In light of Rare Disease Day, I am proud to announce that AB 2563 was introduced which would mandate newborns to be screened for Duchenne in California. I want to give a special thank you to Assemblyman @billessayli for introducing this. The Assemblyman and I go back as he was my high schoolโs Mock Trial coach as an accomplished attorney.ย
This is a video of my written statement on this issue.ย
Iโm calling on advocacy groups like @MDAorg, @CureDuchenne, @ParentProjectMD, and others to join me and help with this initiative.
Iโm also calling on those in biotech like @Sarepta, @CatalystForRare, @Capricor, @SatellosBio, @PTCBio, @Solid_Bio, @DNANanobots, and others in the Duchenne space, tohelp support this effort. A simple letter of support would be a significant help.ย
Letโs build a better future for children.ย @RareDiseases