Introducing Dust On The Road : A John Fante Podcast.
Launching Sunday November 1st.
Apple: https://t.co/GdPQxfwboi
Spotify: https://t.co/MV2vl3tKHA
Anchor: https://t.co/QIBuSybjU5
We’ve got a hard hitting #ThereForME blog today from Karen Galpin, writing about caring for her daughter Sophia, who has very severe ME.
@tenacious_mumma describes their daily reality, responding to narratives that downplay the impact of #ME
https://t.co/f5OhwHKTXT
Sophia's partner Dan heartbreakingly describes the complexities around communication, how precious and vital every message, sign and whispered word is, how ingenious her ways of staying connected are when she is so desperately lonely #verysevereME https://t.co/mfHrha0DSA
I can’t say how refreshing it is to see this. It’s uniquely cruel to have a life changing illness whilst being told - by medics and the media - that you’re making it all up. From ME to Long Covid, I hope this is the beginning of post-viral patients being believed and helped.
The #DisabledPoetsPrize is now open for deaf & disabled UK poets with awards in best single poem, best unpublished pamphlet, & best poem performed in BSL and offers prize money plus exceptional opportunities.
Free entry.
For more info visit: https://t.co/6lfiXfXEd8
D/L 31 Oct
@PaperAndInkZine Are a lot of Paper and Ink writers/writers you like on Instagram? Twitter seems pretty useless these days for keeping track of writers and have been wondering whether I need to jump back on there. You're always my guiding light with this sort of stuff.
"What does she do all day?" The question that underlines how poorly #severeME is understood by many doctors. In this case, a private pain consultant I reached out to, in desperation & at great expense, for help with Sophia's pain as NHS pain services abandoned her 4 years ago 1/
"They were surrogate teachers for me...all the quotations, all of the references, all of the intertextual allusions within the lyrics themselves...I was writing down those names and going to the library, going to the computer to look them up and ordering them"
Yep.
@StretfordPaddck@Carra23 I think because Scholes cemented himself in the 2000s people forget that even in the Treble season he still scored against Bayern, Barca, Inter, Liverpool, FA Cup Final etc
Ahead of Merryn’s Smile Day we want to share a little bit more about Merryn the person written by her Mum Clare.
Originally shared in 2020 Clare honours Merryn describing her as a ball of mischief, love, trouble & gentleness, encapsulating her love for life & her beautiful heart