Ileostomy & Beyond!

[Ileostomy & Beyond! @ileostomybeyond]

Steroids and caffeine #wired 😜

[Ileostomy & Beyond! @ileostomybeyond]

@poo_taboo Interesting scientifically. But very frustrating for us.

[Ileostomy & Beyond! @ileostomybeyond]

@poo_taboo Was never aware it could be a broader immune system issue. I was always led to believe it was localised & once bowel gone, no more probs.

[Ileostomy & Beyond! @ileostomybeyond]

@nurseylaura Kinda makes sense, but something never forewarned about.

[Ileostomy & Beyond! @ileostomybeyond]

@nurseylaura Hmm... thanks for sharing. Current thinking is that I have pneumonitis and an autoimmune joint condition - can't remember name tho.

[Ileostomy & Beyond! @ileostomybeyond]

@sarizabeth @Empoweringpts9 @VeganOstomy Happened in Spain too. Just gotta try your best and explain 😄

[Ileostomy & Beyond! @ileostomybeyond]

@nurseylaura Thx for replying. If you don't mind me asking, what have you experienced?

[Ileostomy & Beyond! @ileostomybeyond]

Not major, but enough to be problematic. Anyone similar? Seems even tho bowel removed, immune system is misbehaving in other parts of body.

[Ileostomy & Beyond! @ileostomybeyond]

Reason, since op in 2015 I have seen a rheumatologist & now a respiratory registrar who think I have possible inflammation of joints/lungs.

[Ileostomy & Beyond! @ileostomybeyond]

Not posted for a while. But have an ask. Has anyone had any other autoimmune symptoms appear since an ileostomy or while they have UC?

[Ileostomy & Beyond! @ileostomybeyond]

@andreakrobson I was up for it. Not much embarrasses me nowadays 😄

[Ileostomy & Beyond! @ileostomybeyond]

@sarizabeth @Empoweringpts9 @VeganOstomy Found what? 😀

[Ileostomy & Beyond! @ileostomybeyond]

@sarizabeth must admit I was a little taken back by the ask! Learning: make sure your medical certificate has the local language! 🤣

[Ileostomy & Beyond! @ileostomybeyond]

Going through Thai airport security I was asked to remove my bag. In public. By the scanner. Her colleague quickly explained not good idea 😂

[Ileostomy & Beyond! @ileostomybeyond]

Always knew we'd meet again.

[Ileostomy & Beyond! @ileostomybeyond]

Spooky.

[Ileostomy & Beyond! @ileostomybeyond]

@Cupofjava74 thank you!

[Ileostomy & Beyond! @ileostomybeyond]

One. Year. Today!

[Ileostomy & Beyond! @ileostomybeyond]

@HarleyQew I'm surrounded...

[Ileostomy & Beyond! @ileostomybeyond]

A question if I may. Enteropathic Arthritis. Anyone diagnosed with this? If so, what symptoms do you have? Thx in advance