angela mv/p 💁🏻‍♀️

🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻‍♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

#LongCovid #TeamClots - check this message to my hematologist from JULY 2020! I was asking about MICROCLOTS that weren’t detectable via DDimer (which I had deduced w lots of HyperPOTS-fueled PubMed research) cc ⁦@PutrinoLab⁩ ⁦@VirusesImmunity⁩ ⁦@resiapretorius⁩

[Whitney Dafoe @DafoeWhitney]

‼️Someone is scamming ME/CFS patients in my name ‼️
I need your help to report this scam to the authorities. I'm already having a really bad day and can't possibly do this myself. We need to stop these f**rs. Scamming ME/CFS patients for an already underfunded illness? How low can you get.

If you donated to the fraudulent campaign please contact your card issuer immediately and pleaase consider donating to my legitimate campaign, Ron needs the funds.

Here is my LEGITMATE fundraiser on Spotfund
https://t.co/qIIjUGNRf4

Here is the fake one, you can see the domain isn't even spelled right
https://t.co/wR5SiWW3Xo

It's spelled "humanunity"

This is what chatgpt said to do, with a script you can copy paste and send to these organizations. Please help and let's stop them and hopefully F them up a bit😉

SCRIPT
=========

I am reporting a fraudulent fundraising campaign impersonating ME/CFS advocate Whitney Dafoe and exploiting his family’s work.

Whitney Dafoe has confirmed that he did not create, authorize, approve, or benefit from this campaign. “Whitney Callister,” the listed organizer, has no authorization to raise money for Whitney, Dr. Ronald W. Davis, or their ME/CFS research.

Fraudulent campaign:
https://t.co/wR5SiWW3Xo
Whitney Dafoe’s legitimate fundraiser:
https://t.co/qIIjUGNRf4

The fraudulent page claims to have raised $41,200 from 428 donors and falsely labels the campaign “verified.” Its checkout identifies Stripe as its payment processor. The website provides no EIN, identifiable officers, physical address, or specific state of incorporation. Its domain was registered on August 3, 2026, despite displaying campaign and organizer activity supposedly dating from before that.
This campaign is deceiving vulnerable ME/CFS patients and diverting donations intended for desperately needed research.

Please immediately:

Disable the campaign and prevent further donations.

Freeze or hold all related funds and payouts.

Preserve the organizer’s identity-verification, banking, transaction, access-log, and IP records for law enforcement.
Investigate the entire Human Unity Foundation website for additional fraudulent campaigns.
Provide a case or reference number if possible.

=======

Please report it to these websites and let us know if you have. But the more reports they get the better so they act faster. It would be good if these people faced conseqeuences so it did not happen again.

REPORT HERE:

Do these today, in this order

1. Preserve evidence before the site changes. Save full-page screenshots/PDFs of the campaign, checkout showing Stripe, About, Contact, Terms, and refund pages. Preserve your correspondence, dates, headers, and the legitimate Spotfund campaign. Do not send the suspicious site identification documents.

2. Report it to Stripe immediately. Ask Stripe to disable payment collection, hold payouts, and preserve the merchant’s identity-verification, bank, IP, transaction, and account records. Use Stripe’s complaint form. Stripe’s own guidance says fraudulent transactions should also be disputed through the cardholder’s bank. Stripe fraud guidance

3. File an FBI IC3 complaint. The FBI specifically directs charity-fraud reports to IC3, and IC3 says to report even when uncertain whether a matter qualifies. File with IC3 and see the FBI charity-fraud guidance.

4. File with California’s Attorney General. The page claims Palo Alto, California, and California investigates fraudulent charitable solicitations. Use the California charity complaint form information.

5. Report the infrastructure. Report the complete campaign URL—not merely the homepage—to Dynadot, the domain registrar, and Cloudflare. Select fraud/phishing/impersonation as applicable.

