Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Chaired by Prof @ingridscheffer the Life as a Clinician-Scientist symposium will be back in Melbourne:
📅 Sat 9 August 2025
📍 Ian Potter Auditorium, Parkville, VIC
Use discount code EARLYBIRD and get 50% off your ticket! (Offer ends 20 June) Register here https://t.co/8fE9S1rGnQ
We’re delighted to announce Prof Mark Dawson as our keynote speaker at the Life as a Clinician-Scientist VIC symposium in Melbourne. Also, don’t miss your chance for a personal 10-minute mentoring session with Prof Dawson and other speakers at lunchtime! https://t.co/8fE9S1r8yi
A new JAMA study raises questions about what full FDA approval really means for nononcology drugs. More than 50% of these drugs, which transitioned from accelerated to regular approval, did so using surrogate endpoints—not direct measures benefits.
https://t.co/WITQcvecj3
Despite rare genetic neurodevelopmental disorders such as genetic epilepsies / DEEs being well suited to n of 1 trials there have only been a handful performed. N of 1 trials allow assessment of promising treatments in rare monogenetic epilepsies. #GETA2025
Don't miss out on the latest clinical research and cutting edge science in #GeneticEpilepsy and #DEEs at our upcoming conference #GETA2025, May 3rd 9:00am (UTC+10). You can join via livestream globally. Register via: https://t.co/48tp2st0El
Understanding the natural history of rare disorders such as developmental epileptic encephalopathies is key to developing treatments, clinical trials, registration and reimbursement. The DEER natural history study is now open for recruitment globally via the QR code. #GETA2025
Finding the underlying cause in genetic epilepsies is important, but only the start of working towards an understanding and treatment. @ingridscheffer#GETA2025
Delighted to share that @BloodCancerTalk has surpassed 100,000 downloads - thanks to our guests for sharing their wisdom & our listeners for joining us.
Find us at https://t.co/lz8o7jn63j or wherever you get your podcasts.
@rajshekharucms@AshKishtagari#lymphoma#haematology
@TracyDixonSalaz I am so sad to read this Tracy - one’s worst fears come true. Savannah, together with you and Ruben, have been such a force for good in the DEE-LGS world - bringing such light and happiness to so many! Sending you so much love
1st Symposium of the Pediatric Commission of the @IlaeWeb Online and In-Person March 21-24, 2025
https://t.co/v6CNXi8oXb
@ExcitedBrains Elaine Wirrell Helen Cross Rima Nabbout @ingridscheffer
@Prof_IanD Having seen what a stellar clinician you are Ian, I don’t agree with your interpretation. I proactively make this comment to say ‘ it is not clearcut (or I would have said what is the best option), but weighing up YOUR situation, I would make this choice for me/my loved one’
#Bellberry won National Championing Health awards - so thrilled and so well deserved!! Such an honour to be part of the team behind this profit-for-purpose Ethics company supporting 40% of trials in Australia
Thank you to the Epilepsy Society of Australia @EpilepsySocAus for the huge honour of the Peter Bladin award. Peter was an Epilepsy legend and I was fortunate that he was also a mentor. Warmest thanks to our President @1stephenmalone, Sam, Piero and @brialie for all your support.