Jessica Taylor-Bearman

YA Author
- A Girl Behind Dark Glasses
- A Girl in One Room
- A Girl Beyond Closed Doors
Winner of Best Impact at The People’s Book Prize

She/her

[Jessica Taylor-Bearman @jayletay]

What you should know (A THREAD)

I became ill with M.E. at 15, due to a virus. I disappeared from my life.

Since 2006, I have spent 1825 days in hospital.

I was bed bound for 12 YEARS and housebound for longer.

I've had 4745 blood thinning injections. (1)

#PwME #MedTwitter

[Whitney Dafoe @DafoeWhitney]

We Need Your Help

Imagine starving to death and being allergic to all food.  And everyday trying to decide between starvation and a deathly allergic reaction.  ME/CFS is like an allergy to energy expenditure.  Imagine everyday trying to decide between doing something that makes you feel alive or deathly sickness.  The more you do, the less alive you feel.  And the less you do, the less alive you feel.  And the more you do, the less you are physically capable of doing.  That is ME/CFS.  Everyday.  For decades.  

But if you don’t have ME/CFS, and are not allergic to life itself, you could decide right now to help us.  And it won’t cost you anything but an extra work day, or one less toy or luxury, or some other small sacrifice in an otherwise life full of blessings and opportunity.  Which I would not want to take away for a second.  But a small sacrifice from you would go a long way towards helping people living in absolute hell.  

Go here to donate to ME/CFS research: 
https://t.co/Ru1nyvjQqq

Learn more about ME/CFS here:
https://t.co/Umhh7me9eO

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#mecfs #mecfsawarenessday #mecfsawarenessday2026 #chronicillness #pwME #spoonie

[Channel 4 News @Channel4News]

The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.

Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.

But charities have warned that there is more to do and this must only be the start.

[Jessica Taylor-Bearman @jayletay]

Oh Sally, thank you so much for including me and the A Girls series 💙

Sending so much love your way xxx

[Sally Doherty writes 👩‍💻 @Sally_writes]

Today is the 20th #MEAwarenessDay since I've been ill. It’s difficult for us to get the word out about this debilitating illness but one way is through the power of books📚

Here are some which feature ME representation (yes, some of them are by me, sorry about that)

[Sally Doherty writes 👩‍💻 @Sally_writes]

How is this not genocide? How can we all sit by and let this happen?

It is incomprehensible how little he values the human lives of others. Which country will be next?

[Niall Stanage @NiallStanage]

British TV anchor @KamaliMelbourne of Sky News with a moving, personal response to Trump’s posting of the racist clip of the Obamas.

I know Kamali just a little. I’m proud of him for saying this — and sad we’re in a moment when he has to.

[Jessica Taylor-Bearman @jayletay]

My life is relentless at the moment. Samuel is back in hospital, back to being unable to maintain o2 levels. But what upsets me the most is people are being left in corridors for hours and hours, sometimes days, stripped of their dignity. It's so damm inhumane.

[Hannah Sharland @h_sharland]

Queen Elizabeth Hospital is still starving severe ME patient Savannah. A psychiatrist came on Thursday and asked her why she hadn't got out of bed.

A BPS clinician is likely why.

Savannah is calling on the community for help once again 👇#MEcfs #pwME
https://t.co/qPyt2iRRYA

[Jessica Taylor-Bearman @jayletay]

I need to get upstairs to bed and also to go to the toilet...but upstairs is a long way up for someone who suffers with such severe fatigue that their legs collapse and can't hold their weight up... I'll have to stay downstairs for now and crawl up as soon as I can 😩

[Artists for Palestine UK @Art4PalestineUK]

Actor Hugh Bonneville on the “abomination” that is Israel's ban on aid organisations in Palestine:

"I call on all in my community, and that includes you, to speak up"

[Jessica Taylor-Bearman @jayletay]

Also adding that we've been entirely reliant on the NHS, which brings home the state it's in. It's important to note that it's down to the care of immigrants that NHS is still going. This country needs to stop scapegoating immigrants. Look to the powers at be for blame, not them.

[Jessica Taylor-Bearman @jayletay]

I've been very quiet on here. It's been an incredibly challenging couple of months. Samuel was admitted into hospital at the end of August and when he came out 17 days later, he had more problems than he went in with. Another auto immune diagnosis, catheters etc. (1)

[Jessica Taylor-Bearman @jayletay]

Thankfully we have managed to now get rid of the catheter, but we are still looking at multiple auto immune diseases and breathing issues. We're all learning to adapt to all of this (4)

[Jessica Taylor-Bearman @jayletay]

I've been very quiet on here. It's been an incredibly challenging couple of months. Samuel was admitted into hospital at the end of August and when he came out 17 days later, he had more problems than he went in with. Another auto immune diagnosis, catheters etc. (1)

[Jessica Taylor-Bearman @jayletay]

I'm having to push my body far more than I'm physically capable of doing and I know there is going to be a fallout, I'm already seeing it. But currently I don't really have a choice. I know how immensely privileged I am to have a supportive family but ugh...this is hard! (3)

[Censored Humans @CensoredHumans]

Greta Thunberg in Greece:

I could talk for a very, very long time about our mistreatment and abuses in our imprisonment. Trust me, but that is not the story.

Israel is escalating genocide and mass destruction with genocidal intent, attempting to erase an entire population in front of our eyes.

[Zarah Sultana MP @zarahsultana]

You can protest against Israel’s genocide in Gaza and unequivocally condemn the antisemitic terror attack in Manchester.

Don’t let politicians or the media tell you that you can’t do both.

[mary 🍉 @HUHFEATHOPE]

they put greta thunberg and many other activists in the ketziot prison that is known for its violent torture towards palestinians. ALL EYES ON THE ACTIVISTS! BE LOUD

[Zack Polanski @ZackPolanski]

Deeply concerned about the safety of those on the flotilla.

We know the government will try ignore it - it's really important we all speak up and raise our voices.

This is a group of people delivering baby food to Gaza and the Government must intervene to ensure their safety.

[Jessica Taylor-Bearman @jayletay]

@piersmorgan And what are the government's doing to stop the illegal siege on Gaza and bring aid to gazan people? Nothing. Which means ordinary people have to stand up and do something.

[Moh Musthafa Hussain @musthafaaa]

🚨WATCH: Facing imminent kidnapping, and interrogation in an Israeli prison, Global Sumud Flotilla member Thiago Avila defiantly states Israel’s crimes to an Israeli military servicewoman over the radio.

GU