I thought I saw @MECFScomrade ‘s profile picture on my timeline today. I got excited to see her again, and then I remembered. I don’t even know if we ever interacted but I was still so saddened by her death. she deserved better 💔
being bedbound or even just housebound feels so much more depressing on warm sunny days when everyone is posting on social media about being outside enjoying the weather 💔
@TanteRos it’s awful isn’t it 😩 the worst part for me is having constant stress from not being able to tell if it’s ME or sertraline and as a result not being able to work out my baseline and how much exertion is safe for me on any given day 😭
the super fun part of tapering off of sertraline when you have MECFS is waking up every day wondering if you’re having PEM or sertraline withdrawals or both
this year my body decided to kick off ME/CFS awareness month by giving me the worst symptoms I’ve had in probably months. just to make completely sure I’m aware of it, I guess
sometimes I get nostalgic for the 2 month period in 2020 at the start of the pandemic where I naively thought it might be a wake up call for the world to start caring more about disabled people 🤡
fans of the pitt seem like they’re having a great time but unfortunately I have far too much medical trauma to spend any time voluntarily looking at the inside of a medical facility or, worse, listening to what a doctor has to say
I’m currently tapering off one of my meds and I have a chart of which doses I’m taking on which days. it feels like doing the world’s worst advent calendar
Literally everything I learned about how to stay alive & care for my body when I got sick was thanks to the millions of other sick people who came before me & left detailed instructions. No doctor helped. Even the nice ones who believed me had no actual advice. Only other sickies
@TanteRos it definitely does! I don’t think it’s doing anything to help my mood (and I’m also on a different antidepressant which *is* helping) but I’m still nervous about what affect it might have on me physically. fingers crossed all goes well for both of us 🤞