At 35 I was diagnosed with metastatic breast cancer.
80% of my tumor shows neuroendocrine differentiation. The Ga-68 scan lit up like a Christmas tree, clear proof of high somatostatin receptor expression.
The World Health Organization classified this as a distinct subtype back in 2019. American and European guidelines already have specific treatment pathways… but in Spain we still don’t. So I’m being treated as standard breast cancer by default.
That gap could cost me access to therapies that science already knows may work for my exact molecular profile.
Time is not on my side with metastasis. I can’t wait years for the system to catch up.
My oncology team is fighting hard for me within the current protocols, they are not the problem. The guidelines are.
I’ve put all my molecular data, imaging and case details on https://t.co/mcFTTsZ3S5 so other patients and researchers can use it.
If you share this video, you’re helping me get the right treatments faster… and you might be saving someone else’s life too.
Please watch until the end and share if you can.
Together we can push for change. 💪🎗️
@juanmacias "Humans approve at each gate" Lo razonable con el estado de arte actual. Se debe tener claro que el LLM no es determinista y es vulnerable a prompt injection así que sin humano en medio estaríamos aceptando cierto nivel de riesgo. Importante también tener buen disaster recovery