Nigel Roberts

Business owner: Decorators and Property Renovations. Father of twin boys with Cystic Fibrosis. Helping the @cftrust to raise funds and awareness.

[Nigel Roberts @nrobertsltd]

@LeShuttle_Help @francisjpo Leanne - what is happening now at Calais… stuck in car park queue with no info

[Nigel Roberts @nrobertsltd]

@LeShuttle_Help what is actually happening this morning? No information as to why we are queuing prior to check in?

[Cystic Fibrosis Trust @cftrust]

We are pleased to share the 2023 Registry Report, as well as the latest findings from our patient experience survey in adult CF care.

Click the link to read our article, where you can also read these new findings in full.

➡️ https://t.co/xx3qpkJdSS

[Cystic Fibrosis Trust @cftrust]

Our Director of Medical Affairs, Dr Keith Brownlee, shares his advice for those struggling to access creon as supply issues continue. (1/4)

[Nigel Roberts @nrobertsltd]

@cftrust Fantastic news for the whole of the CF community.

[Cystic Fibrosis Trust @cftrust]

Today our Head of Policy and Public Affairs, Ben Kind, has responded to reported PIP changes with the following statement.

[Melton Times @meltontimes]

You are invited to help Melton Vale Sixth Form College plant a new 200-metre hedgerow on their grounds this weekend. Details here:
https://t.co/2bkDU1slD0

@MeltonValeSFC #Melton @TheTreeCouncil

[BBC News (UK) @BBCNews]

Families in NHS funding plea for life-changing cystic fibrosis drug https://t.co/GZhuepsWWf

[Strawfie Challenge @strawfie]

Fund continued access to modulators drugs for Cystic Fibrosis patients

Please sign and share⬇️
https://t.co/nap906y6hg

For future generations to benefit from modulators

#cysticfibrosis #friyay #health #FridayMotivation

[Cystic Fibrosis Trust @cftrust]

The MHRA has today extended the licence of the CF drug Kaftrio, saying it is safe and effective for eligible children over 2 years old. (1/6)

➡️ https://t.co/bJhjc719Oo

[Rachel cole @RacheyCole]

This is heartbreaking guidance issued by NICE. I’ve submitted my comments please make sure you do the same. All people with #cysticfibrosis should have the same access to #lifesavingcfdrugs.

[Ben Oxlade-Parker @BenOxlade1]

Please like, share, retweet and make your own!
#SaveUs #CysticFibrosis #VertexSaveUs #LivesBeforeProfit #Kaftrio @cftrust @CF_Foundation @VertexPharma @VertexSaveUs @strawfie @BBCLookNorth @BBCNews @itvnews @Channel4News @NICEComms @NHSuk @BBCNewsround @guardiannews @thetimes

[Prof. Dame Sally Davies @UKAMREnvoy]

To tackle antimicrobial resistance, we must focus on infection prevention so that antibiotics are not needed in the first place.

Thank you to @WainwrightTim @WaterAidUK @FCDOGovUK for working to ensure that everyone has access to clean water

https://t.co/WJGpGItQ7Z

[Strawfie Challenge @strawfie]

Please @CommonsHealth - review the outdated prescription charges exemption list.

People with #cysticfibrosis should not have to pay for the medications that keep them alive.

@CFAware @RacheyCole @InfamousGreggyG @VarnalsVintage @ciaranmcvarnock @BenOxlade1 @ChrisMRiches

[Strawfie Challenge @strawfie]

Please act now to make prescriptions free for all #cysticfibrosis patients
@commonshealth @SteveBarclay @SteveBrineMP

[Strawfie Challenge @strawfie]

Please @CommonsHealth @SteveBarclay
- review the prescription charges exemption list.

People with #cysticfibrosis should not have to pay for the medications that keep them alive. #health

[Cystic Fibrosis Trust @cftrust]

Following on from the great community effort led by @ZanzibarSmith, today we hear from James, Jade and Lucy about why #freeprescriptions should be available for everyone with #cysticfibrosis. #ReviewTheList (1/2)

[Louisa Davidson @loudavidson1980]

Once Ethan turns 18 he too will have to pay for his prescriptions. He requires 8 different medications daily to keep him alive! #doesntmakesense #inequity

[Nick Smith @ZanzibarSmith]

Petition handed in✅

It's been a challenging week. All worth it to try and make a difference for my little girl.❤️

#CysticFibrosis #trekforcharlie

@cftrust @cf_care @strawfie @RishiSunak @ChrisMRiches

[Strawfie Challenge @strawfie]

Please @CommonsHealth @SteveBarclay
- review the prescription charges exemption list.

People with #cysticfibrosis should not have to pay for the medications that keep them alive. #HealthTips
Pls RT tag the above: @liammchugh1961 @nickluck @JohnsonMNicola @ZanzibarSmith