CURE INAD UK

Infantile Neuro Axonal Dystrophy is a rare inherited disorder. Children have a life expectancy of 5-10 years. Please help us to fund research to find a cure

[CURE INAD UK @inad_uk]

Thank you to all our UK supporters that donated BetterPoints to Cure INAD UK We received our first £30 payment Everything helps towards the INAD gene therapy at UCL/Great Ormond Street Hospital You can download @BetterPoints app from Google play or apple store it free to use

[CURE INAD UK @inad_uk]

We’ve signed up to @BetterPoints a free app that rewards everyday activity like walking cycling or using public transport You can donate points you earn to @inad_uk to support our work just by moving more. Avail across West Yorkshire & other parts of UK https://t.co/1PEJLsFDai

[CURE INAD UK @inad_uk]

https://t.co/OAWpeZ6tjZ

[CURE INAD UK @inad_uk]

https://t.co/VQg7bTKWjD Please read important update on our website

[CURE INAD UK @inad_uk]

https://t.co/llYF7V9T7I

[CURE INAD UK @inad_uk]

They did it, 27 miles yesterday and they raised over £500 for @inad_uk #inspirationalpeople #superheros #cycling Thank you so much. How awesome are these children. INAD cousin and his supportive friends #kindness https://t.co/VaFbXBQI9A

[CURE INAD UK @inad_uk]

They have set off, the three 12 years olds on their 27 mile bike ride for @inad_uk Good luck boys https://t.co/VaFbXBRfZ8 #superheros #TogetherWeWillBeatINAD 🚴‍♂️🚴‍♂️🚴‍♂️🏆🏆🏆

[CURE INAD UK @inad_uk]

And they're off to the start line of their 27 mile bike ride for Cure INAD UK Good luck boys https://t.co/VaFbXBRfZ8 #togetherwewillbeatinad

[CURE INAD UK @inad_uk]

https://t.co/VaFbXBRfZ8 Three 12 year olds are cycling 27miles to raise funds for Cure INAD UK this weekend. Please help them with their fundraising. This includes one of Zoe's cousins. Thank you to these kind & brave children for helping to find a cure ♥️ #TogetherWeWillBeatINAD

[CURE INAD UK @inad_uk]

https://t.co/B1x7KLmZOh Please read Arzoo's story "INAD changed our lives completely & it is the hardest thing as parents we have had to face We thought of them growing up to be kids who enjoyed football ballet....or even bickering siblings but we never got to see those days"

[CURE INAD UK @inad_uk]

Today is international Rare Disease Day. We look forward to a future when all rare diseases can be treated. INAD is extremely rare and also extremely life shortening. Children have a life expectancy of aged 5-10 years @rarediseaseday @rarediseaseuk @lifearc1 @UCLBrainScience

[CURE INAD UK @inad_uk]

Thank you #Leeds City Council for recognising our fundraising work to find a cure for #INAD an extremely rare genetic degenerative condition that gives children a life expectancy of just 5-10 years Thanks to all our wonderful fundraisers #togetherwecanbeatinad @LeedsCC_News

[CURE INAD UK @inad_uk]

Celebrating 3 years since we launched Cure INAD UK on the steps of #Leeds Civic Hall @millsqleeds . Thank you to everyone that has helped us on our way so far, we really appreciate your support #togetherwecanbeatinad

[CURE INAD UK @inad_uk]

The inflatable fundraiser raised £2069 for Cure INAD UK Congrats to all the team a wonderful achievement Thanks to all that sponsored & thanks to @caskorders for the donated cask of beer & @RodleyCricket for selling it & donating £100 to the fundraiser #togetherwecanbeatinad

[CURE INAD UK @inad_uk]

A huge thank you to team Cure INAD UK in #Leeds today This awesome team of Zoe's friends & family took on the giant inflatables course with running & have raised a huge amount which will go towards finding a Cure for INAD #TogetherWeWillBeatINAD https://t.co/Ps4Yjne5Rq

[Carers Week @carersweek]

62% of those who care, or previously provided care, said they had ‘no choice’ in taking on the role because no other options were available.

Today we launch our 'No choice but to care' report, covering the impact of caring on unpaid carers. https://t.co/24Ns6diUwq

[CURE INAD UK @inad_uk]

https://t.co/98QEqF7Q3S Thank you @WLDispatch #togetherwecanbeatinad

[CURE INAD UK @inad_uk]

Get yourselves down to @RodleyCricket #Leeds #rodley & have a drink for @inad_uk This cask was very kindly donated by Cask Orders Ltd with proceeds going to the charity to sponsor our run Thank you so much everyone involved #TogetherWeWillBeatINAD https://t.co/Ps4YjneDGY

[CURE INAD UK @inad_uk]

@UCLBrainScience have you seen this gene therapy grant? https://t.co/9k4caxKGjR Are you able to apply to progress gene therapy for #INAD please? 🙏 @ProfSimonWad @ProfAhadRahim deadline 17/5 Thank you #hope #togetherwecanbeatinad

[CURE INAD UK @inad_uk]

https://t.co/Ps4Yjne5Rq Here we go, Zoe's friends and family are taking on the giant inflatables at Harewood House #Leeds on 29th June Please wish the team well and sponsor them if you can, they are raising money for Cure INAD UK Thank you for your support #togetherwecanbeatinad