You could win a private 30-minute Zoom with Golden Globe and Emmy Award winning actress @GillianA!
Register and start bidding now at https://t.co/37jmXLZ5Jm
All proceeds go to @nfnetwork
Breaking: Today, the US FDA approved the first and only treatment for both adults and children with N1-PN. We're thankful to the patients, families, investigators, advocates and #SpringWorkers who helped make this achievement possible. Learn more: https://t.co/0Ez2TKAojb
A few things to remember:
1) Our vote is not the only way to raise our voices. Never stop speaking out to protect the communities and ideals you hold dear.
PLEASE GO VOTE. There are very few rights we have in this country as powerful as your vote. PLEASE take an hour. Get to the poll. MAKE YOUR VOICE HEARD. #govote#makeyourvoiceheard 🇺🇸
TICKETS ARE ON SALE for Las Vegas’ 14th Annual NF Hope Concert!!!! Remember last year when @chetbuchanan and I asked you to bring 10 friends with you to the concert this year? Well... 😉
🎟️ https://t.co/S2qaQ66ofg 🎟️
#CoolHang …. From Wednesday, time well spent w/ The Fourmers @ Italian American Club. Ex @JerseyBoysInfo members bring the frivolity. Played again last night. We will track future dates … @reviewjournal#RJNow
The 12th Annual @NFHopeConcert
is this Sunday, October 23, 2022 @ 2:00 PM PT in Las Vegas!
Get tickets (live & virtual!) here: https://t.co/wkKHNgvekU
Check out their silent auction items here: https://t.co/nRumAw4JBM
#NFHopeConcert co-founder @JeffLeibow will be on air with @chetbuchanan at 8:20 AM PT to talk about this Sunday's NF Hope Concert at The Smith Center in Las Vegas! Turn your radio to @985KLUC or listen online at https://t.co/EfJsaE3gpe!
#NYC!!! Who's up for some great music by some ridiculously talented people to support a very important cause? NYC's 4th Annual NF Hope Concert is THIS SUNDAY! Get your tix @ https://t.co/315YeasBYJ #nfhopeconcert
An irreplaceable, no holds barred, giant of the theatre world. Thank you for your time, your consideration, and your “Let’s land you your first Broadway show” attitude. RIP sir.
"Rare is strong. Rare is many. Rare is proud."
Today, the #neurofibromatosis community celebrates #RareDiseaseDay! Join us in spreading NF awareness, and learn more about neurofibromatosis and the work we do at https://t.co/RrbCDXswCw.
#NFAwareness#NFStrong