Jackson superhero might not be a real name but is a story of a real boy. By day a rare disease limits Jackson’s ability to move but at night becomes a superhero
@elonmusk I created this account so I can promote the kids book series I created for my terminally ill son Jackson,got told he wouldn’t make 2, Jackson will be 12 in august. These books help us to make memories, legacies whilst helping others to not feel like we did. #worthatry
Sneaky little previews of the new Jackson superhero story - coming soon-
JACKSON SAVES THE TOOTH FAIRY
Chris Jarvis from CBeebies said “it’s a masterpiece“
https://t.co/xMm7tQ0Tj7 ☺️
Tomorrow I’ll be walking from Swindon to Southampton raising money for My terminally ill son Jackson.
I’ll be wearing @ErikLamela training top (because it’s cold 🥶 🤣) Erik gave me his top when Jackson & I visited the @SpursOfficial training ground 2019.
https://t.co/4ATGklIQPD
Hi All, Thursday 14th May I’m walking from Swindon to Southampton over 3days following the “great stone way”
I’m trying to raise £8499 for a new hyperbaric oxygen chamber for my terminally ill son. Live videos on jacksons smile facebook. link to sponsor https://t.co/4ATGklIQPD ❤️
I'm raising £8,499 to go towards a lay down hyperbaric oxygen chamber for my terminally ill son Jackson. Jackson can’t safely sit up in the hyperbaric oxygen chamber that we currently have. ❤️❤️❤️❤️❤️
Walking from SWINDON TO SOUTHAMPTON 3 days (82 miles)
https://t.co/4ATGklIQPD
Thank you to @RealTimBooth for the Guest list tickets to see @wearejames at London 02 on Friday. How exciting, I can’t wait to have a good night out watching the best band I’ve ever seen live. I really can’t wait 😛
Jackson has a copy of “Jackson saves London” for all the band❤️
@RealTimBooth Great song choices, everyone has their own “song memories”.
“Say something“ is a special song that reminds me of/ or helps me through the tough times.
Cant wait to see yous at the 02 - a proper pick me up band - possibly the best band I’ve ever seems live ❤️ 😴🦸♀️
@SimonBrodkin I’m here in grays, I’ll leave you a book on stage, this is a book I created for my terminally ill son Jackson.
He is now a superhero, please check out the book I left for you , and I hope you love it xxx
@SimonBrodkin That’s a shame mate. I’d love to send you a copy of the “Jackson superhero“ books. They are about my terminally ill son who becomes a superhero in his dreams.
I had Great night in grays the other week, a needed real good laugh.
Thank you ☺️
My son was diagnosed with Krabbe disease at 1. Our unborn baby also had it—we were told to terminate. Later, our daughter died the day before her due date. This year, my dad died suddenly.
Some people never understand this level of grief. Please be kind.
Life is a battle x
@RealTimBooth The 02 London 17/04/26 is the closest gig to me, that would be amazing-
Really easy for Jackson to come along too ❤️
Jackson has something that he’d like to send you via email,just thought you’d enjoy listening to them if you got a min. My email ❤️[email protected]
@RealTimBooth Thank you and as always we all appreciate your kind words.
I’m looking forward to seeing you preform again sometime, somewhere next summer 🎸🕺☀️
I may bring Jackson with me if he’s feeling it 😘