Amy and Friends

We support children/young people who suffer from Cockayne Syndrome - a DNA repair disorder - currently there is no cure and life expectancy is 12 years...

[Amy and Friends @infoAMYnFRIENDS]

@SimonCowell Do you remember Amy? She's very sick now, her speech has deteriorated but she still talks about you!

[Amy and Friends @infoAMYnFRIENDS]

Tickets still available - please contact Rich on 07580 041136/Michelle 07966 214893

[Amy and Friends @infoAMYnFRIENDS]

We are up for a @AskLloydsBank Community Fund award. Retweet this message to vote for us to receive up to £3,000 #CommFund

[Amy and Friends @infoAMYnFRIENDS]

Such a wonderful afternoon spent with the inspirational @PhilPacker - check out BRIT trust, such a brilliant organisation for Y/People.

[Amy and Friends @infoAMYnFRIENDS]

@SamBaileyREAL thank you for your lovely message to us all at Amy and Friends, you have made some very special children very happy! Xxx

[Amy and Friends @infoAMYnFRIENDS]

@SarahTheDuchess @yorkiebea - Amy showed me this pic & wanted me to send you all her love & a very BIG kiss! Xxx

[Amy and Friends @AmyandFriends]

Look who's 9 and celebrating right now - in Australia - Daniel.....happy birthday dude - have a fantastic... http://t.co/7eQoWcx8Ki

[Amy and Friends @infoAMYnFRIENDS]

What are your opinions on voluntary euthanasia? Corrie is causing a controversy with Hayley's storyline!

[Amy and Friends @infoAMYnFRIENDS]

@MicahRichards take a look at Amy's story & how we set up http://t.co/ys5ZcMpDfY helping kids with premature ageing,neuro & mobility delays.

[Amy and Friends @infoAMYnFRIENDS]

Excited for our 2 day Science Conference in Newcastle, focusing on Cockayne Syndrome research, outcomes and exciting new findings!!!

[Amy and Friends @infoAMYnFRIENDS]

@LaurenMalone21 Thank you - very exciting! Hope you're well! 😊

[Amy and Friends @infoAMYnFRIENDS]

We are proud to announce Amy and Friends Australia has now launched - we are sooooooooo excited by this!!!! Happy Tuesday all 😃

[Amy and Friends @infoAMYnFRIENDS]

@itvthismorning how about you #takeamoment to mention @AmyandFriends charity, helping kids with a premature ageing illness in Liverpool! 👍

[Amy and Friends @AmyandFriends]

Our smiles of the day are our beautiful couple Nick and Amy!

Amy was patiently waiting at the arrival gates at... http://t.co/p5OaSzCT9x

[Amy and Friends @AmyandFriends]

New families - please make sure your child's notes with your GP say not to take Flagyl - this drug gives our kids major liver problems. X

[Amy and Friends @infoAMYnFRIENDS]

We are hosting the biggest conference in the CS world next week... No pressure 😁

[Amy and Friends @AmyandFriends]

Thinking of sweet Makayla today - 5 years since you got your shiny wings. Kisses to you and your lovely family... http://t.co/MlK1rVJaNI

[Amy and Friends @infoAMYnFRIENDS]

“@pauljaywood: @AbbyAAF emailed you back again xx” just read it, looks great! I'm out at the min but will call you tomorrow. Love to Kalel x

[Amy and Friends @infoAMYnFRIENDS]

@pauljaywood thank you! I have replied :) x

[Amy and Friends @infoAMYnFRIENDS]

Not long to go till our Family/Medical Conference focussing on the rarity of Cockayne Syndrome, surrounded by the love of our CS Family 💜😍🌟