Isabel Mya

she/her • 28 • chronically ill and just trying my best to be a decent person • conservatives and their ilk not welcome here

[Isabel Mya @isabelosophy]

I thought I saw @MECFScomrade ‘s profile picture on my timeline today. I got excited to see her again, and then I remembered. I don’t even know if we ever interacted but I was still so saddened by her death. she deserved better 💔

[Isabel Mya @isabelosophy]

being bedbound or even just housebound feels so much more depressing on warm sunny days when everyone is posting on social media about being outside enjoying the weather 💔

[Isabel Mya @isabelosophy]

@stichedstars I love your outfit!!

[Isabel Mya @isabelosophy]

@TanteRos it’s awful isn’t it 😩 the worst part for me is having constant stress from not being able to tell if it’s ME or sertraline and as a result not being able to work out my baseline and how much exertion is safe for me on any given day 😭

[Isabel Mya @isabelosophy]

the super fun part of tapering off of sertraline when you have MECFS is waking up every day wondering if you’re having PEM or sertraline withdrawals or both

[Isabel Mya @isabelosophy]

@OnTheFenceDev yes, our council elections were last year or the year before I think

[Isabel Mya @isabelosophy]

@OnTheFenceDev @humphriezz @shay20251 it wasn’t a local election for Scotland, it was a Scottish parliamentary election

[Isabel Mya @isabelosophy]

this year my body decided to kick off ME/CFS awareness month by giving me the worst symptoms I’ve had in probably months. just to make completely sure I’m aware of it, I guess

[Isabel Mya @isabelosophy]

waking up on a PEM day like ���hey, who turned my bones to cement?”

[Isabel Mya @isabelosophy]

sometimes I get nostalgic for the 2 month period in 2020 at the start of the pandemic where I naively thought it might be a wake up call for the world to start caring more about disabled people 🤡

[becca @kokorobitch]

extremely funny thing for an author to say

[Isabel Mya @isabelosophy]

fans of the pitt seem like they’re having a great time but unfortunately I have far too much medical trauma to spend any time voluntarily looking at the inside of a medical facility or, worse, listening to what a doctor has to say

[Isabel Mya @isabelosophy]

I’m currently tapering off one of my meds and I have a chart of which doses I’m taking on which days. it feels like doing the world’s worst advent calendar

[Hello it is me Kira :)🍉 @kirabira]

Literally everything I learned about how to stay alive & care for my body when I got sick was thanks to the millions of other sick people who came before me & left detailed instructions. No doctor helped. Even the nice ones who believed me had no actual advice. Only other sickies

[Hope @hopppernickle]

and not just bad. they are often evil, abusive, sadistic and incompetent

[Isabel Mya @isabelosophy]

@Annakwood yes, absolutely :)

[Paul Gads @PaulGadsden82]

People without chronic illnesses really don't get just how bad many doctors are at their jobs.

[Isabel Mya @isabelosophy]

@TanteRos it definitely does! I don’t think it’s doing anything to help my mood (and I’m also on a different antidepressant which *is* helping) but I’m still nervous about what affect it might have on me physically. fingers crossed all goes well for both of us 🤞