ImmUnity Canada

We empower Canadians with primary immunodeficiencies to live well.

Support, Advocacy, Education

*Fmr. Canadian Immunodeficiencies Patient Organization (CIPO)

[ImmUnity Canada @ImmUnityCanada]

This year, the CDA Newborn Screening Advisory Panel, which includes ImmUnity Canada ED Whitney Goulstone, released recommendations for the future of this life-saving diagnostic tool in Canada.
Read: https://t.co/Slxts9UrEL
Watch: https://t.co/igwk3Mpn2O

[ImmUnity Canada @ImmUnityCanada]

We're bringing together the world's experts on immunology for presentation & discussion on topics like gene therapy, the gut microbiome, AI in medicine, & more! (in-person & virtual tickets available)

Learn more and get your tickets: https://t.co/OvISh3xkBy

[ImmUnity Canada @ImmUnityCanada]

Meet Zeynep, a young PI patient & younger brother Efe, as they share how diagnosis & treatment has allowed Zeynep to continue doing the things she loves!

Transcript: https://t.co/bKHnfneVWE

Read Power Power Superpower, written by Zeynep's mom, Funda: https://t.co/4lL22wE3yb

[ImmUnity Canada @ImmUnityCanada]

Throughout World PI Week, we'll be highlighting patient stories from across Canada.

Today, we're hearing from Wendy about her journey to diagnosis, and her life with PI.

You can read her story on our website: https://t.co/Lx4ko8wDoW

#WPIW #WorldPIWeek #immunodeficiency

[ImmUnity Canada @ImmUnityCanada]

A transcript is available here: https://t.co/Erqk6q4gHT
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#wpiw #WorldPIWeek #WorldPrimaryImmunodeficiencyWeek #primaryimmunodeficiency #primaryimmunedeficiency #ThinkZebras #ThinkRare #RareDisorder #SeeTheUnseen

[ImmUnity Canada @ImmUnityCanada]

Meet Josiah! Recently diagnosed with polysaccharide antibody deficiency, he's helping his community in Hamilton, Ontario See the Unseen through awareness and fundraising for PI and plasma donation.

#wpiw #WorldPIWeek #ThinkZebras #SeeTheUnseen

[ImmUnity Canada @ImmUnityCanada]

Happy @WorldPIWeek !

Throughout the week, we'll be highlighting a number of patient stories from across Canada. Up first is Maureen!

You can read her story on our website: https://t.co/pOaxv8qose

or watch her share at our BC Education Day: https://t.co/6EU8WwMCcV

[City of Brampton @CityBrampton]

Brampton City Council proclaims April 22 to April 29 as World Primary Immunodeficiency Week.

We recognize delegates from @ImmUnityCanada and their efforts in raising awareness, amplifying the voices of those affected and driving meaningful action to improve diagnosis and care.

[ImmUnity Canada @ImmUnityCanada]

Register to attend this free group: https://t.co/MfsZrAYWZY

[ImmUnity Canada @ImmUnityCanada]

Researchers are seeking participants with CGD due to an NFC1 mutation.

For more info, please reach out to your immunologist or contact Dr. Elie Haddad directly: [email protected]

#cgd #ChronicGranulomatousDisease #researchparticipation #studypatricipation #genetherapy

[ImmUnity Canada @ImmUnityCanada]

This group is for immunodeficiency patients & caregivers (19+) to share experiences and gain support from the safety of their own homes.

Register: https://t.co/kbgGjLWI8P

#immunodeficiency #immunedeficiency #primaryimmunodeficiency #ThinkZebras #patientgroup #patientsupport
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[ImmUnity Canada @ImmUnityCanada]

Please consider helping us create a future where all Canadians with immunodeficiency disorders have access to the resources they need to thrive.

Donate Today: https://t.co/uQhvz6tNw4

[ImmUnity Canada @ImmUnityCanada]

We are incredibly saddened by the passing of Jose Drabwell, Past-President & Board Member of IPOPI

Jose was a long-serving member of the PI community, uniting patients & professionals globally through her advocacy

Our thoughts & condolences go out to Jose's family and friends

[ImmUnity Canada @ImmUnityCanada]

Register below (free, 19+).

Atlantic: https://t.co/H3LZJA5V5p

Prairies: https://t.co/a4JDCiqgEz

Ontario: https://t.co/25J3q9KNoD

#immunodeficiency #immunedeficiency #primaryimmunodeficiency #ThinkZebras #patientgroup #patientsupport

[ImmUnity Canada @ImmUnityCanada]

What does that mean for you?
Donations made between Jan 1st & Feb 28th, 2025 can be eligible for tax support for either 2024 or 2025.

Want to take advantage of the extension while supporting Canadians living with immunodeficiency? Donate today: https://t.co/uQhvz6tNw4

[ImmUnity Canada @ImmUnityCanada]

Researchers at the University of Toronto want to hear from you!

Interviews will explore experiences of caregiving, challenges with caring for a patient with a rare disease, & perspectives on treatment options & access.

Interested? Send an email to [email protected]

[ImmUnity Canada @ImmUnityCanada]

We're back with the first CommUnity Connect groups of 2025!

19+, registration required. Groups are free & you can pop in & out as you wish.

BC: https://t.co/EilsxG39RN

Families: https://t.co/rJyWXHLP8a

#immunodeficiency #ThinkZebras #patientgroup #patientsupport

[ImmUnity Canada @ImmUnityCanada]

Don't miss out on your gift in 2024!
There is still time to give and get your tax receipt for 2024.

Make a difference in the lives of patients and families affected by primary immunodeficiency and associated disorders in Canada: https://t.co/uQhvz6tNw4

[ImmUnity Canada @ImmUnityCanada]

We wish everyone a safe, healthy, and happy holiday and a prosperous New Year!

Please note that our offices will be closed December 23rd, 2024 - January 6th, 2025.

We look forward to connecting with you again in January!