ICUsteps

ICUsteps is run by ex-patients, relatives and intensive care staff to support patients and families through the long road to recovery from critical illness.

[ICUsteps @ICUsteps]

#MyRehabGoals for #ICURehabDay25 Recovery from critical illness can take up to 18 months. People need support and rehabilitation to enable them to thrive after critical illness, not just survive.

Goal setting is crucial in rehabilitation.
https://t.co/lJ5ZSQFKP4

[ICUsteps @ICUsteps]

New ICU support pathway for family and friends - https://t.co/PTEW1qbLGS

[ICUsteps @ICUsteps]

Family involvement in ICU care activities - https://t.co/zmEaXKIdc2

[ICUsteps @ICUsteps]

Help Shape the Future of Intensive Care Research - https://t.co/DnUtmwjvDf

[ICUsteps @ICUsteps]

Can you help with this research on patient's experiences of physiotherapy after ICU discharge? Please contact the researcher directly-their details are on the attached poster. Thank you!

[ICUsteps @ICUsteps]

Using routine data to improve quality of care - https://t.co/ebOTDSLokT

[Hopkins ICU Rehab @icurehab]

Effects of The Caregiver Pathway intervention on symptoms of post-intensive care syndrome among family caregivers to critically ill patients: long-term results from a randomized controlled trial https://t.co/qgq9ut5AVh #icurehab #A2Fbundle

[Headway UK - the brain injury association @HeadwayUK]

Planning a summer holiday this year?

More and more holiday providers are recognising the needs and preferences of disabled travellers - but a little forward planning can still make all the difference.

Have you travelled after a brain injury? We’d love to hear what worked for you (or what you wish you’d known). Share your experiences in the comments.

[Ian Kremer @LEAD_Coalition]

How to cut your risk of dementia, from head to toe https://t.co/mYX7oHRyvC

#Alzheimers #dementia #health #wellness

[Critical Care Support Network @cc_sn1]

Our Family & Friends Drop-in is today @ 8pm
We're here to help you whenever you feel you need it most We're a friendly group who'll listen without judgement & share the benefit of our experiences with you - we sometimes even laugh too
Email [email protected] for more details

[Alasdair MacLullich @A_MacLullich]

Useful facts on Alzheimer's Disease. Note especially the huge contribution that carers make.

[Nursing in Critical Care Journal @niccjournal]

🧸 What does child-centred care look like after PICU discharge?

When children leave PICU, care does not end at discharge. Parents’ experiences reveal what partnership truly means.

🔗 https://t.co/ZR2rQhwv7X

#ChildCentredCare #PaediatricICU

[Headway Birmingham @HeadwayBS]

We are looking into provision of #braininjury services in #Coventry and #Warwick and would be grateful if you would share this post to help us gather information/opinions.
@leamobs @covobservernews @live_coventry

[Hopkins ICU Rehab @icurehab]

Melatonin and delirium in the intensive care units: a systematic review and meta-analysis of randomized controlled trials https://t.co/PydeNssNP8 #icurehab #A2Fbundle

[National Institute for Health and Care Research @NIHRresearch]

💬 "We need more neurodivergent people taking part. That's not just as participants, but also involved in designing, developing and delivering the research."

Social media influencer @neuro_lou is a co-investigator on the NIHR-funded ORIGIN programme. The programme is designing an online arts and culture platform to support mental health in underrepresented 16- to 24-year-olds, including neurodivergent young people.

Now she is encouraging more neurodivergent people to get involved in research - as both participants and by helping to design, develop and deliver studies.

Read a Q&A with Lou about her experiences at https://t.co/X8YGarhWkH

[Carers Trust @CarersTrust]

As the government looks to crack down on phone use in schools, this may be worrying for students who rely on their phone to check that the person they care for is ok.

This video, made by a young carer, explains why having access to a phone to contact home if needed can be so important.

[ColostomyUK @ColostomyUK]

If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Golf #Running and #Hiking and they can all be viewed via our A to Z page: https://t.co/DATKYFLAQO

[Alasdair MacLullich @A_MacLullich]

We all should be using tools to detect #delirium.

But not all tools perform well in practice - some show much lower rates of detection in the real-world than in practice.

-- check tool performance -- it's not enough to implement & achieve good completion rates.