6. Report it to the FTC: https://t.co/ppXQxTkHtl.

‼️ Please repost and share! 🤬🤬‼️

[Ben Crump @AttorneyCrump]

24-year-old Hunter Adkins, who lived with muscular dystrophy, died after a fall while being assisted onto an Allegiant Air flight. A lawsuit alleges he was placed in a wheelchair without safety straps while boarding was rushed. What happened to Hunter raises serious concerns about how passengers with disabilities are treated when it matters most. https://t.co/xFpwxq5eUj

[Carol 🛌👩‍🦼😷 @TickedOffCodess]

Some people with very severe ME haven’t left their bedroom in years. Not months. Years. And their doctors have never once come to them. #MEawareness

[Carol 🛌👩‍🦼😷 @TickedOffCodess]

Very severe ME means lying in a dark room 24/7. No phone. No music. No visitors. Not because you’re resting. Because your nervous system can’t handle any of it. #MEawareness

[Patient-Led Research Collaborative @patientled]

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @RTHM_Health to help patients & providers explore treatment options together.

The guide focuses on 24 medications, but includes a few other interventions for breadth /1 https://t.co/xT6MQPte31

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Important point: patients are not voluntarily hyperventilating or breathing abnormally. Patients have dysfunctional breathing and hyperventilation BECAUSE of cardiac preload failure and cerebral hypoperfusion.
#MECFS #POTS #LongCOVID #Dysautonomia

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

@JackHadfield14 MCAS doc: cephalosporins (keflex, ceftriaxone), doxycycline, clindamycin better-tolerated than penicillins, bactrim. Fluoroquinolones (levaquin, ciprofloxacin) are toxic to mitochondria & also patients w hypermobility are at increased risk for tendonitis and tendon rupture

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

Anyway now I suspect that whenever my autoimmune disease flares (such as with vaccines), it by definition increases my MAS1 autoantibody activity which worsens my asthma! Fun!

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

Okay why did I just find the 2021 paper linking MAS1 receptors to asthma therapy.

I have been in STRUGGLE CITY w my asthma since my inaugural Novavax vaccine.

https://t.co/OvEF8N4p96

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

Just got my results - strong high for MAS which aligns w ongoing ortho hypertension & clotting propensity.

https://t.co/ieaQ6oQA8x

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

I have been in a low grade autoimmune flare which my daily HCQ has mostly managed classic symptoms for (mouth sores, fatigue) but which hasn't touched my asthma which is ANGRY, nor did it prevent my COVID toes from coming back.

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

@DiaryofaSickGrl Xolair helped even though none of my allergies were IgE

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

Does anyone w Long Covid get covid toes after their vaccines?

[Janet Dafoe @JanetDafoe]

Whitney & many of you rely on Medicaid. Congress is voting now to resolve to cut it by over a billion so they can reduce taxes on the https://t.co/YX7pB4wVr3 your congressperson NOW to object! Medicaid hotline:

[phone]

You enter your zipcode. It connects to YOUR rep.

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

@__WXMD yo UHC/Optum are requiring a new PA for the high dose Xolair I've been on (that they approved 5 months ago!). They did this with no notice, just denied my refill.

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

Anyone else getting NEW dose limits for #Xolair from @OptumRx or @UHC ?!

[Alice Wong 王美華 @SFdirewolf]

Housing stock is already low in cities like Los Angeles. Just think of how accessible housing will be even more scarce after the wildfires not to mention rents will be price gouged due to high demand

Everything is connected

#LAFirestorm2025 #LAFires

[Alice Wong 王美華 @SFdirewolf]

I am enraged that mutual aid groups are doing more than the govt. Disability justice teaches us that we are all interdependent and no one gets left behind.

We really are all we have. The govt will not save us.
#LAFires #LAFirestorm2025

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

@RuhoyMD The migraines alone…

[angela mv/p 💁🏻‍♀️ @ItsAngInLA]

@ThePOTSPostman exercise, but don't do or work too much.

they went to school for this.

[Zahra Khan (she/her) ♿️🦻🏼 زہرا خان @hellozeik]

I'm inventing a new term: medical ZEBRAFYING

It's when doctors treat something as a rare condition that's not actually rare & it is then used as a way to provide inadequate treatment/Accommodations