@VP And those who are non ambulatory and use power wheelchairs like my sons, are forced to use small, rickety aisle chairs and transfer to a seat. How are they even supposed to get to the bathroom as the aisle chair is removed from the plane once they board?
@neworder@FillmoreMB 1200 miles from philly. 4 best friends traveled to see show. #neworderfansforlife how about “Leave me alone” to add to set list? Cannot wait for show!
10th Annual Unionville Run For Our Sons https://t.co/sFg0RybB3D via @YouTube
TY to the UHS tv/video production class for making this and @JohnSanville for contributing and supporting this event year after year. Please watch and share. Hope to see U there on April 6!
@SGottliebFDA @US_FDA If we can get Ataluren in kids at diagnosis, we will change the DMD disease trajectory. We cannot wait for more trials. #AtalurenNOW https://t.co/NVqzcF917s
RETWEET: Of the 7K #rarediseases, only a few hundred have approved treatments. Repealing #OrphanDrug Tax Credit would result in 1/3 fewer treatments 4 patients who need them. Pls #SaveOrphanDrugs