JoeBerettaFoundation

Meeting practical needs of Advanced Heart Failure patients and their families

[JoeBerettaFoundation @ihearttjbf]

@HFSA Q6/A1. @MyLVAD is a great resource for HF education. Organizations like ourselves, @HeartBrothers1 or @WomenHeartOrg are serving communities and if not able to help a patient themselves always try to point patients towards other resources. #HFchat2021

[HFSA @HFSA]

Q5: How can care providers advocate for and improve heart failure patient care and outcomes? #HFChat2021 #HFWeek2021

[JoeBerettaFoundation @ihearttjbf]

@HFSA Q5/A2. Also, clinicians need to understand the fear associated with heart failure treatments and work with patients and caregivers to overcome that fear or stigma to achieve the best medical outcomes. #HFchat2021

[JoeBerettaFoundation @ihearttjbf]

@HFSA Q5/A1. Making sure the patient is on guideline directed medical therapy for HF that is evidence based and referring patients to advanced HF specialists early, rather than late. Also, familiarizing yourself with Human service options available in treatment cities. #HFchat2021

[JoeBerettaFoundation @ihearttjbf]

@HFSA Q4/A1. Swelling in legs or belly, shortness of breath, abnormal fatigue and nausea, weight gain, a dry cough, trouble lying flat. Caregivers, you know your loved one better than anyone. If they aren't able to see what's happening be their voice! #HFChat2021

[HFSA @HFSA]

Q3: What home monitoring devices and new technologies are available to patients and how do they help care teams monitor patients’ health? #HFChat2021 #HFWeek2021

[JoeBerettaFoundation @ihearttjbf]

@accpcardprn @HFSA Would love to collab on making sure none of the patients we serve are forgoing medication. We'll be reaching out! #HFChat2021

[HFSA @HFSA]

Q2: How can patients with heart failure avoid getting admitted to the hospital? #HFChat2021 #HFWeek2021

[JoeBerettaFoundation @ihearttjbf]

@HFSA Q3/A3. Patients at VUMC have had success with CardioMEMS especially with early heart failure stages. Blue Tooth scales that do auto reporting are a huge help not only to care providers, but patients and caregivers as well. #HFChat2021

[Natany Ferreira Oberfrank, PhD, RN @NatanyCFerreira]

@ihearttjbf @HFSA 👏🏻👏🏻👏🏻 Besides to talk to your physician, keep a open communication with your nurse, who can teach you how to identify and better manage your symptoms #HFChat2021

[JoeBerettaFoundation @ihearttjbf]

@NatanyCFerreira @HFSA Couldn't agree more! Your nurses or VAD coordinators are so so so important to maintaining success when out of the hospitals. #HFChat2021

[HFSA @HFSA]

Q1: Is it safe for patients with heart failure to receive a COVID-19 vaccine when available? #HFChat2021 #HFWeek2021

[JoeBerettaFoundation @ihearttjbf]

Today we're hanging out with @HFSA for #hfchat2021! Keep up with this great convo on HF with our retweets over the next hour!

[HFSA @HFSA]

Roll call! 👋 At this time, we kindly ask our #HFChat2021 participants to introduce themselves. #HFWeek2021

[JoeBerettaFoundation @ihearttjbf]

@HFSA Q1/A1 Yes! Heart Failure would not preclude you from getting the COVID-19 Vaccine. Talk with your Doctor and caregiver about any other conditions you may have other than heart failure, that may rule you out. As always make sure you and your CG follow all CDC guidance #HFChat2021

[JoeBerettaFoundation @ihearttjbf]

@HFSA Thanks so much for having us! We are The Joe Beretta Foundation a non profit meeting the practical needs of heart failure patients and families. We try to take care of non medical expenses for patients at hospitals located in the Nashville and Pittsburgh areas. #HFChat2021

[JoeBerettaFoundation @ihearttjbf]

Excited to partner with @HFSA and participate in this important discussion about heart failure care. Join us in just a few minutes! #hfchat2021

[HFSA @HFSA]

Thank you our #HFWeek2021 partners for helping to bring awareness to the signs, symptoms, risk factors, and treatment of #heart failure! Catch many of them this Wednesday at noon ET as we host #HFChat2021 - a lively discussion around HF care. https://t.co/ImwrN84i41

[JoeBerettaFoundation @ihearttjbf]

Advanced heart failure patients and families receiving the support of The 25 Club are in medical crisis. Those unable to afford local lodging become ineligible for treatments that could save their life.  To learn more or join The 25 Club, visit: https://t.co/bqSAu0iWNR

[JoeBerettaFoundation @ihearttjbf]

Thank you to all our donors and volunteers who continue to help us meet the practical needs of advanced heart failure patients and their families. Please continue to share our mission with your family and friends! https://t.co/Xz87bnH5gR

[JoeBerettaFoundation @ihearttjbf]

With all the rain currently in Nashville, having a safe, warm place for a family in need to lay their heads at night without being forced to pay expensive hotel costs makes a HUGE immediate impact on their lives. For only $25 a month, you can provide this! https://t.co/bqSAu0iWNR