Interstitial Cystitis Network

A health education company dedicated to IC and pelvic pain patients! Get the latest news, research, self-help tips in our live IC support group meetings!

[Interstitial Cystitis Network @icnetwork]

IC Awareness Month Daily Fact #1 - Interstitial cystitis is a pelvic pain condition that affects millions around the world.
https://t.co/kQOfHwiaAu

[Interstitial Cystitis Network @icnetwork]

Our two newest flare videos have been released!! How to manage IC/BPS bladder walls and pelvic floor flares. Here's the latest! https://t.co/npzLDKoZyz

[Interstitial Cystitis Network @icnetwork]

Menopause is not a disease. GSM is real and treatable!

[Interstitial Cystitis Network @icnetwork]

@WaterWineTravel I would definitely make yourself a small sanctuary where you can rest, recover and stay in touch with the land.

[Interstitial Cystitis Network @icnetwork]

@Dr_Elise_De @icnjill Thank you for responding! I hope all is well with you and your family. Such challenging times we are living in.

[Interstitial Cystitis Network @icnetwork]

@purplemamabear @klclark525 @RepKatiePorter She's absolutely brilliant!

[Interstitial Cystitis Network @icnetwork]

September is IC Awareness Month! Do you struggle with bladder pain? Feel like you have a UTI though the cultures are negative? Have you been told that it is all in your help? You are not alone! IC is real and treatable! https://t.co/NlrawTN7Wq

[Interstitial Cystitis Network @icnetwork]

@LukeyWalsh @KatzPheilynes Absolutely heartbreaking...

[Interstitial Cystitis Network @icnetwork]

@DrJenGunter I can join you as either Candida Glabrata.. or, better yet, Princess Pee A lot!

[Interstitial Cystitis Network @icnetwork]

The IC Network Store is now closed due to a mandatory evacuation effective a few minutes ago. You can see from the picture below that the fire is quite close though, we think, going in the other direction. No-one will be sleeping tonight. There are many fires due to lightning.

[Interstitial Cystitis Network @icnetwork]

New on the Blog: IC’s Related Conditions: Fibromyalgia

IC’s Related Conditions” series takes a look at conditions that can go hand-in-hand with IC.

https://t.co/kD8H0JaTLR

[Interstitial Cystitis Network @icnetwork]

Yes We Can! #bidenharris2020 will fight for the rights of everyone struggling with disability and health care. We stand behind this team who will protect the rights of anyone with pre-existing conditions, including interstitial cystitis.

[Interstitial Cystitis Network @icnetwork]

@douglasemhoff @DrBiden Seriously, this made me tear up! Sooo happy to have a committed, rational team who understand how our government is supposed to be by the people and for the people! So so happy for you both! Onward. We will do this together!

[Interstitial Cystitis Network @icnetwork]

Would you like to attend a ZOOM meeting with some of the lawyers representing IC patients against the manufacturers of Elmiron? https://t.co/mB20q5rxMp

[Interstitial Cystitis Network @icnetwork]

@icnjill @augs released an advisory today about Elmiron & eye disease. "Practitioners should prescribe the medication at the lowest necessary dose & the shortest duration trying to keep the overall dose at <500 grams or 5 years to therapy. https://t.co/C0NNHytyeG

[Interstitial Cystitis Network @icnetwork]

@IvyGray84575698 Nnot every IC patient is the same. We use the Payne subtyping system (5 variants) and for patients with pelvic floor driven symptoms, cure IS possible and happening for many. But it begins with understanding the underlying cause of bladder symptoms. https://t.co/z76DCP0d3M

[Kenneth M Peters MD @KennethMPeters1]

Constant urination ruled her life and now she has finally found relief https://t.co/n5Y23UmQ0N. @BeaumontHealth

[Interstitial Cystitis Network @icnetwork]

Did you take #Elmiron? Have you experienced vision changes? We're having a special ZOOM meeting next Thursday (8/13 at 4PM EST, 2PM MST, 1PM PST) with attorneys representing IC patients in current lawsuits. Learn more about the event and register here! https://t.co/I23qwOMge0

[Jill Heidi Osborne ☮️ icnetwork.org @icnjill]

We had a fantastic support group stream yesterday on YouTube and Facebook - 5 hours. Thank you to everyone who asked questions. Together we are stronger. Every single one of your stories matter. All the gift Aloe Paths went out today!!

[Jill Heidi Osborne ☮️ icnetwork.org @icnjill]

New IC Study & Survey Needs Your Participation. Would you please help Dr. Tony Buffington and colleagues at UC Davis understand what your life with IC has been like? https://t.co/bFUvuU4Z78