Jacob Spencer

UofSC School of Medicine

[Jacob Spencer @JacobHSpencer]

@Pentosh1 $SUI comes right to mind of course, but don’t have the charts on me now

[Whitney Dafoe @DafoeWhitney]

I Still Feel Free

I haven’t felt the wind on my back in 11 years.  But I still feel free.

I haven't touched a woman with love in 12 years.  But I still feel love.  

♿️ ��𝘖𝘞 𝘔𝘖𝘙𝘌 𝘈𝘊𝘊𝘌𝘚𝘚𝘐𝘉𝘓𝘌 𝘖𝘕 𝘔𝘠 𝘞𝘌𝘉𝘚𝘐𝘛𝘌 𝘞𝘐𝘛𝘏 𝘈 𝘝𝘖𝘐𝘊𝘌 𝘙𝘌𝘊𝘖𝘙𝘋𝘐𝘕𝘎 𝘙𝘌𝘈𝘋𝘐𝘕𝘎 𝘔𝘠 𝘗𝘖𝘚𝘛 𝘈𝘓𝘖𝘜𝘋. 𝘓𝘐𝘚𝘛𝘌𝘕 𝘏𝘌𝘙𝘌:

🔗 https://t.co/Uwrp45qDD9

I haven't spoken a word to another person in 12 years.  But I still feel understood.

I haven't eaten food in 11 years.  But I still feel fulfilled.  

I haven’t walked beyond the 6 feet from my bed to my bathroom and back in 11 years.  But I still know how to run.

I haven’t truly slept in 11 years.  But I still feel awake.

I haven’t been spontaneous in 11 years. But I still feel choice.  

I haven’t had a conversation with my father in 12 years.  But we both still care.

We are not our circumstances.  This physical world does not define us nor can it confine us. We are infinite beings.  We create our universe.  And I choose to live in wealth and freedom and love.  ME/CFS can take all of my health and my good fortunes and circumstances but it will never take me.  I live on, unfettered, untouched, unsoiled.  Bright eyed like the morning sun. I exist.  I thrive.  I dream.  I love. I change. I inspire.  I.  Am.  Free.  

No one and nothing can ever take my freedom.  In the chains of ME/CFS I am still free.  Beneath the cloud of oppression, I call out to the universe and rejoice in this life that I have, the miracles that still exist all around me and the power I still have to take it back.  

ME/CFS can destroy most of me but it can never own me.

I suffer, cry, feel miserable, lonely, often brain dead and disconnected from myself.  We all do.  We have lost so much.  But those things always pass and light eventually pours into my life and makes me weep for the glorious beauty of this world.  

This year on ME/CFS awareness day, let’s acknowledge what ME/CFS has taken from us, the suffering it has inflicted on us, and the life it has destroyed.  Let’s never try to repress or forget.  ME/CFS does not deserve forgiveness.  But let’s also look around at the life we still have and rejoice in the miracles that are still happening all around us, to us and for us.  WE ARE ALIVE!  And one day we will be free from these chains and nothing will slow us down.  Our wake will shake the earth with a great tidal wave of redemption. 

Love,
Whitney  ❤️ 

#mecfsawarenessday 
=========

✏️ My ME/CFS Blog:
 https://t.co/per7V177l1 
❓What is ME/CFS?
https://t.co/kMw1LA34Wo
👤 My Story:
https://t.co/hREHpSioSr
📄 ME/CFS Resources:
https://t.co/kQXY6e3Vhj
🙏 Donate to ME/CFS Research:
https://t.co/AJYmrN6k98

=========
#mecfs #SevereMECFS #pwME #LongCovid #Disability #ChronicIllness

[Jacob Spencer @JacobHSpencer]

@Pentosh1 Hehehe yes indeed

[Orderly @OrderlyNetwork]

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[Jacob Spencer @JacobHSpencer]

@syncswap That’s what I was wondering 🤔

[Jacob Spencer @JacobHSpencer]

So many opportunities and not enough time in the day. Exciting times!

[Hokage @73lV_]

I feel exhausted 😭

[Orderly @OrderlyNetwork]

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Quest🪂: https://t.co/6IZbCP73fC

[Meta Signals @MetaSignals]

Behind Meta Signals is years of daily grind, more data than any one person should ever have to interpret, a path littered with naysayers, and a whole lot of pain!

Much love to those souls here who have glimpsed our vision and understand where this is all headed ❤️

[Jumper @jumperapp]

Wrapping up an incredible 2023! 🎉

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[Jacob Spencer @JacobHSpencer]

@Pentosh1 It’ll be the biggest bull trap of all time

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

Interesting connection between lack of TCells (CD4 I think?), muscle inflammation, and mitochondria.

#MECFS #PEM #LongCOVID

https://t.co/wwPUTWqZec

[Manuel Ruiz-Pablos @manruipa]

I continually see news where they state that the microbiome is responsible for several diseases, when it is the alteration of the immune system (often due to infections) that ends up causing an alteration of the microbiota when the intestinal barrier is deteriorated. That is to say, they are only seeing that in these diseases there is a microbiota different from that of the healthy and they often associate them as causes of pathologies, when it is simply another of the many consequences of these diseases.

What happens after the intestinal barrier has been breached is that these bacteria can cause more problems and symptoms. But the barrier is not broken by these bacteria but by the immunological alteration generated by some infections (e.g. viral).

#LongCOVID #MECFS #MyalgicEncephalomyelitis #Health #Research #News #microE2324 #Medicine #Microbiology #VIRUS #ChronicDiseases #SARSCOV2 #COVID #LongHaulers #MCAS #ME #MyE #CFS

[Post-Viral Trials News @postviraltrials]

Great article by ME/CFS patient and journalist Brian Vastag on the backstory that led to the discovery that overexpression of WASF3 might be at the root of her fatigue, and maybe that of others with ME/CFS (including maybe those triggered by Covid…?) https://t.co/NH3AedO9DH

[Skrice Studios @SkriceStudios]

What type of skins would you like your sniper troops to have?

[Skrice Studios @SkriceStudios]

Hero Doge King look good😎

A before & after when characters come to life!

[Jacob Spencer @JacobHSpencer]

@francesco_maoli @jeubanksMD @UofSCSOM @JoeKellyBrown @BenJacques11 @AAPhysiatry_MSC @AAPhysiatrists @AAPhysiatry_RFC @DrKirstinWeider @HetalRPatelMD @vishrajmd @MVGutierrezMD Couldn’t have done it without you Francesco! You showed us the map and drew out our route

[Jacob Spencer @JacobHSpencer]

@DrKirstinWeider @jeubanksMD @UofSCSOM @JoeKellyBrown @BenJacques11 @AAPhysiatry_MSC @AAPhysiatrists @AAPhysiatry_RFC @HetalRPatelMD @vishrajmd @MVGutierrezMD Will do! We’d really appreciate a (kind of) local connection.