UCSFHospitals

[Hope for HS @hopeforhs]

Thanks to the efforts of Angela D (who is also heading up the proclamation campaign), North Carolina has also proclaimed this week as #HidradenitisSuppurativa Awareness Week!

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

I just listened to this, and it's remarkable how much a man with "mild" #HidradenitisSuppurativa for two years is able to capture the feelings - agony, brutalizing pain - that I experience too. So many of our stories are different but so much is the same. Please have a listen.

[Steve Daveluy @SteveDaveluy]

Spread the word about the HS Awareness Virtual Summit for #hsawarenessweek next week https://t.co/ZkHQcik9k4 #dermtwitter #HidradenitisSuppurativa @hopeforhs @hsireland1 @hsforg @ichoseoptimism

[HSCOVID @hscovid]

Announcing the launch of the Global HS COVID-19 Registry! Our mission is to improve the care of #HS patients during the #COVID-19 pandemic by capturing data on pediatric and adult COVID-19-positive HS patients @haleynaik @michellelowes @johnfrew @HSFoundationorg @UCSF

[Haley Naik @haleynaik]

Teamed up with @hsforg and @learnskin to discuss the impact of COVID-19 on #HS. We share guidance for providers on risks and treatment, and also answer patient questions: https://t.co/C1W0zy943d

@hopeforhs @UCSF @UCSFHospitals @MedDermSoc #COVID19 #dermtwitter #biologics

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

I signed the petition to get a Google Doodle in honor of the upcoming 30th anniversary of the Americans with Disabilities Act in July 2020, and I think you should too! https://t.co/j8EqawVCmV via @Change

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

I'm hoping to start some conversations with my homemade #HidradenitisSuppurativa awareness stickers!

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

It was an overwhelming joy to attend @JasmineEspy film screening last night. Like the woman herself, this film is powerful, beautiful, and is guaranteed to resonate with everyone living with #HidradenitisSuppurativa. _Everyone_ needs to see #mygoldlining!

[Hope for HS @hopeforhs]

Read about the collaboration between patient advocates and #HidradenitisSuppurativa medical experts that has resulted in a @BrJDermatol publication in the latest Hope for HS blog post:

https://t.co/rtRSNTDFV5

[Sandra, your friendly neighborhood HS activist @ichoseoptimism]

@ChileHS1 @hopeforhs I think it means that HS is not a one-size fits all disease, and we might all have different pathways or factors that affect our HS. TNF inhibitors don't work for everyone, so leave no stone unturned!

[Hope for HS @hopeforhs]

Did you know? Dermatology Times says "Between 2017 and 2019, the number of clinical trials devoted to this effort [biologics for HS] grew by 50% with many focusing on interleukin-17 and interleukin-23 inhibitors." https://t.co/4cSUDt8DfQ

[Hope for HS @hopeforhs]

Mark your calendar for these upcoming Hope for HS #HidradenitisSuppurativa patient and caregiver support meetings!
December
6 - Bronx
10 - Detroit
12 - Winston Salem, NC
January
13 - Richmond
22 - Minneapolis
26 - Atlanta
See https://t.co/GbCR7HxR7N for more info!

[Hope for HS @hopeforhs]

The Hidradenitis Suppurativa Foundation (HSF) is seeking grant applications that encourage research into the disease hidradenitis suppurativa (HS). T See https://t.co/aO1pKX9vBC for more info.

[Hope for HS @hopeforhs]

Mark your calendar for these upcoming Hope for HS #HidradenitisSuppurativa patient and caregiver support meetings!
November
13 - Chapel Hill, NC
18 - Richmond, VA
20 - Hershey, PA & Minneapolis, MN
December
10 - Detroit, MI
12 - Winston Salem, NC
https://t.co/GbCR7HxR7N for info

[Ola Ojewumi @Olas_Truth]

Thank you to all of the people that shared this video. It’s been 3 DAYS and Uber still has yet to respond!

Even with 3,600 views they still don’t care how their drivers treat passengers that are wheelchair users. 🤬