Vertex Save Us

Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live

[Vertex Save Us @VertexSaveUs]

@chandan6661 @Dev_Fadnavis @PMOIndia @rashtrapatibhvn @VertexPharma We’ve been working with Bangladeshi manufacturer, Beximco Pharma, to deliver a more affordable generic version of CF miracle drug Trikafta. Hopefully patients in India will be able to access this too in the months ahead. 🫁🌎💊

https://t.co/zx0D6EsACW

[Just Treatment 💊 @JustTreatment]

The cost of meds was too high for thousands of #CF patients.

We worked with @VertexSaveUs & @3rdworldnetwork to approach a Bangladeshi company to make a generic version at a fraction of the price - it’s now on the way.

This will change lives.

https://t.co/9A4p3RJqil

[Vertex Save Us @VertexSaveUs]

🚨 BREAKING: Yesterday at #NACFC we announced the first truly affordable #cysticfibrosis modulator is here.

The CF community is reviving the CF Buyers’ Club with Triko:
- A generic version of Trikafta
- Costs just $6,375 per child/yr

🔗 To find out more: https://t.co/KSypi9EoTk

[sandra perez @perezsam]

Una simple pastilla cambiaría la realidad de al menos 8 000000 de mexicanos y sus familias @Claudiashein @SSalud_mx @Tu_IMSS @VertexSaveUs @SSalud_mx

[Vertex Save Us @VertexSaveUs]

💥Historic news today!💥

#Trikafta (ETI) is the first CF treatment to be added to the @WHO ‘Essential Medicines List’.

We’ve worked tirelessly with academics & allies to make this possible. This listing must translate into access for all.

Govt’s & @VertexPharma must step up.

[Strawfie Challenge @strawfie]

So many years of work behind today's decision

#Trikafta is on the @WHO Essential Medicines List!

Well done @VertexSaveUs @JustTreatment & all the advocates/medical professionals worldwide who contributed to this ground breaking achievement

Now @VertexPharma - DROP YOUR PRICES

[Gayle Pledger @gayle_pledger]

Huge news today that Trikafta (ETI) is now on the @WHO ‘Essential Medicines List’. The first ever CF drug to be listed💥

So proud to be part of a group of academics/advocates that worked on the submission 🥰

@VertexPharma & govt’s must act now. Trikafta for all! #EML 👊💊🌎🫁

[Vertex Save Us @VertexSaveUs]

@Le_Lemgruber We completely agree with you Leticia. It was so good to collaborate with you - you were absolutely key to this threat and the success in Brazil ❤️

[Vertex Save Us @VertexSaveUs]

Great to be mentioned in this paper about access to CF modulators in Brazil, following our involvement there in 2022/3.

We know threatening Vertex’s monopoly with compulsory licensing is the ONLY language they respond to = lower pricing.

Read more: https://t.co/YKBfgfnJJZ 🇧🇷

[heidi sammons 🌹 @heidisammons]

@VertexSaveUs @VertexPharma @CompComSA This is what keeps me up at night. How can there be miracle drug for those of us born with CF, yet the barrier to get it is $30,000 per month?!?! UNCONSCIONABLE

[Vertex Save Us @VertexSaveUs]

South African #cysticfibrosis patient JC speaks about about @VertexPharma’s inhumane & inequitable ‘access programme’ that means that only the privileged can access Trikafta, while he & the other 50% are left behind.

The @CompComSA must re-open their investigation now. 😡

[Vertex Save Us @VertexSaveUs]

@Teodor147 @CompComSA @VertexPharma @HealthJusticeIn @JustTreatment @gayle_pledger Any day now 🤞🤞🤞

[Vertex Save Us @VertexSaveUs]

Today we’ve been @CompComSA to deliver a dossier of evidence showing that @VertexPharma has misled them & that 50% of CF patients in SA are still dying w/o access to #Trikafta.

They must reopen their investigation into Vertex’s anti-competitive behaviour.

No one left behind!

[Just Treatment 💊 @JustTreatment]

🚨 BREAKING: #CysticFibrosis families handed over a 100-page dossier to @CompComSA.

It shows how @VertexPharma misled the Commission & public. Half of CF patients still can’t access lifesaving #Trikafta.

We demand the investigation be re-opened. #NoOneLeftBehind @VertexSaveUs

[Health Justice Initiative - HJI @HealthJusticeIn]

'Access for the Privileged' SA Health Advocates Demand Competition
Commission Reopen Vertex Investigation

1/2 of eligible cystic fibrosis patients in public & private health sectors still cannot access life-saving drug.

https://t.co/nrYT4vyiUr

@VertexSaveUs @JustTreatment

[heidi sammons 🌹 @heidisammons]

@VertexSaveUs @VertexPharma Dear Vertex-You are truly vile. How dare u raise prices on a life saving drug that none of us can afford? WHO has an extra $30,000 per month?!?!
Signed-a CF WARRIOR

[Vertex Save Us @VertexSaveUs]

@JustTreatment @VertexPharma Utterly cruel & disgusting behaviour. Every employee of @VertexPharma should hang their heads in shame. 😡

[Vertex Save Us @VertexSaveUs]

Nothing surprises us when it comes to the greed & inhumane behaviour of @VertexPharma.

Children are dying w/o access to #Trikafta due to the unaffordable price.

Vertex’s response - to INCREASE the price.

That says everything about their utter disregard for CF patients 🤬

[Vertex Save Us @VertexSaveUs]

Amazing news from #Turkey today - CF patients aged 6+ will have access to #Trikafta. ❤️

BUT… Why did it take 6 years whilst @VertexPharma blocked efforts to access affordable alternatives? How many young lives were lost? 😞

And 000’s globally are still waiting 😡
#CFCantWait

[Vertex Save Us @VertexSaveUs]

It’s hard to believe what happened at #ECFC2025...

@VertexPharma SHUT US OUT - three CF mums - from their "community meeting" for wanting to ask critical questions about #Trikafta access.

But we didn't stop there…

Read full blog to find out more ⬇️

https://t.co/L45Mi7ifKK