It's now 2 years since Zoë Bull's book Rare: A Journey of Self-Acceptance was published. The inspirational book shares Zoë's personal journey of being a young woman with TSC. Zoë was a popular part of the TSC community, sadly passing away in 2021.
https://t.co/ePPCQz6So6
@shitscaredmum So sorry to hear your sad news. We lost our beautiful daughter 2 years ago just before her 28th birthday to lymphoma so we know something about what you are going through. Sending our love
It's #RareDiseaseDay, this year focused on needs for coordinated care. We stand with @rarediseaseuk & @GeneticAll_UK to call on health & social leads to ensure that care of TSC is done in a straightforward way. Because living with TSC is complicated enough without unfluid care
For #RareDiseaseDay, the rare disease community got together to launch the This is Rare choir, putting the community's voice centre stage in the call for greater recognition and awareness. The choir includes Katie, who lives with TSC! Well done Katie!
https://t.co/MZuqLs9mVy
@JulieCaplin@TripFiction@HarperCollins Yes, we did, and since last year, I’ve read all of your Romantic Escapes, and The Saturday Morning Park Run, The Wednesday Morning Wild Swim and The Secrets of Latimer House!! Looking forward to The French Chateau Dream!! Fabulous books!
Just received my reading for 2022! All by @JulieCaplin! I lovedThe Little Café in Copenhagen and The Little Teashop in Tokyo. Couldn’t wait to read them all! @TripFiction Fantastic #romantic novels! 30% off with 1st purchase @HarperCollins!
COVER REVEAL! #TheBeachHoliday, my 10th(!) novel, is set in The Hamptons, NY, and follows an aspiring writer who meets a Hollywood star. I am in love with the book AND this dreamy cover, and hope you fall for both, too. Arriving 22/06/23 from @HodderBooks
https://t.co/EYblQADCF8
@zoeannewest Hi Zoe, The Doves Farm Freee plain and self-raising flours really good for adapting recipes. A favourite for the whole family is the Victoria sponge recipe on the back of the SR flour packet. I add 2 tbsp cocoa to the mix and one to the butter cream for a great chocolate cake!
@SarahCallejo It’s Beetle, a game where you draw a beetle according to the numbers that you throw on a dice. The first one to finish shouts Beetle and wins:)
@astro_timpeake Happy New Year to you all. Did you ever receive my poem A Visit From A Spaceman, a parody of The Night Before Christmas? It’s about your boys when you took off for the ISS. I sent it through The Soho Agency? I’d love to know what you think of it! 🚀
My daughter Zoë's book is on offer today about #selfacceptance in the face of two rare medical conditions. It was published just after she died last year. All proceeds are shared between @UKTSA and @LAMAction
Please visit the link below
https://t.co/LGJjkM4RaM
Today and tomorrow is Prime Day on Amazon. Amazon are offering DOUBLE donations when you pay for items through Amazon Smile. Select the TSA as your Amazon Smile charity, and we'll get small donations every time you shop at NO EXTRA COST to you!
https://t.co/GGhZAY9w65
Back in April, we asked you to support E-TSC, a European TSC umbrella organisation working with TSC-related groups in Ukraine and Poland. We can proudly say that your response was incredible, with £2,170 raised by the UK TSC community!