🏆STOP LOU GEHRIG'S, WIN NOBEL🏆 @realDonaldTrump. Order the #US_FDA (now SIX YEARS overdue for ALS guides) to offer all new terminal drugs a "non-binding" Phase III option (IA)! Can ALS please be NEXT? 📞 us for more info!🇺🇲👍 #ALS#ENDALS#FLOTUS#CoreyPolen#marksberardi
Fri - My dad throws first pitch at @Phillies game in honor of my mom
Sat - The Frates throw out first pitch at @Phillies game for @PeteFrates3
Tue - @PQuinnfortheWin honored at Yankee Stadium
3 ALS warriors, 1 week. Amazing
Idea: Annual national Lou Gehrig’s/ALS Day in @MLB?
Come out and support TONIGHT!! Petes Tavern in Bronxville to support a friends dad with ALS get home. Fuck this disease man. #FightingALS#WeFightTogether
We recently hosted our Fourth Annual Chip In for the Clements Fun'raising event. Thanks to tremendous support from family, friends and our community, the event was amazingly successful! See below for the group photo. If you are interested in seeing more photos, visit my website!
@KevinSwan_@tacobell@MountainDew I would love to have a burger with bacon, onion straws, BBQ sauce, side of fries with malt vinegar, and an cold Miller Lite draft! I am lucky, four years post diagnosis, I am still able to eat soft foods. But, that doesn't mean I don't have cravings! #StrongerThanWeLook
@PQuinnfortheWin The Foley mechanism that let's them deflate replace then reinflate does really make it painless! My first one didn't have that feature, thankfully the doctor distracted me by asking me a question before she yanked it out. :-)
It’s been 28,503 days since Lou Gehrig died.
Since then we won WWII, discovered AND cured HIV, declared that love is love and that racism and sexism will not be tolerated.
But we haven’t fucking cured ALS. By year end the @iamalsorg army will surpass 28,503 and we will #EndALS
I had so much fun catching up with this crew last night! Looking forward to seeing more folks tonight and the big day tomorrow! https://t.co/5e3UJwzpsv
There are too many to thank, but without the Sheehy family, @PMS4ALS @BoogSciambi & all sponsors & attendees, we wouldn't have raised over $250K on May 30 - June 1st in NYC at the Sheehy Gala & Softball Classic. Funds raised directly impact the lives of ppl living w ALS.
@JanePet16957549 I use baclofen, got rid of the tired feeling within a week. Built up a tolerance to it I guess. I take 30mg each am, 20mg, at 3pm and another 20mg at bedtime. I rarely nap during the day. Best wishes!