IPaCOR

The Italian Patient Centered Outcome Research is a working group of the Italian Cystic Fibrosis Society
#CF
#cysticfibrosis
#empowerment
#evidence
#EBM

[IPaCOR @IPaCOR_CF]

@FlorianeLacour @A_GregLemarchal @vaincrelamuco Qualitative research at the #EYIM2019: wonderful surprise!

[DE CARLI Paola @paodecarli]

#EYIM2019 @aarashsaleh presents his work on development of assays for #lentiviral #GeneTherapy in #cysticfibrosis @CFGT_Edinburgh @imperialcollege @cftrust @wellcometrust

[The BMJ @bmj_latest]

"Older people who are in need of care and their families roll from crisis to crisis until they knit together some ad-hoc solution." Michael Gill looks at how Australia's care system is in crisis #AgedCareRC https://t.co/6bxYuBpNzN @dragonclaw2017

[Luigi Graziano @LuigiGraziano10]

Very interesting presentation on "lnnovative & creative methods to provide CF patients& family education." at #NACFC2018

[IPaCOR @IPaCOR_CF]

@oli_rayner Things can CHANGE! Great!!

[Oli Rayner @oli_rayner]

My passport expired in 2015. I was on the transplant list and didn’t bother to renew it. I planned my funeral with my family. A year after the gift of new lungs, I feel great, I have a new passport, I can travel & swim in the sea. Things can change ✌️ #NewProfilePic #Mallorca

[ARIRassociation @ARIRassociation]

Congresso Arir 2019!! 😎 Soon the final programme!💪

[Rai per la Sostenibilità - ESG @raisostenibile]

#RaccoltaFondi e #Sensibilizzazione #a18annipuoi promossa da LIFC ( Lega Italiana Fibrosi Cistica - @fibrosicistica ) sulla #DonazioneOrgani e per migliorare l’assistenza e la qualità di vita dei pazienti con #fibrosicistica e delle loro famiglie. #smssolidale 45587.

[DE CARLI Paola @paodecarli]

#cysticfibrosis #OrkambiNow great news for Ireland ! Waiting for the same news ASAP in all concerned countries @vaincrelamuco https://t.co/C7yW9rdzr3

[Journal of CF @JournalofCF]

Thanks to @vaincrelamuco, French translations of #CFResearchNews articles can now be found here https://t.co/bDma2A9kEU #cysticfibrosis #francais https://t.co/wPxBBIH4zr

[DE CARLI Paola @paodecarli]

#EYIM2018 #cysticfibrosis last posters session: #clinicalresearch issues and #immunology

[ARIRassociation @ARIRassociation]

By one of our students of Ist level Master in pulmonary rehab @LaStatale: Clinical Criteria for Tracheostomy Decannulation in Subjects with Acquired Brain Injury https://t.co/DzGBdbYQJr #respiratoryphysiotherapy

[The BMJ @bmj_latest]

Idalopirdine: another disappointment for people with #dementia. Participants affected by dementia deserve greater involvement and recognition in future trials #BMJeditorial https://t.co/1da0a4nHWd

[DE CARLI Paola @paodecarli]

Violaine Dubois, labo @jl_herrmann, présente à l'EYIM2018 son travail sur la virulence de Mycobacterium abscessus cofinancé par @vaincrelamuco et @A_GregLemarchal

[DE CARLI Paola @paodecarli]

Après le #CFJC2018, Alexandra Pommier présente ses travaux à ses collègues européens #EYIM2018 @Inserm https://t.co/NAa7pyo45R https://t.co/NAa7pyo45R

[DE CARLI Paola @paodecarli]

#EYIM2018 2nd session of the day dedicated to #microbiology introduced by a lecture by @Genevieve_Hery and co-chaired by @jl_herrmann #duo #microbiome #microbiota #cysticfibrosis

[Geneviève HéryArnaud @Genevieve_Hery]

#EYIM2018 Alice Rossi, italian PhD student, on acute and chronic murine Pseudomonas infection models to assess antibacterials

[Geneviève HéryArnaud @Genevieve_Hery]

#EYIM2018 Ranjani Somayaji, MD from University of Calgary 🇨🇦, on the sinus #microbiome and its association with clinical status in transplant patients with #cysticfibrosis

[Geneviève HéryArnaud @Genevieve_Hery]

#EYIM2018 State of the Art in cell biology of #CysticFibrosis by Bertrand Kleizen. The cell as a big candy!

[DE CARLI Paola @paodecarli]

#EYIM2018 @elbahnsi presents the collaborative work supported by @vaincrelamuco on #CFTR molecular modeling and dynamics: understanding the impact of mutations A step foward new specific compounds @Inserm @CNRS