We are pleased to share the 2023 Registry Report, as well as the latest findings from our patient experience survey in adult CF care.
Click the link to read our article, where you can also read these new findings in full.
➡️ https://t.co/xx3qpkJdSS
You are invited to help Melton Vale Sixth Form College plant a new 200-metre hedgerow on their grounds this weekend. Details here:
https://t.co/2bkDU1slD0
@MeltonValeSFC#Melton@TheTreeCouncil
Fund continued access to modulators drugs for Cystic Fibrosis patients
Please sign and share⬇️
https://t.co/nap906y6hg
For future generations to benefit from modulators
#cysticfibrosis#friyay#health#FridayMotivation
The MHRA has today extended the licence of the CF drug Kaftrio, saying it is safe and effective for eligible children over 2 years old. (1/6)
➡️ https://t.co/bJhjc719Oo
This is heartbreaking guidance issued by NICE. I’ve submitted my comments please make sure you do the same. All people with #cysticfibrosis should have the same access to #lifesavingcfdrugs.
To tackle antimicrobial resistance, we must focus on infection prevention so that antibiotics are not needed in the first place.
Thank you to @WainwrightTim@WaterAidUK@FCDOGovUK for working to ensure that everyone has access to clean water
https://t.co/WJGpGItQ7Z
Once Ethan turns 18 he too will have to pay for his prescriptions. He requires 8 different medications daily to keep him alive! #doesntmakesense#inequity